thanks guys for your responses. But how do you guys really handle this? I mean just go on birth control because being in bed and in the house for 10 days is really getting old and to the point were i...
I have crohns and was doing okay and like a light switch all of a sudden get woken out of sleep with diaherra, backache, pain. Im figuring it was my period because i knew it was coming. Seriously...
karen hope it works i have been on humira since oct of 07 and now going to 1 x a week for humira and have to stay on entocort for a year. But i guess i should be glad that i have been off predisone...
humira shot does hurt and burn like hell. I think the ice pack just helps from inserting the needle. I def have the prefilled syringes. Cant even imagine having pens. I def have to control it when it...
Anyone have ever heard of taking humira 2 x per week? Isnt the max 1 time per week? How about entocort for up to a year?...
i have been on humira 8 months now. Going up to 1 time per week on humira. For me 1 time every other week just not strong enough. I can take up to 3 months to def work. HAS ANYONE ELSE HEARD OF...
hard to tell as well. last one was from that really bad flu that was going around. Was getting over that and then started to flare. Went for like 9 days and then realized wasnt the flu that triggerd...
yeah my one gi dr. doesnt even seem to think it is important and the other said i had it. So i have no idea. I just praying and trying to get this thing in remission. I am on so much medciation...
belleenstein went to dr. and he said that it was acid. But me on some medication for at night which helped with some of the nausea. I still get ill in the morning and feel sick till about 6-7am start...
my hair fell out as well. I had no idea what it was from. Went to dermo dr. and they did a biposy and they said i had what is called telegon effluvium. Which is like your hair is in the resting stage...
Anyone out there have gastritis? Never had this before and im sure it happened with taking all this medication for crohns. When im on predisone i dont even know i have it. Going off predisone while...
When im flaring really bad on no medication i will be going diaherra water like 10-12 times a day. or majority is water with a few pieces. There was a good chunk of time when my food would just come...
I have had the promethus blood test. Saying ibd at an intermedidate level. I have had postive antibody test 3 times with levels rising each time for the ASCA antibody. Promethus lab is in CA im from...
Been on predisone on and off for two years because with crohns that is the only thing my body seems to just love is predisone. It has been one week since i have been off completely. Last day was a...
i have no idea if it is from medication or what. but every month about 3 days before i m due to get my period i get this intense redness, itching, burning down their like i have a yeast infection or...
thanks guys i do keep a food diary. And i watch what i eat very carefully so i m not too concrened with that. Being lactose intolerant and having a bad allergy to glycerin i have to watch and read...
I cant get into remission for long periods of time? Anyone else out their? We are switching up the cocktail of drugs im on and stuff but i cant seem to be in remission for longer than a few months...
Everytime i have ever flared im usually going to get my period or have it and is comes along with green diaherra. My periods just make everything down their really bad. Does anyone know why this...
any one on these drugs and it was like i was fine for about 6-7 months and then out of now where vomitting, diaherra, pains, gurgling nosies and running to the bathroom. I seriously thought these...
misspriss82 i get same thing too. That is why i thinking going on birth control maybe will help. I get diaherra and pain really bad. Sometimes on days i bleed more the pain and nausea, diaherra are...
Have crohns on pentasa, humira, and went back up to steriod 20mg a day now. Just getting over with having the flu for a week. Now like uncontrollable diaherra for 6 days. I get the flu, period and...
razzle i posted my email address now please email me. Well they ordered a bottle of it from a pharmacutical company. It had to be special ordered. It was 99.50% pure glycerin. Not vegtable or...
thank you so much for even helping me look. But yes i know it is impossible. I have called so many places yesterday and it looks like i might have luck at health food stores. They have like natural...
Anyone out there who is allergic to glycerin. found out on Saturday threw a challenge test we did in dr. office. Since this allergey is so rare never heard of it before need help in finding any...
i would get woken up as well def means you are flaring. once getting on predisone totally stopped for me. Now since hopefully in remission just about 2-3 times before work. But before was all day...
you might want to make sure you arent diabetic or anything like that and make sure your kidneys are functioning alright....
this is so ridiculious what you have been threw. I would keep switching dr's until someone can find out what is wrong with you. You have too many things going on that ibs doesnt cause. Me too they...
the taper was way to fast. Have to try in 5mg. You will feel very crappy from the flare and the coming off steriods too fast....
i have tried that for a year straight up to 80 down to 10 and would flare. Since so hard to get off steriods try this. I am doing alternating for two week each at a time. all the other time i was on...
that is what dermo thought it was something brought out from steriod. Like perioral dermatitis or acne induced rosace. When will it go away. Im on 4mg of steriods probably next month will be off it....
been on humira since october...
is it possible to have an allergic reaction from pentasa if say i have been on it since september. In january as i m coming off my sol medrol i have noticed my face is always red. It is a werid...
i had it done. Was on medication when i had it done kinda of a waste. Coulndt find crohns that way. I was all cleaned out from a colonscopy. so i just couldnt eat or drink...
i was on such a cocktail of different drugs, and the stress of finding crohns all my hair fell out. Took about 6 months. I had no hair but just fuzz on the right side of my head i had to cut my hair...
if you are allergic to pentasa which i have been on since september and high dosage of steriod. So im coming off steriods breaking out in rash on my face, whole body itches. On saturday had an issue...
ANYONE ALLERGIC TO GLYCERIN? HOW DID THEY TEST YOU FOR IT? WENT FOR A FOOD ALLERGY TEST AND NOT ALLERGIC TO ANY OF THE 38 FOODS THEY TESTED ME FOR. BUT I BROKE OUT IN A FLAMING HOT RED RASH ALL OVER....
i would have a salad with all kinds of vegtables with italian dressing, garlic bread, then some oreos with 2% Warm Milk along with a mocha blast from baskin robbins with cream of brocl. soup. I would...
Since dropping on the steriod I have been hearing it makes nosies alot. I didnt even eat anything yet. It happened this morning didnt even eat anything yet. I know that is when i will have to be...
I am female 5'4" 135.6 26yrs old and i feel horrible as well. I dont have no water diaherra but have soft stools. We are trying to get off steriods and see if this humira will work. Got bulges and...
mine would just go up a few points nothing that high. But yeah dr. told me the same thing from steriods....
i have had the same problem as you. My lymphocyctes was low and the nuetrophills high with elevated wbc. which dr. too blamed on predisone. I also lost most of my hair. It is now growing back curly...
yeah i went to allergy dr. yesterday they have no idea we are going to start testing for food allergies next sat and then as soon as i get off steriod then we will start testing for other types of...
anyone have an allergic reaction to humira? if so how long did it take before you took first dosage to when you broke out in a rash or itching?? Started end of october and beg of january red rash all...
It took about 3 months for it to work. I dropped to 4/6mg of sol medrol. I should be flaring by now so i think it is working. Cant say for sure until off steriods. I am also on 6mg of pentasa....
no i am 5'4" and was 123 now moving to 139 at dr. office wasnt starving at all. I love to eat just tons of diaherra, hospital stays and my hair started to fall out due to not absoring nothing. Going...
well i was 123 now up to about 139! The only time in my life i was 123. Never thought with diet and exercise i could ever get there. Im dieting and exercising and gaining weight. Just sucks that my...
i had an elevated white blood cell count with low and high nuetrophils and lympocytes or whatever they are called. I also have postive ASCA antibody tests and positive promethus too. But like the guy...
yeah i know but easier said than done when your size 4's are getting snug....
im on humira as well. But my face has like this red little bumps sometimes itchy rash on my face. My checks under my eyes, above my eyes. Like someone took a red marker and put some red dots some...
im on humira and it i think im in remission. I pay about 30.00 for a 90 day supply of humira. Super cheap i know it is like 820.00 a shot or something. I havent gotten sick or nothing from it. Been...