@NY-Sooner Thanks for your info, but I tried SCD and it didn't work for me. I think the gout and the diabetes made it too limited. @Carol Thanks for giving me encouragement. @Judy2 Also appreciate...
@Trishke Thanks for the anecdotal info. @ NiceCupofTea Thanks for your very helpful info. It has always bothered me that we older people don't get the benefits of clinical studies for our age-group....
My Gi retired and my new one wants to be aggressive in treating my Crohn's. I have mild to moderate Crohn's. I was diagnosed at age 65 and will be 70 in August. I have a lot of things wrong with me...
What's Irish and hangs around your backyard? Patty O'Furniture. Hope things perk up for you soon....
Don't forget fish and poultry. Also, melons (can use in smoothies), apricots (apricot nectar in the fruit juice section is good), and avocados. Also, talk to your doctor before using, but salt...
While I have not had the valve surgically removed, it is stenotic and always in the open position so it's like I've had it removed. When I am careful about my diet, I do not have diarrhea and can...
Dehydration can cause fainting. If your D is intense, that could cause it. Are you drinking enough liquids when you're having D?...
When I had my flex sig I was not given any anesthesia. I'd never do that again. Wear a very large and loose pair of pants hopefully with an elastic waist. When my flex sig was over they had pumped me...
Allopurinol is not to be taken with 6MP as a general rule. If you do use the 2 together, you are only supposed to take about 25% of the normal 6MP dose....
First of all, you need to give yourself some credit. You have overcome what would be some insurmountable obstacles for some people. Second, you need to break down all the difficulties you are dealing...
How about tapioca pudding or rice pudding? Rice turns to sugar in your system and gives you a boost. You can get those snack packs that you don't have to refrigerate. Or you can make your own with...
SUGGESTIONS: quiche; tuna or chicken salad made with onion powder, mayo and chopped cooked celery; pasta salad with egg, cheese, chicken; turkey casserole made with what you can tolerate; I make a...
I have type 2 Diabetes and Crohn's. They don't work well together, but I have found a few helpful things. One, I can eat well-cooked broccoli, cauliflower, French style green beans, all meats (just...
Great idea. I say we nominate you, Zanne. You are an experienced traveller and would represent us well....
Hi Lemon Lips, I am going on 57 years with this disease. My husband passed away 2 years ago, so I, too, am a senior living in a quiet home. I think that is part of the reason we are depressed. It's...
Sniper...Other factors could be making your breathing worse. Are you anemic? Are you vitamin deficient? Make sure you're up to snuff on your CD issues to ensure that everything that is happening is...
Vietnamese Omelette w Ground Pork 1/2 a bundle of vermicelli or rice noodles cooked(eliminate if too many carbs) small handful mushrooms 1-2 tablespoon of oil for frying 3/4 eggs (can substitute egg...
@ Nanners The research on shrimp has changed since the 90's when it was considered unsafe. I have copied and pasted one comment from a medical website. If you google shrimp cholesterol you will find...
@ sniper Sniper....I emailed you yesterday at your hotmail address. Can you check it out and let me know if you got it, or maybe I got thrown into your junk mail....
Shrimp Chowder: 1/2 lb Cooked Shrimp cut into bite size pieces 2 medium potatoes - cooked, peeled and diced 1 stalk celery cut very tiny (precook in water in microwave for 5 minutes on high) 1 T...
I am going to start a new thread called recipes for Sniper. Keep in mind his diabetes, but there are tons of things that can be adapted to crohn's disease. Feel free to share your favorite recipe...
@ sniper Sniper, I hope when you start gaining some strength back, that you will consider writing a journal. You are so talented and have reflected on so many things in this forum, that your writing...
That was only your third or fourth life. Since you are such a cool cat, I am assuming you have nine lives, so you still have more than half left. REST and you'll be good. You can see how many people...
This disease brings constant insecurity. We may be in remission for a time, but it always comes back to revisit us. One day we're fine, and the next day - boom- we're miserable or in a crisis. And...
I am soooo glad to hear about your week in the houseboat, Sniper. You and I are in the same age group- 60's - and I find myself thinking the same way as you. When I hear that there is going to be the...
Prednisone can cause medically induced diabetes. Your thirst and frequent urination may be symptoms of that. If I were you, I would get my blood sugar levels checked out as you may have to alter your...
You don't mention if it's the pain or the D that is the result of eating - or maybe it's both. Have you had your gallbladder out? That could be affecting you. Have you added IBS to your system since...
Welcome to our forum. I, too, am a "mature" member - I'm 67 years old. It is always good to hear from a more "mature" person with this disease as we often react differently than younger people do to...
Sorry you are having such a rough time, Vicky. Have you had a medicine review done lately? Maybe there's something they're missing that at least would make you more comfortable. Hope things improve...
I think we should march on Washington to demand a port-a-potty on every corner and every 10th of a mile marker on interstates. They can replace outdated pay phone booths in the cities, and replace...
@ clonehead Thanks sooooo much for looking into this. I feel better now, knowing that this isn't part of my prescription drug plan, but rather part B. I have Medicare and a medigap policy so I guess...
Great poem, Sniper. Your creativity is in a flare LOL:)...
My GI is considering putting me on remicade. I am on Medicare. Since Remicade is given in a hospital, I am assuming my Medicare Part A or B will pay for most of it 80 percent. That means I have to...
I have been in hospital twice this past year for partial obstructions. My case caused by inflammation, not strictures, so I ran a fever, had pain in waves, and vomited. They put me on prednisone and...
Zanne...you have far more patience than I. I couldn't deal with the way you have been tossed around, delayed, etc. for as long as you have without losing my temper. You were thinking about the Mayo...
I carry peanut butter and cheese crackers with me whereever I go. Ritz Bitz that come in a box are also good. I also eat pretzels, and carry the jello sugar free pudding cups that don't require...
@ nicecupotea I do take Tylenol when I need to. I guess I didn't word that too well. I can also tolerate nsaids like ibuprofen, but I can't take them because of the crohn's. I guess I may be wrong...
@Tara28 Unforunately, I have not found any pain pills that I can take. I am listed as allergic to anything with codeine and also with tramadol as the side effects are so severe that I have to be...
@minnietoty I gained 30 pounds on the pred when I started within about 2 months. Have had no more weight gain since then. Since starting the taper, my water retention is less than before so that is...
WebMD has D listed as a possible side effect of 6MP. I don't know if it's the drug itself, or if it takes away your ability to control the bad bacteria and you get an over abundance of the bad versus...
Back in June I started 6MP. At the time, I started with 50 mg and was then on 15mg prednisone daily. My doctor wanted me to stay at 15 pred for a month to give the 6MP time to get into my system. For...
@Tara28 Thanks for the info. I was aware of that, too, and did cut my hair shorter, but I have been on the pred for 8 months, and all my hair is very thin now and just keeps coming out. I don't even...
I don't mean to be discouraging, but I am taking prednisone (tapering) and 6MP and my hair loss has become so significant that I just had to order a wig. I am taking Vit. D and folic acid, but my...
YOWIE! ZOWIE! Sometimes good things happen to good people. I hope your wife develops a new orchid to grow and they name it after her. (No more orchid rides to Houston for a while, eh?) So happy for...
I love this one. My own mother used to blame a "squeaky door" we had in the house. I remember that one because a fellow came to pick me up for a first date and that was my mother's excuse, as I...
I, too, am on medicare part D. The open enrollment period starts earlier this year - I think Oct. 31. I would do some research and find out which plans allow imuran or 6 mp or other crohn's meds...
For years, I was misdiagnosed with IBS. My Internal Med doctor put me onto Alternagel or Amphogel. It is like Maalox, but contains aluminum instead of magnesium. The aluminum helps control the D when...
@ Sniper, You are the Dave Barry of Crohnland. You make me laugh even when I, too, am having the same kind of morning as you. Except I don't have too many reading materials nearby. My dog insists on...
I am just curious. Do any of you have crowns or dental implants or the old fashioned fillling amalgams in your teeth. What are those dong to you?...
Have you tried your decaf coffee with Lactaid milk (lactose free) or soy milk? Lots of people are lactose intolerant but tolerate the lactose free milk very well. It's what I use on my cereal. Looks...