What tests did they give you?...
I am wondering how many of you got fibromyalgia after crohns?...
Boy have I, On this past friday the 13th I got fired for attendence.......from WALMART. I had been there over 6 years. I had doctor notes for every time I was out......At times I did have to leave in...
Delaware...
Has anyone used B-12 patches before, and if so how did they work for you? Thanks, Sherri...
I have been on remicade for about a year now, and I also have bad headaches. The day after is pretty bad for me. I take pain pills. I see a pain management doctor....
I take them.....I see a pain management doctor, she gives me 180 percets to last me 2 months. Hey I take them when I need em. I know I will get hooked, but I refuse to be in pain if I don't have to...
Wow, I am not the only one to get thrush from remicade. They told me it was from the pred., I have taken pred. for years on and off and NEVER got it until I started the remicade. I have stopped the...
I know how you feel, I am 44 years old and have had crohns for 30 years. When I was 17 I had my first blood clot in my leg. It went to my lungs, both lungs. I don't even remember everything I was so...
For me it is. I am on 50mg right now, sleeping is not happening. It only took 10 days for the moon face to set in. Now I have started sweating like a pig all the time. I hate the drug, but it is the...
Thanks for reading and putting up with the venting. I have had a few bad months, out of work over the summer cause of a flare. I was out six weeks.I work at Wal-Mart. I have been on remicade for 6...
I get the joint pain alot.....and does anyone else get mouth sore or thrush all the way down the throat?...
Thanks.....does anyone else get the hiccups ( spelled wrong I bet ) alot?...
I am on 60mg of pred right now and as always my face has started to turn red as a beet. I was wondering if anyone else has this happen to them. I hate it.....people looking at me all the time.....
Thanks ahead of time for any input. I just got my 5th remicade this morning at 8am-got home about 1pm. I feel like I was hot by a truck. My head hurts so bad, and my neck is so sore. I don't get any...
We are at risk, now if you have whats called factor 5 gene you are a very high risk. I myself have that and have had clots in my lungs one time and 4 times in the calf of my left leg.You can ask for...
Yes this has happened to me, the pre-meds make my legs feel like ants crawling up and down my bones......it's called RLS.....restless legs. I don't get the pre-meds anymore. I make out fine without...
Do you need a referal to go to a pain doctor?...
thanks for all the replys......thinking about changing docs.....just hate having to have all the tests done again....
I have been flaring and am on 40mg of pred, I saw my gi today and ask for pain meds, well he tells me I am the only crohns pat. he has that asks for pain meds! so no i didn't get any. I really can't...
I am from the crohns forum,but I think I need help from people who know more about depression. I have been on a few kinds of depression meds over the past 8 years, now on wellbutrin xl, I went on...
I have crohns and am on 40mg pred and remicade every 6 weeks. A few days ago I started get restless legs at night. Last night was real bad it was in my knees and my arms. When I got up this morning...
Yes, I was on 6mp for about 2 years. My liver tests started coming back bad, so I had to stop.Been on remicade for awhile now, no trouble with it. So I am sure it's from the mp6....
I will be having my 4th remi on the 12th, I had a flare after my 2nd and am now on pred and taping from 60mg to 20 mgs now. They told me it could take 3 or 4 treatments to start working. I am hoping...
I understand....I have been on 60mg, then 50mg for two weeks and taping every two weeks by 10mgs. I have been on 20 now for 4 days and have started having a racing heart, sweats and shakes. I am not...
I go for my 4th remicade on the 12th, I always get both of them, I get sleepy but thats about it. I have never noticed anything else.....good luck! [email protected] ...
Just wondering what doctor you ask for pain meds, my g.i. acts like i shouldn't need any. Even when I am not flaring i still have some pain, does any one else? I start seeing a new family doctor next...
Don't taper to fast, I always have to taper 10mg a week. It can hurt you if you do it fast. I always have to taper 10mgs down every two weeks......ask your doc about it. Sherri...
trade ya......on 60mg pred now.....wide awake...
I have had 3 treatments so far, I was scared at first. It was fine, I was alittle sleepy after but that was about it. I haven't noticed a change yet cause I am still tapering off the pred. As for the...
let me know how it went, i go for the same test in the morning.......sherri...
Just wondering what doc I should call tomorrow. I had went to the er the other night cause I couldn't swallow. I have thrush, so I am taking the meds for that now. I have had 3 remicade treatments...
This past week has been hell, if you remember my 6 month old grandson has had MRSA. They live with us and when the people I work with found out on sat. they made me leave work and they shut down the...
thank you, will do!...
My 6 month old grandson has the mrsa infection and he lives with us, we all have to put stuff up our noses.....I am on remicade and 60mgs of pred. Just wondering how worried I should be.........thanks...
First of all thanks for always being here when I need something. I have been having the big D and a crazy pain in my upper right side, about where the gallbladder would be......thats out now. It"s...
2 weeks, before that I was on 40mgs for a week when he ran tests and upped me...I have been down this road before but this time it seems worse than ever. The mood swings, the hot face, can't sleep...
Thanks all, it's wonderful to know I am not alone.......cd can make you feel so alone sometimes....
to taper down to 30mgs, then I had tests and they upped me to 60mgs aday until he says to taper. I have had 3 remicade treatments 350mgs each and was still flaring when he ran more tests and put me...
how can you tell you have a blockage?...
Thanks for the input on my ct scan, got the results yesterday and they found something not sure what. They want to look at my lower small intest. and my upper colon.....ALL AT THE SAME TIME! So I am...
I had a ctscan friday with dye and drinking that stuff, they called me an hour after that and upped my prednisone from 40mg to 60mg and told me he'd talk to me on monday about thet rest of it. I am...
Thanks everyone, I had my scan this morning and had to drink the crap and have the iv dye. I wasn't home an hour before the doctors office called. They want me to up my prednisone from 40mg to...
does anyone know if you have to drink anything when you get a ct scan of your abdomen/with pelvis?...
I have been on everything and I go tanning once a week just so I'm not white as a ghost. I haven't had any bad effects from it....
gallbladder out a few months ago.........thinking of meeting with GI again..........thanks all...
Me again, I have crohns, just started remicade, going for 3rd soon. I have almost always had a very tender spot in the middle of my back off to the right of my spine. It gets very painful sometimes....
I just sat down to eat, not very hungry so I ate alittle homemade mash taters. Not 3 mins into it and I started getting cramps bad, in the pit of my belly. A few mins later the pains moved...
Just wondering where the pain is for everyone....... Lately mine has been right below my rib cage!...
/community/emoticons/confused.gif I have had two treatments of remicade, it's been a week since my last one. This week I have started having very bad cramps and the big D. Even drinking water makes...