My son, 18 years old, has gone from humira to remicade and now needs to go back to humira after experiencing a reaction to remicade. The reason for going to remicade was the humira stopped working...
Thanks for the reply. He is deficient in Vit D and is now taking a supplement. We go to see the GI doctor on Thursday so I will ask more at that point. What things in the diet help and what should be...
My son was diagnosed with JRA about 4 years ago and most recently dianosed with Crohns 3 months ago. The doctor switched his meds from enbrel to humira to deal with both the arthritis and crohns. My...
Ivy6, thanks for asking about my son. He is doing fine, tired. I think it's from being the end of the school year more than starting the humira. He hasn't noticed any big changes yet, or at least...
Are you serious??????????????? It cost that much???????????? I heard expensive but that is WAY pricey!!!!!!!!!!!!...
The shots went fine today. My son decided since he was having four shots, and didn't know how painful it would be. that he wanted the nurses to give the shots all at once. Four nurses came in and...
I didn't know it was an option. The doc odered it and I picked it up today, it is the pens. Maybe I will ask tomorrow. Why does one hurt less?...
Thanks for your kindness. He was diagnosed with systemic JRA at 12 years old. He takes methotrexate and enbrel subq and is used to shots but getting four at a time, pen style is new and these are...
WOW! Wouldn't that be awesome! I would be thrilled with a week....
He has to stop enbrel last week in prep for Humira and is not feeling so hot, so you're words come at a good time. If this works it will be wonderful and definetly something to celebrate. How long...
Thanks for the advice. I just picked up the humira and it is the pen starter kit. I will have him watch the video, I think they have some video for him to watch tomorrow before he gets the shots. The...
My son (16 years) will begin humira tomorrow. Four shots tomorrow and then two next week, then one shot every other week. He is deciding if he should have them do the shots one at a time, or all at...
LBJ, I hope you feel better soon. Where is your arthritis? It's bad enough to have one of these autoimmune diseases, so having to deal with two of them is extremely difficult. I hope you feel better...
Thanks for the helpful information. Do the ulcerations heal or once you have them, do you always have them?...
I just got a call from my son's doctor to inform me that that capsule study showed ulcerations in the small intestines and that he has Crohns. He was diagnosed with systemic juvenile arthritis at age...
Thanks for asking. The proceedures went fine and he tolerated it well. The doctor did not see inflammation but said given that my son is on methotrexate and enbrel for his systemic arthritis, she did...
My son, 16 yrs. old, had his proceedures done today. The serology 7 test came up positive for Crohns. The doctor said she did not see any active inflammation and took samples for biopseys, which will...
Megera, thanks for the reply. I hope the doctor will talk to us since the patient is my son, I agree with you, it will drive me nuts to walk out of the proceedure with no answers. My son had the...
Emom, You mention the doc told you about patchiness, is that what they look for and base treatment on? The doc told us depending on what she saw, would determine the treatment plan. Why are some on...
My son, 16, is having a colonoscopy and endoscopy on Tuesday. Will the doctor talk to us after the proceedure to let us know what she saw or is this something that usually takes time and we shouldn't...
Thanks for the info. Again, very helpful....
Thanks for the great information. It is very helpful. If I may ask one more question, it might sound dumb but how is a mild, moderate, or severe case determined from the proceedures? Do they look for...
My son, 16, just saw the GI doctor for the first time. His blood tests results came back from the serology 7 series and puts him in the 84% for Crohns. He will get an upper GI on Tuesday, a...
Just got a call from the doctor. The Serology 7 test results are in, apparently the test is 98% accurate. My son, 16 years, falls in the 84% range for Crohns according to the test. The nurse felt...
Nobody in the family has Crohns but my son was diagnosed with systemic juvenile rheumatoid arthritis when he was 12 years old. He takes enbrel and methotrexate right now, apparently once you have one...
Emom and others, thanks for the information. Our appt went well, I liked the doctor. Her view on the Serology 7 is that it is helpful info for the already diagnosed person of IBD. She relies on the...
Good Luck with the proceedure this morning. Does the doctor tell you the results before you go home or do you have to wait?...
My son has an appt with the GI doctor tomorrow, Crohns is suspected. What should we expect in the first visit and what questions should I ask?...
My son (16yrs) just had blood drawn for this test that gets mailed to the Prometheus lab in CA. Does anyone know how long it takes to get the results back and if they have been helpful? My...
Thank You!...
Thanks very much!...
I was surprised too. Steroids seem to be the cure all, but with a price in the long run. I am going to take him in tomorrow to get checked out again. Also, he will need to go to the lab for the...
Does anyone know about a low Iga in relation to Crohns?...
The magic mouthwash is a combo of three drugs, one numbs it. What is the connection with Lysine? He takes a folic acid now, 1mg a day but I guess it might not be enough. Katherine...
Thank You, I will ask about Kenalog. The sores are swollen, his right cheek looks like he has a golf ball in it. I don't know if this is related to Crohns or not, he has not officially been...
My son, 16, is undergoing testing for Crohns. He recently started with mouth ulcers and the doctor said this could be related to Crohns. Has anyone had these? They are very painful and swollen, any...