You say she is depressed. I believe that is normal (for a while). This is a life changing disease. She has probably come to that realization. Before CD we go about our business without too many...
After each of my resections my docs have taken me off all or most of my meds. I was ok for several months each time, but eventually restarted some of the meds as the CD started to come back. I was...
I have had 4 resections over the years and have not had a formed bowel movement since 1975. My resections were all in the TI. If the urgency to go is not too strong, the loose stools are not bad....
My first resection was in 1976, then had one every 7 years there after. Each time was different. The first one I was down to 95lbs (5'10") spent 5 days in ICU and 21 more days in hospital. After that...
My blockage is always in theTI. When it is bad nothing is passed. There is severe adbominal pain with throwing up. If you are blocked you will begin to dehydrate, so drink gaterade as it has...
The best advise I ever got from a Doctor was that I had to find out what worked for me. He was talking medicines and foods. Many people with CD can not tolerate milk and milk products, but for me ice...
I get better absorbtion with liquid supplements. I take a liquid iron and gelcap multivitamin. Take the iron on a full stomach to lessen any stomach issues. $4.99 a 16oz bottle. Ferrous Sulfate...
DUH!...
My blockage is in the illeium. Here are some things that work for me. When the pain from gas and bloating get real bad try taking a bath. Fill the tub full with warm water and submerse yourselve...
I've been following your stiuation with interest. At 24, I spent 5 days in ICU then 21 days in hospital. My situation was/is different from your grandson...but it has been hitting home. His toughness...
When I complianed about fatique my doc wanted to give me antidepressants. I asked him why and he said a recent study showed that 9 out of 10 people that are fatiqued are depressed. He would not do a...
Did'em all except Cimzia. Methotrexate and imuran both worked for awhile, Ramicade did nothing, Humeria may have been working but the side effects were not worth it. Just my experience..I agree with...
When I was first DX and had my first surgery I had a temporary stoma. The idea was to rest the bowel as it was riddled with fistulas and an absess that was draining into my hip. I wore a bag for 9...
I agree with Wolfie that there are medications you can try before going on biologics. Some people really like biologics and have had very good results, others like me have seen no difference using...
Some meds don't work for some people. Ramicade did nothing for me..Imuran worked for a while then quit working..Humira might have been working but I could not take the side effects (turned my skin to...
I've been taking immodium for as long as I can remember (20 years?). Doc gives me RX for 8 a day. I take four as it is enough (2 after bfast, 2 after supper). When I feel any type of restriction that...
We call our bathroom the library because I keep at least one book and several magazine in there. National geoagraphic is always a good one...lots of pictures for the short stays or articles for the...
I use herbals, but like pb4 says you have to find what works for you. A lot of people on this site use probiotics as prescibed by their doc. I eat yogurt with probiotics in it. I couple this with L...
Pencil sized narrowing in the norm for me. Over the years I have been able to live with it until it gets inflammed to the point that surgery is needed. Put the surgery off as long as possible. Docs...
A buddy of mine believes there is a coorelation between crohns and dogs. He believes that humans are picking up bugs from dogs and some of us react with crohns. He also thinks that there is/was an...
I am on disability and got medicare at the same time. However they made my disability retroactive to cover the two years. My disability is for fatigue. Even though the fatigue is caused by the crohns....
I have been in hospital many times with patial obstructions and pucking. I'm old fashioned in that I ask for an NG tube to relieve the pressure on the stomach and stop the puking. (NG tube is...
If I understand your question correctly, you cannot get medicare until you are approved for social security disability or unless your old enough to qualify for social security and then medicare....
niether of them have worked for me....ramicade did nothing..humeria might have worked but the side effects were bad enough to stop the injections....
I know the feeling. When I get bad gas, I feel like I could power the east coast! Someone metioned a bacteria imbalance..since I started eating Activia every day my gas is much better. But I like to...
When I was dx there were no gi docs in town, now there are three. To get dx I had to travel 300 miles to U of I med center in chicago. They found a gi doc in St Louis, 120 mile away, that became my...
Aliens have changed our DNA to make us ready for transport to their planet!...
Take someone with you to watch over you and question what they are doing and why, until you can do that yourself. Had that surgery 5 times, it is piece of cake! Good luck...
I am currently using a maintence dose of 2.5mg. But I have been feeling mostly good the last couple of weeks...Avoid surgery as long as possible..Humeria may work for you. Humeria turned my skin to...
I had to have surgery...but i would put it off as long as possible. In my case I have had surgery every 7-8 years. I asked about the pattern of every 7 years having more surgery and was told that it...
When I need to go to the Er it is usually for an obstruction and the pain results from that...I TELL them that I need an NG tube an IV for fluids, steriods, and pain meds...I TELL them what the...
Soda and white bread. ESPECIALLY diet soda!...
Onthecan has it right! Shortly after being diagnosed I had my first surgery and was not expected to make it. I spent 5 days in intensive care and 21 more days in the hospital. But the happiest day of...
I've been anemic for years and take liquid iron and it does help...take it after meals..it is easier on the guts. I also take multi vitamin and mineral supplement that comes in a gel capsul, so it is...
oil of oregano is really strong and can burn. pb4 is right in mixing with juice. Olive leaf might be better..it is easier to take and is suppose to do the same thing..boost immune system and is...
Actually I not from Missouri, but on Illinois side of river. 100 miles north of St Louis. Went to Barnes for last surgery and they did very well. But I was dealing with a surgeon and I would like to...
I have been with the same doctor for several years and he is ok but he is extremely traditional. I live in a smaller town with 3 gastrointeroligists. The one I see, my nieghbor, and a rookie fresh...
FallColors has it right. He doesn't know how to get relief so how can you expect to help him get relief. Just let him know you are there. My flares sound similiar to his. I do the warm baths and they...
I know the feeling..at time so weak it is all you can do to walk up the steps to go to bed...been there am there...afternoon naps do help...I take a butt load of vitimins and they seem to help but...
the incontinence is probably more from giving birth than from the crohns. child birth can weaken the pelvic muscles and cause incontinence. search kegel exercises. the first thing that will be...
When I first started taking the entocort it was definitely helpful with the crohns...now I don't know...I am starting to slip...
I've been taking it for 2-3 years without any problems. The way it was explained to me was that the steriod is designed to be released in the intestine so it is mostly used there. I have seen no side...
I am more often than not dehydrated. I drink gatorade to keep up the electrolites and hydration. The prednisone can clear up inflammation (it is the only drug that has worked for me) and leave you...
My question would be: why are all the drugs aimed at symptoms and not at a cure? In other words all the research dollars seem to be being spent on researching medications that treat the symptoms like...
"sick and tired of being sick and tired" That's what I told my doc for years .... finally went to another doc and found I was very iron defiecient. Now I am taking liquid iron three times a day and...
The internet has been a wonderful source of info about CD..I have looked at everything I can find from the quack site that promise instant cures to the AMA journel of medicine. Look at european sites...
Hi just joined the forum to add my thoughts. I am 57, I have had CD for over 30 years. When I first got sick none of the local doctors knew what it was therefore the disease progresses unchecked. I...