I hope you feel better soon /community/emoticons/smile.gif I'm sorry,but what your doctor said to you,was so insensitive,especially when you feel so bad,you can always get another doctor,someone who...
I hope he gets better really soon.Poor little guy,I know you are worried,that's what us parents do:( Hang in there /community/emoticons/wink.gif ...
First of all,HUGS!!!! I do agree with Nanners,sounds like related anxiety which is very common. I am a RN,have been for 13 years,and have NEVER,EVER seen anybody die of Chrohns,and I work with...
Sending more hugs and prayers your way.This is a very difficult time,I had a miscarriage before both of my boys. Time does heal,please let me know if I can do anything,I am also a...
I did fine off the Humira,but ,again,I was doing well prior,my GI put me on it because of a stricture,and it did decrease the inflammation,but I'm still on Asacol & Imuran. I felt much better off...
Hello,and yes I did get this with the Humira,I actually ended up with drug induced lupus,and not to scare you,but that is what I first noticed was my cheeks. I went off of the Humira,but I was not...
The GI would do a endoscopy and colon,she said that is best for Peds cases,which I agree. I just wish I had a crystal ball to tell me what to do.Thanks for your support,I guess,I just needed to hear...
Hi all,I need advise on what to do for my 9 yo son.He has intermittent stomach issues,and a few mths ago it was really bad one day,bloody diarrhea and cramping,resolved,got better,his sed rate was...
Sending more good wishes your way /community/emoticons/smile.gif ...
Hello,I have been a Pediatric RN for 13 yrs without any issues,when I was first diagnosed 10 yrs ago,I did miss a mth of work,but they were supportive.I have a CNA in nursing school with Chrohns,and...
10 ,very caring and supportive:) We have the same humor,which helps,also we have that doctor/nurse thing sometimes [img]/community/emoticons/turn.gif [/2]...
Hello,it did take my inflammation away,but I had to go off of it about 10 mths into it,I had headaches,gained ALOT of weight,felt hot all the time,and ended up with drug induced lupus,so I personally...
Feel better soon /community/emoticons/smilewinkgrin.gif What was your sed rate before?? Mine was 98 about five years ago and it took a few mths for it to come down with the steroids. Hang in there,I...
You know what,now that you mention, I did have alot of floaters when I was on humira,I actaully had alot of symptoms and told my GI NO MORE!!!! Now granted,when I started it,I was pretty much symptom...
I agree with trying the Immodium.Are you in a flare? You may want to see if the GI thinks it's time for steroids,I know,I hate them too!! Make sure you get good info on that Tysbari,it has some...
Hi. I'm a Pediatric RN so I'm exposed to all kinds of fun filled things,and I have not been sicker more since the Imuran,I get a few sinus/colds a year,but that's about it,so in other words,I don't...
Best of luck with your surgery,hope all goes well /community/emoticons/smile.gif Take comfty jammies,loose fitting would be best,robe,slippers,then for the days you get "bored",a good...
Congrats!!! /community/emoticons/smile.gif ...
I don't take it anymore,but when I did,icing the area of injection for like 15 minutes,REALLY helped me alot,I couldn't really tolerate them without the ice,also leave the syringe at room temp for...
I have been on Imuran for 4 yrs as well,100mg/day. It has really helped me alot.I just get my drul levels done to make sure I stay in "therapeutic" levels,actually I need to get my blood drawn soon...
Hi,Humira has been known to cause these types of reactions,I agree,call the office to tell them to leave a message for your GI,but I definately would not take my next injection without talking to him...
AWESOME !! She deserves to be the "princess for the day" She will be beautiful /community/emoticons/smilewinkgrin.gif ...
WOOHOO!!!! Congratulations!! Being a Mom is the greatest gift ever /community/emoticons/smilewinkgrin.gif ...
Hello,I would call your doctor,you should not be short of breath.They are finding more side effects from these TNF blockers,I went off of mine, ,and went back to my original regimen of Asacol and...
I take mine at bedtime,and have done so for the past 4 years,and have never been nauseated,infact Imuran is what stopped me being nauseated in the morning along with dry heaves. Good Luck...
That'll teach them!! I hope,anyways /community/emoticons/wink.gif ...
[color=blue>WOOHOO!!!!!!!!!!!!!!!!!!!!!! [color=#0000ff>THIS] [img]/community/emoticons/devil.gif [color=#0000ff>
Good luck :smile: Imuran has been a God send for me!! Keeping my fingers crossed that it continues that way,I have been on it for probaly 4-5 years....
Good luck to you and praying for a awesome recovery!! I have taken care of a few people (I'm a nurse) lately who have had lap resections and have done great!!!It's amazing what they can do these...
I'm with you about the biologics!! Way scarey stuff!! I got drug induced lupus with the Humira,I went back to my old standby of Asacol and Imuran,hoping and praying that continues to keep me at...
Prayers have been sent your way /community/emoticons/wink.gif ...
Hi there,sounds like me before I started Imuran,which has been ,oh about five years,and knock on wood,no problems since. Good luck /community/emoticons/smilewinkgrin.gif ...
thanks,we go Monday morning to the Peds GI,so keeping my fingers crossed. My GI and my son's Pediatrician said since I have IBD,he has a 8% higher chance.Aggghhh~!!!! /community/emoticons/turn.gif ...
Wow,that seems ridicuously high!! But,my friends daughter "just" had endo,and not the colon and it was a few thousand ouch!!! As a Mom and a Peds nurse,I truly believe in Mom's intuition,maybe you...
I stopped also without a taper without any problems!! Good luck /community/emoticons/smile.gif ...
my sed rate was in the 90's about 6 years ago,and the only way I got it down was the Prednisone,sorry,trust me,I know how awful that stuff is!!! I also took (still do)Asacol and now Imuran for the...
Congrats on the arrival of Ellie!! /community/emoticons/smilewinkgrin.gif ...
How is she feeling?? Good luck with everything.I have had IBD for about 9-10 years now,and I flare by weight loss.My almost nine year old goes to see a Peds GI next month,he is having some...
I had terrible headaches from Humira!! Good luck /community/emoticons/wink.gif ...
Hoping Mike recovers,so sorry you and your family have to go through this.Hugs,Lynn:)...
Congrats on the upcoming arrival of little Ellie. May your recovery be a good one.I had two csections and did absolutely great both times. Best of luck /community/emoticons/smile.gif ...
Good luck baby,keep us posted!!! I quit Humira also,with my doctors acknowledgement,ofcoarse /community/emoticons/wink.gif I have been on Asacol and Imuran together for years,and those TNF agents...
hi there,I only skimmed through some of the comments,have two boys really wanting Mom to look at our new stray cats outside /community/emoticons/smilewinkgrin.gif anyhoo,I'm with you guys on the no...
oh yes,aren't they fun?? I use peroxyl gel,or you could do a benedryl/maalox mix that is supposed to work great,just ask the pharmacist the ratio of both meds....
Go for it!!!! As long as your doctor says it's okay for you,then do what you feel is right.I agree,sounds like your family is worried,you have to be smart,when you do the marathon,as for anybody,if...
Simply sending hugs and hope you feel better soon /community/emoticons/wink.gif ...
so,in August my 8yo son lost a little weight,and had some trouble in the tummy area,like taking awhile in the bathroom,I chalked up the weight loss to it being summer,he was playing more,and ofcoarse...
Oh,good luck to you guys. I would definately see a Pediatric GI. I have some concerns with my 8 yo son,he has stomach "issues" sometimes,but says that he sees "white in his poop" sometimes,so I don't...
Hi,I seem to be the opposite,sometimes mornings are my worse,but mostly the time of my period /community/emoticons/devil.gif ...
Hi,I agree,get the test,I did get drug induced lupus from Humira,I was on it for 10 months,I went off of it,so now I'm on Asacol and Imuran,and doing just fine,knock on wood...