My heart speeds up and skips beats when my B12 is low. I get out of breath with exertion, can't sleep well (even with sleeping pill), feel anxious and my neuropathy is much worse. Level got down to...
Sounds like it started after getting off prednisone. I have been on 5 mg forever it seems, and I feel terrible when I try to wean. Legs, back and body hurt. No energy. I forgot to put them in my pill...
I am also prednisone dependent. I have felt my best at 12.5 mg but have maintained mostly at 5 mg for a couple of years now. Anything less and everything aches. Occasional bouts I go back up but...
I have had 3 open resections and wanted a laparoscopic last time but the dr said too much scar tissue. I recommend watching food/cooking shows on tv or reading food magazines. Really got my bowel...
Just wanted you to know that I have had this gas/air problem off and on for short spells over several yrs. First time was when I had my 3rd child. Scary, and when I told my OB/GYN he really didn't...
I stopped humira in Sept 2011 due to worsening of numbness of legs and worsening back pain specifically for 3-4 days after my injection. Really severe with sitting but have to take sleeping pill at...
I have had similar episodes but not as frequent or with such regularity as yours. I have thought it was due to medication/vitamin intake and that it causes my motility to slow down. I always have a...
I also have crohn's related arthritis or psoratic arthritis. I was on tapering doses of prednisone for a year or so, then went on humira which so far has controlled it fairly well. I take 1-3 lortab...
I have this also, plus cramps when I stretch, it's called peripheral neuropathy due to B12 deficiency. It progressed to my facial area and even feel it when I wear sunglasses or carry a shoulder...
Hi sammies. I had a stent placed in my common bile duct. I had sl elevated liver enzymes, right upper quadrant pain and a dilated duct was found on U/S. It was removed after 3 months and I have been...
Just wait until this virus hits the nursing homes, not just the travelers and their closet contacts. I do think this is going to be pretty severe and for us immuno suppressed on pred, humira etc. all...
Hi, I developed psoriasis as a kid at 13 before my crohn's developed. It was quite bad at times but since I moved to Fla. 30 yrs ago it has been virtually gone as long as I get some sun and occas...
I'm not sure about the remicade, but the B12 should always be continued. And one can develop much more than anemia. Neurological problems can develop such as neuropathy, memory problems and attention...
There is usually a lot of pain with a kidney stone. But sometimes it can get stuck in the ureter (tube from kidney to bladder) and can cause an infection. Yes, you can get clumps in your urine with...
Hi. I also started cymbalta about 10 days ago. The nausea and dizziness only lasted a few days. I was also ready to quit because of feeling so awful, but I stuck with it taking it different times of...
I was on ?20 mg of pred and entocort when I started humira, so I had gained 25#. I ended up losing 15# and my moonface within 2-3 months, but have really struggled with the last 10. Now I can only...
This is the one symptom, among the many that I have, that mainly keeps me from working. I would be afraid of any responsibility that was given to me. I have spells where it is worse and the more...
Do you have arthritis in your spine by any chance? I think sometimes that makes me worse than anything especially after sitting, lying in certain positions or standing too long. I am on B12 shots...
As a nurse on the job, with any exposure to blood, bites, needle sticks, etc. we had to get HIV testing at those intervals, first one to prove we weren't already infected. I believe it is classic CDC...
That sounds awfully soon to get a reocurrance that would cause a complete obsruction. What tests did your doc do to confirm this? Do you think your surgeon could have missed the margins? I am a...
I was in good health too, except for 3 bowel resections. Long remissions. It hit me like a truck after 36 yr hx of crohn's....
I had a vitamin assay drawn about 2 weeks ago (called SpectraCell by the Drs. office) because my funky neuro sx were worse again. Numbness of feet and hands, dizziness, sparky feelings in legs,...
I too, have had this pain and swelling. It began about 16 months ago in some of my finger joints, advanced to wrists, ankles, back and neck. I went on prednisone for "arthritis" or spondylitis and...
My neuropathy/concentration is getting worse which coincides with a lower B12 level. It happened on remicade also, but I am reluctant to go off because of fear that arthritis and crohn's sx will come...
I also had rapid heartbeat and elavated BP on higher pred doses, but don't fool around with chest pressure or SOB, They could be caused by the rapid heartbeat or a heart problem....
I know the Cleveland Clinic is supposed to be top-notch but definitely get a second opinion. Have they done a small bowel series? How can your doc say they would take your entire colon, without some...
Hey mom, most of us can relate to this and I bet even "normal" people have had this happen when they get a "bug". I have used containers in my car for this very emergency, and have had to toss the...
I had the exact surgery several yrs ago. Open choly and a small bowel resection. There was no difference in any of my 3 other operations. I also was told no stricturoplasty or laparascopy due to...
Welcome. I also have the same things you have except fibromyalgia plus psoriasis HX and am currently on humira and pred (down to 5mg) but sitting on the edge, probably needing a sl higher dose. I am...
Well, I can certify that humira has not helped mine. I wish I could pinpoint it more, thought it was due to entocort but have been off that. I am still on 5 mg pred, maybe that? I also have a...
I am finally down to 5 mg of prednisone and have gone off entocort (I can't even remember how that happened) and wanted to find out how much steroid is absorbed into the bloodstream. I feel that...
Hi to y'all. I also have been MIA a lot the past few months. 4 upper endoscopies since Dec, and many weird complaints I attribute to low B12 and humira. I missed everyone too, and all that great...
I have had crohn's for 40 yrs, also mild psoriasis which was almost non-existant until starting remicade and now humira. B12 deficiency with concentration/memory and neuro deficits which fluctuate...
I just want to say that I hope you will get a second opinion, did he give you a name for the condition, etc. I have always had dental issues, probably due to nutritional factors involved with crohn's...
As an RN, I have always felt that a person should be on an antibiotic for 2 days after a catheter, just for precaution. I can't tell you how many folks I saw in the ER following hospitalization with...
Peri-tonsilar abscesses can occur not related to crohn's or fistula. Couple of links for you....
It is a falacy that you have to be anemic from B12 deficiency. Check out thissite. http://roseannster.googlepages.com/home Good luck and don't take any B12 before the test (it can throw the result...
Boy you got that right. Between pred reminders and b12/humira reminders whew. I take the humira and the B12 every other Sunday so I don't forget. Got my stickers on the calendar. And humira will even...
What a smart, smart woman she is! To have fought him and not get in the car. I read once that your chances for surviving this type of kidnapping are extremely slim and to never get in the car. A...
I am hypothyroid and take 75 mcg of synthroid daily. I felt like I had been given pep pills right away, within a week or so. Hopefully you will get the same result bunny....
David, you have been through the mill! Losing your sight is probably the scariest thing that could happen. Are you on any anti-depressants now? Will say prayers for you that the remicade will kick in...
BTW researchnut, what meds are you on? And is the tingling on both sides? Remicade made my peripheral neuropathy worse and I think humira is doing it now. I thought it may be entocort but have been...
I had a blood test once right after a B12 shot and it was very high, but according to the vitamin experts that is only what is circulating in the blood. It has to build up stores in the bone marrow...
Just curious but has anyone ever seriously tried these diets and not seen improvement? I personally have not read any negative reports and just wonder if this DD is all food allergies. I want to...
Songstress, LOL, me too! I have arthritis, (sponylosis and osteo) and possibly psoratic because I have psoriasis. Also have hypothyroid. Currently on humira and weaning entocort, and considering SCD...
Your ileum can be blocked due to swelling and inflammation, Did the Japanese doc put you on any meds like steroids? You may be able to take meds if crohn's is suspected. A small bowel follow thru can...
You can best tell if there is an obstruction by CT but the better test is a small bowel follow thru, at least for me. I had never had an abd CT until 11/07. This site states where the ileum is...
Congrats on feeling better, now hopefully you can stay out of that darn place. You were probably very dehydrated from the vom and recent surgery. Have fun with the menu, but in the long run everyone...
Between cobra insurance and co-pays, esp humira, I will slowly go broke. I am having my 4th upper endo (3rd ERCP) within 2 1/2 months next Friday. I do keep up with the dr office co-pays as I go...
I find often that I will talk to someone or read something here about vitamins or medicine and think "are they over-reacting" or am I just overlooking some important signs and symptoms. For instance...