Hi Everyone. I just came across this post after searching 'pregnant with sacroiliitis and Crohns'. I was diagnosed with sacroiliitis and Crohns in 2007 when I was 25 and I have found everyone's story...
Sorry I am female. I have been over everything with my GI and I am to stay on the 6MP. Everytime I see him he asks are you still trying, your young, plenty of time. He says Crohns doesnt interfere...
I have crohns and I am on 6MP. At present I have my Crohns under as much control as possible. I am wondering if anyone has had issues or any advice re concieving. I am worried and any advice will be...
I suffer from constipation with my Chrons. Since getting things under control it is a lot better but still there and during a flare it is horrendous. Its hard to explain too as people think you...
Yes I do but I forget the name. Look at the amount of different strains. I think standard is about 4, 8 - 11 I think is the best. Mine has 8 as havent found one with 11. This is what the natropath...
I dont eat much fruit but I do eat cherries and berries which I heard were sooo good for you and I think anti-inflammatory. I cook with herbs like Rosemary, garlic, Mint and many more (not all at...
I got the berry sorbet I think but it was very sweet. They are the only brands I can find in the freezer that dont have dairy, lactose and the sugar isnt tooooooo bad. I get them as my partner loves...
Hi Ivy I eat the vaalia loctose free yogurt less fat and more culture, a little zymil lactose free milk and gelato - Gelati Italia Sorbet, Gelativo Gelato Lemon Lime or the Weis sorbets. There are...
Yes I HATE that also when you feel sick one day or are in a bit of pain one day and you are asked 'what did you do' 'what did you eat' 'are you suppose to eat that'. It is so frustrating! My GI told...
I am 26, live in Australia and was officially diagnosed last year Dec 07 after getting very ill with CD and Sacroiliitus after years of wondering what was wrong with me and doubting whether doctors...
Hi Jen I know how you feel. I was the same on pred. I felt hungry and craved fatty or sugary foods all the time. The amount of junk I was eating was horrible and so at the end of each day I would...
Have baths with Jojoba oil. I dont know if I spelt it correctly but it is great and the dermatoliigist told me it is the only oil that penetrates into the skin....
My skin thinned on pred also and I also got stretch marks around the hip area. I have always had bad skin though since a baby, dermititis, irritated itchy skin, no elasticity etc. Ive tried alot of...
What a great topic It has been a rollercoaster 5 months for me. New Years and the holidays I was sick unable to do little at all right after building and moving into a new house. Spent all my time in...
yep me too, when the crohns in under control my joint pain is under control. In the beginning my rhem would say get your gut worked out and you should feel releif when it comes to your joint pain and...
Hi, I am having a flare at the moment and cant really focus but wanted to share I also get bladder pain and the feeling I have to go but cant but no blood etc. I drink some urinal that helps....
I took it for 1 year and it was at this time I began to experience painful hips and back which led me to a Rheumatologist. My hips were so painful some days I could not get out of bed to walk. The...
I was often getting throbbing pain on one side (Iforget now) and a continuos pain on the other pain high, pain low, I thought it was normal for Crohns. Id feel it mostly when laying down, going to...
Hi Everyone, I have Crohns and am always interested in reading about what pregnancy can be like with the disease. Can I ask, has anyone had any issues with falling pregnant in the first place.Are...
LOL I have the same prob at the moment. My tummy is sticking out a mile that I look pregnant. At times I think it is funny but I still wish it would go away because other times I feel fat. I also...
The more I read about this drug the higher my hopes become of being able to feel good on a daily basis. The 6MP hasnt been doing too badly as I dont feel as much as alot of people on this forum seem...
I never beleived much in natural remedies and always reached for the drugs when getting a cold or head ache etc until getting CD. Now I try everything under the sun but still at times wonder whether...
I have read something about limited variety causing food intolerances also but it was complicated. I havent checked because I cant be bothered reading it again but it may be within this site that I...
I started on 50 mg 6MP and went up to 75mg after four weeks. I get blood tests done each fortnight. I weigh about 55kg so 100mg sounds reasonable for you....
My GI would never let me taper so quick. I have to taper each 2 weeks 30, 25, 20, 15, 10, 7.5, 5, 2.5, then 0. I am currently on 6MP and 5mg pred and not doing too badly. I am really hoping I go well...
Hi There, it is hard but hang in there. As well as Crohns I have ankylosing spondylitis, sacroiilitis. You should Definitely look into what is causing sore joints or if it is just the medication....
I need to lose weight also as the prednisone plus quitting smoking has put on the weight like there is no tomorrow. I am also finding it very difficult because for some reason I have a powerful...
I am relatively new to this site Hi everyone and was diagnosed with Crohns and Sacroiliitis December 07 though I think I had it for years earlier. I am weaning off Prednisone at them moment and I am...
I was told by my gastro that ulcerations can heal but may not and was told by my regular doctor that ginger and rosemary are known to help heal them. I drink a little slippery elm before I eat a meal...
I am waening of pred at the moment also. I started at 30 and every 2 weeks go down 5 or there about s. I am now on 7.5 and tomorrow go to 5 then 2.5 then 0 woohoo. Every 2 weeks when I decrease I...
Hi I am new to the site. I have been lurking about trying to read up on all the info posted in the past. I was diagnosed with CD Dec 07 and have been on prednisone since. I will hopefully be off in...