Thanks, Kitt...I hope that you & your husband are doing well...fuzzy...
citymouse...a bit too coincidental if you ask me as only 1 to 2% of people are diagnosed w/ this particular eye cancer. There is NO warning about this for Remicade, only a warning about the...
citymouse...I'm sorry to hear about you & your daughter. First, please check out the fourm that I listed...UC IS curable by ostomy surgery (not an easy decision but you may want to read how...
Hi Joe & Molly...I'm a 25+ Crohn's sufferer, amongst other health problems (see signature). I've been depressed on & off for several years, however, I recently found out that 'The Love of My...
Thanks badgenetics1...you sound just like me...actually, I didn't have this problem when I was younger. In fact, I am a former drug user (as in street drugs) & was quite addicted to cocaine (I was...
Hi All...Thanks to everyone for your replies. To badgenetics1...it encourages me to hear that your grandmother is able to take the Seroquel...I'd actually be trying 6.25mg due to my sensitivity to so...
Hi All...I had a similar hospital experience...after spending several hours in the ER, following a diagnosis of a serious rectal abcess, the doctors made the decision that the abcess could be safely...
I think that people get freaked out when starting these drugs, due to the rare horror stories that are shown by the media. Also, it seems to be a trend that the people most concerned about developing...
Ditto to Bluepurl's comments. Also, doctors are unable to biopsy the ileum as the colonoscope doesn't reach that far. I'm unaware of any endoscopy device that has the capability of reaching this...
Hi superspike25...just to let you know, several yrs. ago, when they actually still had CCFA support meetings in my area, there was a young guy (actually, I was young then too) that was embarrassed to...
Hi Hukleberrie...the stool sample is generally one of the first tests that is done. I actually new someone that was suffering w/ digestive problems for about 3yrs., believing, after hearing my tale,...
Hi Aurora60...an average dose, per 'The Pill Book', is .75 to 4mg daily. Generally, it depends on the individual & their degree of anxiety (your doctor should be monitering the type & dosages of all...
Hi hukleberrie...I've suffered from terrible PMS & nasty periods, since age 35. My gastro once told me that menstruation can intensify the symptoms of IBD & vice-versa. Unfortunately, if you...
Hi hukleberrie...to get an entry level job at the financial co. that I was formerly employed, I believe that you need a BA degree, at minimum. Harvard grads are applying for these low-level jobs! I...
Hi hukleberrie...oh, this laptop drives me crazy! I just tried to post a long reply to your message &, of course, CRASH! Anywho, to summarize my post: do you have the option of joining an HMO? I...
Hi hukleberrie...I'm sorry but I just want to SCREAM reading through this topic! If you are in moderate to severe pain then you need to get checked-out by a professional & not cause further...
Hi Yankee Fan...I really shouldn't be talking to you as I'm from the Boston area (go Sox!). Anyway, I'm also new to this sight. I'm a 25+yr. severe Crohn's Disease sufferer & in remission for a...
Hi Ed...I have severe Crohn's Disease & in '05 was diagnosed w/ a rare eye cancer. Following 6mos. of topical (thankfully!) chemo, I went into another hospital for what was supposed to be a...
s5599...during my 25+ yrs. w/ Crohn's, I was prescribed Flagyl 2x & it was pure misery. Are you aware that you can't eat any alcohol/vinegar based foods? This includes even simple items such as...
Hi lil-momma...I had hundreds of anal fissures & several abcesses for over 25yrs. w/ Crohn's. Abcesses are much more serious. Here's something that I learned to do, on my own, to lessen the...
Hi Sharann...glad to hear that you're doing better & that you can feel relieved about getting a callback, in the future (it's a scary feeling when you're sitting by the phone, knowing that you...
Hi Malibu05...I now have an ileostomy but suffered for several yrs. w/ abcesses. Some were as large as you described; others, many around the anus, were much smaller & would form, burst &...
Hi hukleberrie...during my 25+ yrs. of severe Crohn's Disease, the symptoms that you are describing were very common for me (I was never in full remission). It definitely sounds like you're having a...
P.S. warm baths can help if you're having anal itching or are generally uncomfortable. I preferred (note: past tense as I've had an ileostomy for almost 2yrs.) using liquid baby soap as it's gentle....
i urmachan...if you are sure that it's pus that's coming out, that's usually a sign of an abcess (Remicade is known for helping to heal these). I had numerous abcesses over the yrs.,; most could be...
Hi Sarann...remember, immunosuppressants are very potent drugs & can cause numerous side-effects. I used to throw-up alot while on 6-MP. Like Prednisone, however, you should never just stop a...
Hi bluebirdkjt...I'm afraid that I'm also unfamiliar w/ the test that you mentioned. I did notice, however, that the drugs you are taking (Pentasa, previously Asacol) are generally prescribed to...
Hi map lady...it sounds like you may be experiencing an external abcess (I developed these constantly). They only bothered me when they'd get really big & form between the crack of my butt. The...
Hi newcrohnswife...I was on Remicade for 3 yrs. &, while I had allergic reactions to the drug, it did help alot. I'm curious as my gastroenterologist insisted that I first start on an...
Hi Crohnie8 & Everyone...reading LavenderBlue's post made me remember something. When I was taking 6-MP, I use to dry-heave (often while grocery shopping..sooo embarassing...
Hi Crohnie8...I ask this same question all the time. I'd like to know why I'm so fatigued all the time...the GI suggests that it might be depression while the therapist suggests that it might be the...
Thanks for the chuckle, LavenderBlue! My apology but I am laughing at you. Actually, it's because you sound just like me...sure, you'll lay off the Chinese food, for now ...that's because the thought...
Hi AL19...unfortunately, I've also never heard of this prep. I've found that one of the best on-line resource centers for just about anything, is The Mayo Clinic (the 2nd best is medical...
Hi Again, LavenderBlue...I did say that I've experienced many things over 25+ yrs. I've had an intestinal/vaginal fistula for approx. 3yrs. In fact, it seems that it formed after I stopped the...
LavenderBlue...I was on Remicade for approx. 3yrs. & often had allergic reactions (rash, trouble breathing, feeling like I was going to black-out, low-grade fevers). Eventually, It would take me...
Hi All...having Crohn's for 25+ yrs., I run low-grade fevers on a regular basis (in my case, PMS does bring these on). Temperatures nearing 100 & higher, however, would send me running to the...
Hello again, superspike25...I hadn't read your 2nd posting when I submitted mine. I was shocked to read that you were [i]finally seeing the GI??? You should be monitered/blood checked by your GI...
Hi superspike25...I'm a 25+ Crohn's sufferer & was on all kinds of meds during those years. I was on 6-MP for several yrs. & then Remicade was added, which I was on for 3 yrs. I often had...