It's been quite a while since I've posted, but I've been checking in now and then. A little update: I was diagnosed with chrohns 50 years ago (no that is not a typo ) at the age of 19. I've had 3...
I was diagnosed with chrohns 50 years ago and am still having inflammation, so aging didn't make any difference in my case. Been on many meds, biologics, etc. but nothing has worked so far. Having...
Thanks so much everyone for your replies. I appreciate your sharing your experiences with these meds. Nawlinscate: Will mention this med to my GI and get his input. He's actually been at a loss as...
I've been on lomotil for quite some time due to never-ending D. I'm running out of my current prescription and would like feedback on whether lomotil works better than imodium or if i could expect...
Thanks kazbern for replying to my post. In answer to your quesions: the inflamation is at the terminal ilium, where it keeps returning after 3 bowel resections. I seemed to be doing better on the...
Hi everyone, Will try to put my story in a nutshell, since it' been a while since I posted. I had been on remicade for years and had to stop due to really stubborn veins. Went on Humira and was doing...
So sorry your are going through this. Sending you healing thoughts. Potty Pooper...
Thank you everyone for your replies and support. It's so difficult to know which symptoms are due to the Chrohn's and which are a result of tests, etc. Hoping to feel somewhat better after the barium...
Hi everyone. Since recovering from my last bowel resection and gallbladder removal in 2008, I've been doing pretty well (except for the D which never really got any better). Just after the new year I...
I agree with the previous post. Check to see if your concern is warranted. Hopefully you did not consume the tainted cantaloups and can relax about your fear of lysteria. And....don't beat yourself...
You could call 1-8004Humira for info on how to keep the injections cold for the extended time you need. Have fun!...
I was on remicade for a few years. Don't feel guilty for being anxious about your first experience with it; fear of the unknown is perfectly normal, and it doesn't mean that your reaction is childish...
I am the middle girl with two brothers. Older brother had UC. Me and my younger brother have CD. I, however, developed it a lot younger than either of my brothers....
Just wanted to add my healing thoughts and prayers for you and your children. It is so hard for a mother to watch her children suffer. Take care of yourself so you will be able to give them the...
After my last surgery my surgeon was reluctant to have me discharged from the hospital while I still needed percocet around the clock for the severe pain I was having. (I had a very difficult...
sorry meant I hate this disease....
That is something that I experience frequently. Many times I can't make it from my kitchen or livingroom in time, and my bathroom is very close by. Often have to leave the dinner table and make a mad...
So sorry you're going through this. I can imagine how frustrated and upset you must be. I don't have any advice to offer. Hopefully someone will have some insight for you in a future post. Just...
Sorry to hear about the stones. i've had a couple in the past that luckily passed on their own. My brother gets a ton of stones. He's had the stones "blasted" a few times. Wasn't a big deal -...
I didn't know about your wife since i'd been away from the cite for awhile. So happy to hear the good news. Wishing you both well. You bring such smiles to us with your posts. This one brought the...
Thanks everyone for your quick responses. Your answers were all very helpful and I appreciate your taking the time to clarify the issue for me. Everyone here is so kind and helpful. It means so much...
Is there a specific test to determine whether one's suffering from IBS as well as CD. My GI mentioned that this could be my problem, but didn't elaborate, and I just let it go. Nanners: I know you...
You're a riot. You should write of book of bathroom humor. That would be great reading and could keep us smiling during our many bathroom trips....
Thanks for the chuckle. You are great at bringing humor into a sometimes frustrating and depressing day. Zanne - I love your idea of the service animals. That would certainly take care of our public...
Yes, this is the best place to come for support and advise. It's the only place I can talk about poop without hearing "TMI" like I get from my husband. We all understand and can relate to this...
So sorry to hear about your precious girl. It's so hard for a mother to watch her child suffer. Don't have much to add to previous posts, but want to send healing thoughts your way. I hope the...
So sorry that this ugly disease is active again. I have had it since childhood (I'm 65) and I know the frustration of feeling better for a while than - bang - here it comes again. I've had 3...
Glad the issue was solved for you. Concentrate are getting better; that's what's most important. Hugs. potty pooper...
I am always having severe hot flashes. My gyn feels it still could be from menopause, but I think it's a combo of meds, inflammation, etc. I went through menopause about 12 years ago so it seems that...
My older brother had UC and my younger brother has CD. Both of them had/have (older is deceased) ileostomies....
sorry accidently cut my thread off. I'm gonna try watching my diet for a few days to see if that makes a difference. Don't always find that it does, but will try again. This disease is really a...
Thanks for the replies. Nanners - Yes, we do have similar histories. I am not planning to go medicine free; I understand the importance of being on something to keep the Chrohns from completely...
Hi everyone. it's been a while since I posted, but I've checked in every so often. Here's my story in a nutshell: i've had CD for about 46 years (diagnosed at 19, but sure I had it since early...
I had a colonoscopy last month and experienced rather severe pain starting the same day. I had never experienced anything like this with my other colonoscopies. My GI wasn't concerned since he felt...
Hi Shellybum. Just want to welcome you to the forum. As you will find, people here are very helpful, knowledgeable and supportive. By the way, love your sense of humor! We all could use a good laugh....
When I had a stricture I wouldn't even entertain the thought of a salad, or any rough foods. I didn't want to take any chance of a blockage, after many previous experiences with one, so I stuck with...
I am so sorry you went through this. I've had similar experiences with emergencies rooms. I used to go to an emergency room in a well-respected hospital near my home. I would literally be screaming...
My dr recommends at least every two years because of increased cancer risk in people with IBD....
Awe, so sorry. My daughter has a 12-year-old cocker spaniel who I consider my first furry grandchild. We are saddened to see this once lively little girl starting to show her age. I now have two...
I'm female, 5'8". Surprising because I've had this illness since childhood but still had no delays in height, although I was always underweight and still am at the age of 64. The difference is now...
I have been through more than my share of strictures and surgery. I ate only white foods: bread, rice, potatoes, noodles. No raw fruits or veges, no fiber cereals, nuts, etc. I did find that I...
I used to have terrible bloating with Questran too (brand name for cholestyramine). I take lomotil now, but don't have a problem with it...except...it really doesn't do too much to control the D....
In my experience of 45 years since being diagnosed, the noises are very bad during any time of narrowing (before my 3 resections). After surgery, the noises are pretty much gone (or should I say,...
I am so sorry. I know first hand what it's like to have a daughter in a medical crisis and not be able to be by her side. My thoughts and prayers are with you and your family. Hope she gets well...
Thanks Nanners. I wouldn't mind if it was just cramps I was having. But I'm actually feeling the pain that I used to feel when my CD was active. Although I've had pain on and off previous to my...
So sorry you are dealing with this in such a young child. I know the helplessness a parent feels when their child is ill and mommy can't kiss the boo-boo and make it feel better. I have a chronically...
Thanks for responding to my post. The pain is a little better today. I have no fever or chills. If anything gets worse, will definitely check it out. Just concerned because I've never experienced...
I had a colonoscopy this morning and the GI found that my Chrohn's was active in the same area I had surgery on two years ago. I have had many colonscopies to date and have never experienced any pain...
Hate drs that make remarks like that! I find the pen shots hurt a lot and seems to get worse as time goes on. Today, after my colonoscopy my dr. upped my shots to every week. I only do them in the...
Sorry! Meant some have no recurrence........