HI there, yes, I am also on Humira, pred, and flagyl , 25mg pred, and I was getting some symptoms you are haveing along with severe gas pains and bloat. I joints are sore, and have no energy either....
I am starting to think it is the Humira, for some reason alot of people on Humira, such as myself are tired, foggy and no energy. I just saw my GI and told him I am tired all the time. Being on Pred...
I know how you feel, I had a pretty bad bout too, it wears you down physically, emotionally and tires you out. This too shall pass, and look after yourself, because only you can. Dont worry, things...
Hasn't anyone tried Cholestyramine??? Works great, I used to take it a few years back when I had D 15 times a day, really works. I pk all I took....
Yeah I avoid high fiber when I am having the big D, makes it worse and bloat!...
Hi there JP1, I am on Humira, will be 4 months on the 28th. I have a shot on Tues. Yes, I too have arthritis worse then before I was put on Prednsione because I think the Humira isnt working for me....
I was told that if you are taking weekly shots to rotate, around, and I have a book from a assc of Humira and there is a diagram of the human body and I put an x, exactly where I put the shot. I am...
Yes Canada is doing something similar. http://www.gemproject.ca/participate.jsp Also you may want to check out www.ccfc.ca they have a bunch of universities taking on studies for Crohns. Since it is...
Hi Bgirl, I also have IBS but have most of it under control. For diahreah and urges, I used to use Cholestyramine (Questran) take a glass of it and no uncontrollable D. I also dont eat dairy or drink...
They say tonsilitis is day surgery, however I realize all surgeries are risky but if this throat thing is really bothering you I would think about getting it out. I hate surgeries too, had too many...
I was the same 3rd infusion and was rushed to emerg for lymphatic nerve attack, that was over a year ago. Scary. But as everyone says, we all have different stages in our disease, reactions to...
It could very well be crohns, because I had mouth sores or cankers, not always white, but the side of my tongue was so sore, on the one side, and I was just getting rid of it, and boom, back again....
Yeehaw, dont you just hate being on it? I am tapering to 30mg tomorrow, the sides are not nice. Dont care about the moon face, just want my arthritis to knock it off! Congrats! Keep well!...
I have been on Entocort, but it was working for a few years and then I had a massive bowel obstruction and emergency surgery. I am pretty sure 3 pills a day was the max. I didnt find any side...
Proud of you, you are a keeper! Congrats on your upcoming engagement/wedding plans! Tell the other guy, that your just NOT interested and never will be! Good luck....
Great that he is home!!!!!!!!! Dont worry he has all the medicine he needs, he has you, nothing is stronger than love, to heal a heart (pardon the pun)! xo...
Hi there, take it from someone who has been married a 3rd time and I believe this with all my heart. Honesty is the best policy, I would tell your finance what is going on and be the first. Your ex,...
Question is: What DOESN't give you cancer?? ...
My theory "If it aint broke dont fix it"! I dont find it that big a deal, but a nurse with an IV needle forget it, my veins can't take it, now that is pain!...
Yeah I am taking my shot tonight, I am calmer at night and therefore it will be better for me. I do my own syringes, I am surprised at everyone's different pain they get from the shot. However I...
I have joint pain but got worse when I started the pred 2 weeks ago, on 35mg now along with Humira biweekly. My knee has a shooting pain every now and then and I rememebered it from the last time on...
I get night sweats but that could be because I use a heating pad and warms me up pretty bad, then I am also in the pre-menapausal stages too, and Humira I am taking only biweekly, and on 35mg of...
I know so many people on Remicade, and they are doing very well, some still have D but they can deal with that. I was on it, became horrifically allergic to it, and my GI has all his patients on it,...
I was on Pentasa, different times and wasnt strong enough for me ,burned my stomach.. Didnt change my BM numbers. Maybe you should look into Cholestyramine, (Questran) it will help the diahreah. You...
You pretty much do what I do but my pain is lower RIGHT side, but if it drives me insane I take a half percocet,. Maybe your meds need to be changed?? I would see my GI, as soon as I could. Hope you...
NO prob, anytime I get something worth while I have to share it, you never know some day there maybe a cure....
http://www.reuters.com/article/scienceNews/idUSL276667620080629?rpc=64 Baby steps, but an interesting article....
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Hi there, sorry you are going through a rough patch, not fun to say the least. I find in my inexperience, if the current drugs arent working, time for a change. Although you may not like it...
Hi Marie, I had mine done 15 years ago, and it was the only way after 8 months of tests to get my Dx. Well, when the specialist said I had to go for an xray, he never told me what kind and I left too...
Dunny, I know about the epidurals, sometimes they just dont work on some people I am one. I had 3 during labour and only got one 2 hour break, after that they didnt work. My second resection they put...
I hate the waiting game, it makes your head full of anxiety, and you feel like "am I making this up", hang in there, soon you should be dx, I would stop at nothing until I found out what it is....
Awwwwwwwwwe, Dunny, my heart and prayers go out to you and your husband. This has truely been a rough road! They say God doesn't give you more than you can handle.... I think you paid your dues. I...
Good answer, I like that one, I am stealing it ok? But my sibs all have a form of IBD, but I have it the worst. Thanks, for that, you made my day. /community/emoticons/yeah.gif ...
I dont know what the big deal is. Get this...about 17 years ago before I was dx's I had diarreah, so bad, went to a very small town laundromat and wanted to go to the bathroom,,,, and I mean I only...
It depends on exactly what the GI orders, I have had a clear strawberry liquid and a chalky type more often and about 2- 3 milkshake containers. It isnt fun, but you really need to know what is going...
Hi doormouse, I too get them and some reasons are the same as pattytx, two resections and is related to crohns ( isnt everything?) and also hereditary. I have had 3 9mm and one 7mm. I didnt know they...
Hey Flash, I have been down your route, and that was 5 years ago after a resection that was a nightmare. sometimes they dont get all the diseased area and of course crohns can come back whenever it...
I have a question for any Canadian's on Humira. Reasoning is I had my GI appointment today and I mentioned about going on Weekly shots of Humira as I am biweekly now. He doesnt think it may be a good...
Yes there is assisstance through www.abbott.ca and I deal with the team called Progress, they will help find a way to get you on it. I have 100% full coverage, so I am lucky but I did read about...
All I was told by a top specialist of Toronto Mount Sinai, is that Remicade and Humira are the same type but have different molecules. I have had the Remicade and was highly allergic and I wanted a...
Hi there Lucy, I started my worse flares, 15 years ago, pain and bloating around the belly button, couldnt get my pants on and diarreah and vomiting, I had a blockage starting up. I do not bleed, and...
Good for you karendee! I use the syringes and very fine needles, and I dont prep for nothing, yeah it stings for a minute but when I press down with a clean Guaze for a minute after it is fine and...
Ooooooooooh Roni, I am so sorry , what a mess, and the happiest times are having a baby. I have only been in remission 6 years out of 30, and only one child, I was lucky (or to my advantage) that my...
Actually no, Mc Donalds is one of the cleanest, they have spotless bathrooms, they are checked hourly, and signed off, for cleanliness. Only one Mcdonalds was discusting but it wasnt the bathroom it...
Hey Ivy, interesting survey, here in Canada we do have cards, I never got one, more reasons just because there are not enough business' that dont give kindly to people running in and out. I would...
Hi there sorry you are going to have to have surgery, my 3rd may be on it's way in the fall time if Humira doesnt work I have a GI appt tomorrow. Alot of surgery depends on how bad your infected, my...
I tried soy, it is discusting tasting to say the least. I drink Rice milk everyday, it is enriched with vitamins, and all those goodies , and takes a bit to get used to it being like 1% but I use it...
I am also from Canada, when I was on Remicade, the Insurance I have is great, all paid for took about 3 weeks, and I too live in a small town. Good luck hope it works for you, fingers crossed!...