Wow, I'm sorry you're having to go throught his...what a jerk! I hope the doctor you find next turns out to be wonderful. Good luck, Bev...
Kemperca, If the bruising continues or you get small red dots on your body (primarily your lower limbs, but it can be anywhere) ask for your platelet count to be tested at your doctors. I had the...
Welcome! I'm looking forward to hearing more from you in future posts! My fingers are crossed that you get Humira. It sounds like you've got quite a bad case, and need one of the "big guns"....
Sniper-Yikes, my nose is twitching at the thought of all those dead fish! I didn't realize that was part of the after-effects of flooding too!! I'm glad to hear your house didn't flood this time, but...
Oh Sniper, I'm so sorry to hear you're going through this again. And so soon after the last evacuation. I can certainly understand how this could bring you down. You and your wife are in my thoughts...
One blood - that's really tough news for you. Here's a big (((HUG))). Hopefully whatever your decision is, it will give you some long-term relief. You deserve it. Please keep us updated. Bev...
I always take the stall closest to the wall so I only have one neighbour (if that). Often the entire washroo is empty. There are 7 stalls in the bathroom. A few days ago someone came into the empty...
I think you should tell them too - Their setup is too weird (making you sign a board indicating that you're in the bathroom) not to advise them why you need the frequent and immediate trips. A liitle...
I just wanted you to know that you're in my thoughts and prayers - I hope you get some answeres soon -please keep us updated, Bev...
Great Job Yogaprof! That's fantastic that you did so well. Thanks for sharing your success story with us. It's inspiring. Bev...
The remicade has been wonderful for me! I was steroid dependant and nothing else would work...now I'm off the prednisone and the best I've been in ages. "GO 'CADE GO"!!! Good luck to you and welcome!...
HM, Welcome! You'll find this site really good for information and advice, as well as a wonderful place to vent when things aren't going well. We're all in the same boat and understand, whereas many...
Oh Sniper...a kidney stone after all you've been through! I'll start doubling my thoughts and prayers for you!!! I'm amazed you're keeping a sense of humour with all you're going through - you're a...
Hey Teddybear - glad to hear everything is going well for you! Have you noticed any difference since you stopped the immuran? Were you having any problems with it, or was it just not needed anymore?...
I don't have any answers, but I just wanted to let you know that I'm thinking of you and hope you can resolve your situation without any out-of-pocket expense to you. I know how expensive these drugs...
I'm so sorry Ivy - that's so terrible. I don't know what I'd do if I was in your shoes. I feel very bad for you. I sure hope some solution is found. I just want you to know that I'm feeling for you!...
That would be your platelet count (271) - although if the dots came on fast and you're bruising easily the platelet count can drop rapidly (within a matter of days). The red dots started on my legs...
I had a blood disorder that came on out of nowhere and just as mysteriously disappeared after 6 months of treatment - it was ITP (Idiopathic thrombocytopenia pupura). It first showed as small red...
Have you had bloodwork done? What are your Platelet counts? Are you taking any medications that could cause adverse reactions? Just some thoughts, Bev...
You're in my thoughts and prayers Sniper. Bev...
I also think you need a full workup, as the findings are suggesting that you have inflammatory bowel findings, but they can't distinguish between CD or UD. I think you need some follow-up tests like...
I was explaining to a co-worker my condition, and I used the IBD term. She immediatly told me she suffers from IBS too and wouldn't stop talking long enough while she described her symptoms for me to...
I'm so sorry to hear that Randy. I sure hope things are straightened up for you soon and you get some 'cade! Were you running a fever or anything? Bev...
Too bad your name didn't start with an "A" . But I still feel if you took the initiative to contact them, they should have made some accomodations! I hate having to jump through hoops and have to...
That's what I love about this site - we're all in this together, and can share our ups and downs. I too worry about complaining too often especially to my husband, but then if I don't say anything,...
I just wanted to say welcome! I'm sure you'll find everyone here as helpful as I have. This disease and all the meds can be a real rollercoaster ride, and it's nice to be able to share the ups and...
I used to have no problems drinking - but now I feel rotten afterwards. I still occasionally will have a couple, but I don't know why because I hate the effects the next day! I guess I just keep...
I had to get a prescription sleeping pill from my doctor for a short while while I was on really high dose pred - I was bouncing off the walls...and started getting really cranky! It improved once I...
I think you would really benefit from a capsule test too - blood in the stool is not a sign of IBS. The weight loss and undigested food, plus the frequency of bm's suggest problems. I know you've had...
I think most doctors maintain the status quo until the patient speaks up. She might not even realize you're not happy with the progress. It's your body, and sometimes we have to speak up (and also be...
I'm glad you went to the hospital and are now feeling a bit better! I sure hope things continue to improve. Take care for now, Bev...
I know exactly how you felt! I had a similar experience a month ago and you described it to a tee! I hope you did really well on the test - I'll be anxious to hear! You should be very proud of...
It doesn't take long when something goes wrong. I was so sick suddenly, and it turned out my white blood cells and platelets were wiped out (immuno-depressed) and I was diagnosed with medication...
I've had both sedation and without, and I prefer without. I've had horrible side-effects from the sedation (severe vomiting) and I prefer not to have to be sick for an hour afterwards. The times...
I took that for about a week - then I woke up COVERED in spots and had to have a quick trip to the hospital. I found out I'm allergic to sulpha medications. Once I started feeling better, my husband...
It sounds like you've had an extremely busy and stressful July! Hopefully you'll be able to get some well deserved rest and build up your reserves again now. Sometimes we have to have a little whine...
I'm glad you're OK - be careful of the aftershocks and keep us updated....
I was on asacol but it was of no use to me - my side-effects were that it intensified my symptoms instead of helping them and I felt really sick as a result. I had a fever and bled during every...
I've had 2 (or perhaps one stubborn one that hid and then came back)- and I never had them before the remicade....
I'm seeing that you are a very brave young woman who is going through a horrible time with your health and have experienced some of the worst confidence deflators this disease can offer. First of...
I just wanted to let you know you're in my thoughts and prayers. I sure hope things improve for you soon. Please keep us posted. Thinking of you, Bev...
Panayo, I just finished reading your post with intrest - I've heard so little from people who've had this DD for so long, and I'm so happy you gave us your insight. It sounds like you're a treasure...
In my opinion they both suck ;)...
In the past I've taken only prednisone - but it was supposed to be only to get my symptoms under control and then utilize other medications. Unfortunately I've had some bad experiences with a lot of...
Gumby, I'm so sorry to hear about your mom. I just wanted to let you know your family will be in my thoughts and prayers. I just lost my mom in December, and I really miss her, but I also know she's...
My body temp is always low too - and my resting heart rate high. Interesting!!...
I hope that everything gets sorted out soon for you Bella. Keep us posted on your progress. This site is great with many wonderful, informative people sharing their experiences, and I agree with you...
That's amazing. One thought that came to my mind reading this article though is I've often seen articles that say people don't die from crohn's - but it sounds that the person in the article would...
Hi Ivy - I'm sorry to hear you're having hip pain that's so intense. How long has it been going on for? Do you have pain in other joints? I agree with Gracie Girl that physical therapy might benefit...
I don't kn ow the answer to that but I'm sure someone will be along soon who does, but I just wanted to say welcome! Keep us posted, Bev...