I haven't posted in such a long time. However, I need some suggestions/help. I'm a post-op Crohn's patient. I have a stoma on the right side which is herniated. I still have my anus or rectal pouch...
My colon was removed in July and an ostomy bag was put in its place.. I'm still adjusting... However, I've been getting UTI's like no ones business. This is my 4th since July! Could it be my stoma...
I feel your pain. I used to be little miss go go go... I never stopped. I worked full time, had a full load at college, made sure my house was spotless, cooked dinner, and I also had time for friends...
I'm not usually a sensitive person. But I've been so ill lately that I'll cry if someone looks at me funny or if I think they have bed feelings about me. I know that I'm depressed. All I do is sleep,...
it's gross but I'll chew up some food and stick my nasty tasting pills in that and swallow it down.. don't spit the food in your had just you know..keep the food in your mouth.. lucky for me, my...
Keep us updated! I'll keep you in my thoughts...
At the end of this week I'm scheduled to talk to a surgeon about having my colon removed. My GI and I had an extensive talk about it. However, I tend to listen and then think of things to ask later....
There's a sharp pain in both my lower left and right sides which is where I normally get my inflammation. I've had similer pains bewfore but not this strong or presistant. I'm not constipated and...
The initial treatments helped me so much it was great. Now however, it seems to not touch my symptoms. For example, I had my last treatment on feb 4th or so and I'm back to where I was when I started...
I was on methoterxate but they took me off of it and I had a bad reaction to immuran. I was also on humira for a while and pentasa too.. I am on colazol, 32mg of steroids and the remicade but nothing...
I've finished the introduction phase of remicade and that went fine. My symptoms were going away and I was doing alright. But now that I have to wait eight weeks between treatments my symptoms seem...
I have pain in my actual stomach that gets worse after about an hour after I eat. If I don't eat I end up burping up stomach bile all day.. I assume that it has to do with stomach acid.. but can...
During my visits I'm allowed nothing but clear liquids to start- you'd think that they could make a broth not taste like toilet water but some how.. they can't get it right. They'll gradually advance...
well, I'm back up to 24 on the prednisone.. I was down to 4mg for a little bit.. that was exciting and my face was getting back to normal and I was losing the weight! I'm so angry. My doctor thinks...
So, I've had diarrhea for a couple of weeks now. My rear has become so raw that it bleeds when I wipe, and I'm in tears every time I go to the bathroom. It hurts SO bad to go, it hurts SO bad to...
Zoso, It was bright red.....
I haven't made a single change to my daily life. I thought about that too last night and I took a lot of time to think about that. haha.. There have been changes in my meds.. we went up on my...
So I was bleeding pretty badly yesterday. I had no pain with it but some small cramps.. Although, I was alarmed I figured it could wait until today when my doctor's office was open. Well, I just woke...
I'm not sure what's going on. I've been experiencing terrible nausea for almost a month now. All my blood tests are good, we did a CT on my head and on my stomach (I had to drink barium for that) and...
Nanners, I've been on most of my medications for a long time now. My nurse was kind of suggesting that too but said it was odd for it to happen so late.. but weirder things have gone on i suppose....
Well, I got my results back.. all normal. I don't know what's going. Maybe I'm imagining the nausea? By the way it wasn't and endoscopy. It was the one where I drank the barium and then they did the...
Can the barium that you drink before a CT scan give you diarrhea??? I had to drink some this afternoon and let me tell you after a few days of virtually nothing moving, this is almost welcomed.. but...
My temp is always in the high 96's low 97's. It's always been low as long as I can remember. I guess this would explain it....
As you know (or may not know) I've been whining about nausea that will not quit! I called my Doctor's nurse today and she has me scheduled for an endoscopy (i think. I know it's something along those...
Thanks for the advice/suggestions. There hasn't been a change in the medications that I take. I've been at 8mg of prednisone for what feels like for ever now and I'm not taking anything new other...
Despite taking the meds that my doctor gave me for my nausea, it came back last night full force. I have to say with being on steroids, I don't mind the appetite loss but the nauseated feeling of it...
I spend a TON of time in the bath rooms at work, we have multiple stall rooms. One thing that I have notice and really don't like is that someone will check your door to see if someone is in there...
In my last post subject 'nausea', I stated that my doctor was checking my inflammation markers to see how high they were, we have yet to get the results as the pathology lab messed up and only took a...
Thanks everyone! I am feeling a little bit better, it tends to come then go through out the day. My doc. took some blood tests before my complaints of nausea and my inflammatory markers are up a...
so, I went to my doctor with complaints of nausea. I was so bad that I didnt eat a whole meal for a week, I would nibble here and there and eat a bite to take my steroids and when i felt good I'd eat...
Since my insurance coverage has changed at the beginning of this year, Humira is now for too expensive for me to afford. A one month supply costs me nearly 600 dollars. I live paycheck to paycheck as...
my advice would be go for the fattiest area you can. Luckily, I have quite the gut so that's where I do my pen shots with very little pain. Of course let it warm first...
I'm not sure what's going on. I don't even know how to explain this.. When I frst got to the bathroom, early in the day, its normal.. after lunch, things get worse and I'll go to the bathroom about...
I made sure to clarify with her three times when I talked to her.. that kind of sucks....
My Gasto's nurse told me the other da that I have UC and CD... is it possible to have both at the same time?...
I would say something the first chance you had. That's what I've always done and it's worked out just fine....
I have an intermittent nagging pain on my upper left side along my ribs.. I think that my stomach is inflamed. I also have some back pain which makes me suspect inflammation. It's not oeverly painful...
I know that I should talk to my doctor about it before I make a desicion on this. Though, I was thinking about going on a liquid diet for a coupe of weeks and then start introducing solids back in to...
I have the same problem and I'm also on prednisone. My doctor told me that the knee pain was also a secondary CD problem. I refuse to believe him as I NEVER had any joint pain before hand. Try taking...
thanks guys! I'll try your suggestions!...
I'm not exactly the hardest worker in the world but I like my job. I often end up staying home about 3-4 times a month due to exhaustion or just not feeling well. I normally try to not let things get...
So, I go to the bathroom about five to seven times a day and it's not well formed but not loose enough to call it D... it's just poo.. but the more I go, the more my bottom hurts and burns. I don't...
I take 12 Asacol a day, 32 Mg of prednisone which is 4, a folic acid pill, a blood pressure pill, humira injections bi-weekly, and a weekly methotrexate injection too....
So my GI wants to put me on this drug in the form of an injection.. I'm also on Humira. My understanding that the needle for the Methotrexate goes to the muscular tissue as opposed just under the...
cant they make some of our more disgusting tasting pills.. like our steroids taste better.. or coat them like an M&M.. I think that I would remember to take them if they tasted better.. :tongue:...
We absolutely can not get things under control, the harder we try the sicker I get. Thanks to the steroids I'm now mildly diabetic and I was so shocked by this news I failed to even ask my doctor if...
ugh medco is a joke. I've had to call and yell at them, my nurse had has to call and yell at them... and that was to get my loading doses and that took three weeks. I dread placing another order...
it's kind of gross but I'll chew up some food and then stick the dose into that and then swallow it. Otherwise, I'll throw up. That taste is awful. Also, spoons full of yogurt help out too......
I'll wait until we hear back from the admin on this as I have yet to have any issues with having my myspace address in my signature thusfar....
I don't think that a myspace page is considered offline contact info. If I wanted, I could add my myspace address as my home page link. I don't want to argue but, it's not offline information....