Thank you ....
See if maybe you can talk with a social worker at the hospital. I went threw this one time and I live in the United States I'm not sure where you live Some hospitals alsocall them care coordinators....
feel I can't take much more me and my boyfriend fighting as well I really don't need this with everything else . I have no friends thanks to my disease. Family pretty much the same they don't even...
Yes i am on bactrim and I was not aware that it could cause anxiety going to bring that up to my doctor when I see him on Thursday I am also on levaquin and I have the pplyderma gangrenosum...
Been awhile since i posted here but I've been going through so much. as of late I've been getting constant sores on different parts of my body. they have turned into staph infections 2 times of the...
um woder how much of these problems could be medication side effects...
I think all is different on how long it takes to dx but for me i believe i had crohns from about the time i was 12 years old and i wasnt dx intill i was 27 and i am 33 now and still i have doctors...
i was dx in 05...
Its been awhile since i was here. alot has been going on, i dont have internet at home and since july i have been staying with my brother. my house flooded and fried the breaker box and the clean has...
I dont see that doc there but there are get found my dx when four othere gi couldnt took two years of everthing dx you could think of but the docs at the clev clinic is great...
Thanks to all for your response i will try those things ty...
i have a little skin hanging down from my rectum and slightly in it feels like i have a scratch it is really painful at times i have had the skin thing for a long time since i was a teen at least the...
i dont want to sound gross but i have this i dont know what you would call it at my rectum it hangs down i have had it for a long time never told it was a hemmi or fistua what do you guys think it is...
had infusion anyway didnt think headaches and blurred vision was due to the study drug so gave it to me anyway also been having hard time sleeping and yesterday i woke up sick head cold sick fever...
yes it is very scary but and i wont lie it not fun try to get them to knock you out for it...
nothing new but i have been up all night i just cant sleep i dont feel well from my head to my stomach today i dont know which one has been worse i am depressed which is not helping anything on top...
welcome and i to was dx first with uc and after years of tests and them saying that it is in my head partuillay there come up with dx of cd...
after years of searching that is where i got my dx from i go to them as my main gi doctor although i dont live in Cleveland long story i tired one closer to him a little over a year ago and he did a...
hope u are safe my prayers and thoughts are with you...
welcome to the forum sorry u are having trouble...
its hard but i had to go though many gi to even get i dx so i know what u mean sounds like it might be a good time to look for a new one...
Thank you Ivy I did talk to the study nurse earley today and she said try to get the headache to go away and see if with the headache gone if the vision gets better I have tired tylonal ,sinus meds...
And a little blurred vision which can be a fatal side effect from the study drug i am on which has seemed to be helping i am hoping that it is just a bad headache had similar before its has been...
your pet looks at u at night when u are going back and fourth to the pot and u think she is thinking would u just keep still and go to sleep ur interupating mine...
i was reading on this med and it pisses me off that i was never even offered this drug as i look at this one website and i has been given for uc and crohns for years first what i get for uc and that...
i already had that and because they believe to it not being my crohns said they wernt going to call him...
How often should a person with crohns have colonscopy im sure that this has been ask before but it just seems like i get over the last one mentally anyway lol and it time for another one...
Thank ivy and all others who have been helping me though this .and yeah i beleive it was you who brought up to me about being in the study and that i should have been taken more serously and my gi...
i called just i said i was going to called right when the phone lines opened and as to my surpise he had a cancellation and could see me if i could get there in an hour as normally takes wks to get...
yes he did and i told him no i wanted to know the reason for my pain and showed him i had pain meds already...
um k ru in the untied states or somewhere else...
k thanks i dont know i will call my gi doc and the research nurse tomm but i might even consider going to the hosptial i receive the meds at when i tell them at a local hosp they dont really even...
is that the drug used for alcohol dependence and opioid dependence....
went to an er closer to me not the same place i go to get my infusion its about 45 or so min away is they some reason why u said that ivy that i dont know...
um ivy what did you mean by that...
MLN02 vedolizumab is the study drug i started it in may...
thanks ivy .......... cant they though id like to meet one doctor or one nurse with this disease and see how they feel lol and go though what we all have with all the crap...
something seems to be wrong with my computer i hit enter and its submiting instead of going to the next line sorry about that...
ugh stupid computer anyway i am going to call my gi doc and the nurse that oversees me for the reasearch study i am in and see what they say tomm...
they said nothing new was wrong although they did nothing no scans said that it may just be my period coming on although i dont think so beings it is 3 and half weeks away i just got off said blood...
i have a doc and i did call and lefted a message with his head nurse but i dont count on a call back as to now its after hours...
is it for sure impetago i had what i thought was cold sores but then my gi doc said it was mouth ulcers i have also had other skin conditions...
no its on the left side and a far as the er i have a prob with that cause they think i am looking for pain meds from before being dx and even after i would end up in the er for symtoms due to my...
also to my post before had a bm so i dont think its a blockage but the pain is no better than before and as far as going to er i cant do that they only think im looking for pain meds anymore as to...
no its just this constintent cramping pain...
The pain is different from my Crohn's pain it is on the other side and lower my bms not the same either meaning i havnt had one which i have been going less since the new med but not not at all i...
i usally post in the cd forum as that is been my dx for the past few years i however was looking for some insight on this drug and saw it had been brought up here more than in cd its been awile since...
its been awile since i have been able to write but i am hear again with some good news been on this study for almost a year now and it seems to help went from going 15-20 x a day to between 4-5 xs...
i started in a drug study friday and so far mostly good had i small allegic reation to it but no big one just some red patches i am allegic to everything lol there gave my bendyll and steroids to...
im starting in a drug study for chorns its called Vedolizumab (MLN0002 any one here tired it yet been on it and if so what r your experices with it...