I inject B12 every week, or so. My levels are always mid level when I get blood tests....
Hi there. I have recently had success by taking an Imodium followed a few hours later with gas-X. As long as I don’t eat sugar, it works fine for getting through an evening out. Both drugs contain...
Hi- I was on Humira for about 5 years when I noticed a small bald spot on my head which was getting larger over time. For unrelated reasons, I stopped the Humira, and within a few weeks the hair...
Hi all - it's been a long time since I've visited this forum, but with the coronavirus looming, I was wondering how everyone was doing. I've had Crohn's for 45 years and am currently on Humira. I...
I would like to know what country you all live in - or countries? It upsets me to no end when people have to pay hundreds of dollars for meds. I am blessed with a healthcare plan that covers all my...
With your degree of arthritic pain, you definitely should be on a biologic. I get Humira injections, and although it's for Crohn's maintenance, it keeps my inflammatory arthritis at bay. My brother...
Glad you are on the road to recovery! I hope by now you are feeling much better and getting around OK. It's always a slow-go the first month....
How frustrating - you poor girl! At this point, is there any reason NOT to start the Lialda and see if it helps? Every Crohn's case is different - just reading this forum you can see how varied the...
mirowpl -good luck, and keep thinking about how good you will feel in a few weeks! I'll be watching for you to post that everything went well....
How long is your business trip - why can't you be on humira and still go? I get an ejection every other week, and it has greatly improved my arthritis. You could try Remicade, an infusion every three...
Are you working with a GI specialist? Since Crohn's can affect any part of the digestive system, including the rectum, it shouldn't be ruled out. If you feel like your current doctor is dismissing...
It may not be considered full-blown Crohn's at this point, but it would probably be beneficial if your doctor treated you more aggressively, especially with your family history. Maybe taking 6MP,...
How many years ago was her first surgery? If this surgery is being suggested because of a stricture, there's really nothing else that can be done. Pentasa did nothing for me, and I am on Humira -...
Hi! Sorry you have to have another resection. I've had 3 and hope no more. I just went back on Humira after being off of it for almost 2 years. I wasn't having Crohn's problems, but me arthritis pain...
I just ate a double portion of Quaker Quick Oats, with 3 tsp of brown sugar added. Hope it doesn't bother me, but only time will tell! I'm trying to reduce my triglycerides and hope eating whole...
I've had 3 resections over a 40-year period, and after the last one 7 years ago, my doctor told me I needed to be on Humira because I needed a maintenance drug, and all oral drugs had failed me in...
So happy to hear he is doing well, and had less extensive surgery than originally planned. Now it's time for momma to rest!...
How your son doing? What was the extent of the surgery?...
At my workplace there are a lot of staff-appreciation lunches and holiday celebrations. About twice a month an officer will announce that lunch is being brought in for the staff - one day a Mexican...
You need to feel comfortable asking the GI to explain the treatment - If sending you to the ER because of concern about a blockage, you should know that. There are other problems that can occur -...
Hi Betty Sue - So sorry to hear of your son's illness. I had basically the same surgery when I was 21. That was many, many years ago! These days they do wonders with laproscopic procedures. My 3rd...
After being on Humira for one year, I had gained about 15 lbs - probably because my appetite increased. Now that I've been off of it for 5 months, I've lost about 10 lbs. It's a good thing I have 4...
I had been on Humira for about 5 years. During the 5th year, I started noticing a small bald spot on the back of my head, which got to be about the size of a quarter. I quit Humira for various...
Thanks, everyone, your comments are reassuring! I need to see my GI soon, but not looking forward to it, since I went off the Humira against his wishes. I just got so fed up with the BS from the...
Have you ever had a good day, and you're looking forward to something special in the future, and ... Bam, you remember. . shit, I'm not healthy. I can't plan that. Bummer....
Hey gumby44 - I just noticed your profile says you aren't on any meds for Crohn's. How's that working out for you? I stopped Humira in October and have not seen the doctor or gotten any meds since....
Well, it worked out OK. I told 2 woman - why I wouldn't be eating- and told them I don't talk about it because I don't want it to define me - I live my life as a "normal" person and do what I need to...
Yes - I am bringing a fresh fruit platter with a dip. When encouraged to eat, I'll just quietly say that as much as I would love to, I have Crohn's. They can take the conversation from there. I've...
You will learn what works best for your body through trial and error. I have found that taking one immodium (multi-symptom) helps, but I have to take it at least 4 hours before I'm going to eat a...
OMG - I feel your pain! It starts about 2 hours after I have eaten even the tiniest bit of food! I light candles in the house just in case some gas slips out!! LOL - it is so awful that it is funny!...
I recently started a new part time job and did not want to tell people of my 40 year illness. It doesn't interfere with my work, and I really don't like being asked questions like, what happens when...
Has anyone had any luck with fennel seeds for gas?...
That is exactly why I have the nurse at the doctor's office do it. I can't inflict that pain on myself. Some people can tolerate it, others say it doesn't really hurt, but I'm with you - it hurts...
I never really looked far enough into it to know what would happen to my insurance. I figured it would be Medicare or Medicaid, and I really don't want to deal with the paper work of that. I'll just...
Have a great trip! My son and grandchildren live 4.5 hours by plane, so I fly direct and always stay at a hotel. Staying in other people's homes makes me very uncomfortable....
I do think it's funny, too - I've learned over the years that you have to have a good sense of humor with this disease....
Embarrassing story - I was helping a customer at work, searching for something on the computer, and he was standing close to me - too close for comfort since my stomach was making awful gurgling...
It makes me sad whenever another young person is diagnosed with Crohn's. Maybe you want to check out the Website of the Crohn's/Colitis Foundation. There may be a support group for young people in...
My saving grace has been that I work 10 minutes from home and can come home for lunch everyday to use the bathroom and go back to work feeling better. There are days when I can barely wait for my...
Before you go to the hospital, it might be a good idea to prepare and freeze some meals, and have some soft foods on hand, like yogurt, cream of wheat, pudding, soups, rice. You may not have dietary...
It's tough, but can be ok - I eat light when travelling, which takes some fun out of it, but it is what it is. I take one immodium in the morning, stay away from dairy and meat, and only have one...
Hi - My husband had an injection of Synvisc 3 days ago and has not been able to walk since. He is in extreme pain. Has anyone out there had this injection in the hip; and if so, did you suffer...
MTB-so, how are you? What did you about the gallstone?...
I had flares every month, and my MALE GI told me there was no correlation. If you search the Web you will find doctors who believe us. We are not nuts. We know what our bodies are experiencing. I...
The pain you discribe sounds like a stricture - but aren't you vomiting when you eat? Usually with a narrowing, the food has a hard time passing through and you vomit. The last time I had a stricture...
Hi, I am from Buffalo, and before my third resection, I had an upper GI series with small bowel follow through. I had a CT scan previously, which didn't show much. The GI series with sbft showed (and...
Just a thought - when I have a colonoscopy scheduled, I start days before lightening up my food (fiber) intake. If I go "soft" diet for a day, then liquid the whole day before starting the prep, I am...
Lynn - a lot of us have been where you are right now - please hang in there. From what I hear from people who have ostomies, they don't know why they waited so long, because with an ostomy, they have...
I'm sorry you are having such and awful time of it. Keep us up-to-date with your progress. Prayers are with you....
Singingsupernurse - have you tried the Buffalo Medical Group - Dr. Piscatelli, specifically? I especially like the group because they can deal with the different problems that crop up - and have...