I weaned off the steroids about 2months before surgery. But they still insisted on giving me steroids in the hospital because they were afraid my body wouldn't produce them on it's own. ( that...
This is the 4th "bubble" I have had on my incision site. They fill up with fluid, 2 broke on their own and dried up, one the dr.debreeded(?) and I had to pack til it healed, and this last one formed...
Hi everyone!! Wanted to share my good news with you! After many tests and months of runaround I had my surgery on the 16th of Feb. I was in the hospital for 2weeks. Had to have a blood transfusion,...
I think the "it's all in your head" story is universal with CD. I had one of those GI's. I also had the " pleasure" of getting to put him in his place. He happened to be covering for my GI and showed...
Things are looking up ...I think!! I am having surgery on Feb. 16th. My new surgeon and I have come to terms.... he will do his best to reconnect me,but will only do it if he feels I will be ok and...
OK sorry I haven't kept you guys up to speed but I gotta tell you I am slowly losing what little mind I have left! I have been off work since Thanksgiving. I ticked off my surgeon so I got a letter...
Thought I'd let you know what has happened so far this week. Saw medical Dr. she upped steroids and sent me to GI. Saw the GI yeasterday. He started talking see you in 6 weeks. I said "time out!!...
I have had a colostomy for 5 years I think. Kind of lost track of time ! Lot's of changes in my life since then. People told me I would think it was the best thing I ever did! Not how I felt for a...
OK .... i KNOW things are a little fuzzy comin off the morphine, but gett this... I have my discharge papers telling me to make appt. with a Dr. Kamel. no number soI look in the phone book. Only one...
I have an appt with GI tomorrow. I'm not real enthused about it ,don't really care forthis new group. Lost my GI in the divorce and bankruptcy proceedings! Amazing the things you lose that you never...
I know it never really left but I like to live in denial occasionally! I just got home from the hospital, 9 days of morphine bliss! Been decided that I have a hernia around my stoma. Did a scope...
I am facing this prob right now. I just got out of hospital, need surgery, they didn't want to do it yet cause of being on steroids. The first time I had surgery I was on pred and had no probs....
already got mine......
I'm back.... stoma is a little happier. Mega dose of pred to reduce the inflamation. By the time I got there the area around the stoma was so distended it looked like I had a softball under my shirt!...
Normally my output is pretty liquidy. It is still soft but I am having to push on my stomach and forse it out to relieve some ofthe pain from the pressure. It is a very thin stream coming out making...
Posted here because I have crohns....reason for the stoma. I know peeps here and am just more comfortable postiong here. I have had it for 5 years. I'm concerned about the burning, the small ulcers I...
OK.... my stoma hurts something awful. It is getting rock hard all around it....very painful.....I am pushing the bm out...looks like a little worm. playdough poop....ulcers on the...
God Bless. My prayers are with you! Cleo...
Personally I think it's all a roll of the dice, did remicade for 4 years 3 of them good one not so good. Tried humira couldn't say it did a thing.Had surgery,went well, friend had the same thing...
The amazing part is my boss is a nurse. Director of nursing. Imagine that! lol I have found over the years that the peeps one would think would have the most compassion, have none. It's been awhile...
I'm felling a little better this afternoon. I'm not real fond of struggling to breathe! They didn't say anything about me bein anemic this time but I was last month. They want me to start the test...
I just got out of the hospital last night. Another wonderful flare that sent to the ER over the weekend. I went to give my boss my return to work slip. She looks and me and says" so what are they...
my friend said it was about $5 a day which was less than she spent on cigs....
natural childbirth ... dialated to 10 and no baby in site....
I haven't had to buy supplies for almost 2 years now. Had stockpiled before divorce! Now I have to buy them outright. Insurance sucks. Anyone have any ideas on how to be able to afford this stuff? I...
Since I had my colostomy I get alot of styes in my eyes. I Have wondered at times if one coud have anything to do with the other.,Since my divorce I have lame insurance so I don't see the Doc as...
Hi C2 Long time huh? About this remission thing. It is wonderful! BUt I find myself getting way too comfortable and I remind myself daily not to take it for granted! I am doing well. Been almost 2...
I haven't been around for awhile but I still think of you guys often. This DD can do so much damage in so many ways I can only stand by the saying "what doesn't kill us makes us stronger." This has...
Hey Randy, it's been awhile. Sorry to hear about your newest "friend". Brings back memories. /community/emoticons/sad.gif So far so good for me at the moment, But I have learned never to let my guard...
I am dealing with this subject as we speak. I got to have that conversation and include "oh yeah, I have a freakin colostomy". If that don't get his attention don't know what will! lol He claims it...
I had the short spiked look for many years due to meds. I am currently off all meds and my hair is growing sooooo fast and really thick. It's great for a change. I remember my husband asking if we...
I remember asking someone to shoot me in the head with a blockage. During childbirth I wanted to shoot my husband! lol Seriously tho, I would have to say the blockage. I too went thru 30 hours of...
Wow it is sooooo good to hear from all of you! It took me awhile to get back here. Sorry! I am glad the holidays are over. I'm not usually such a grinch but this has been a tough year. I'm looking...
I haven't been around for awhile. When I got divorced the putz took the pooter too! I am doing well at the moment. My colostomy is still working. My Gi and surgeon are both amazed. He didn't have...
Been almost 2 years and I still have the bulge. I also have what my GI refers to as woody skin around the stoma. IT's really hard and feels strange. My last CT scan showed a hernia. The surgeon says...
I had rectal crohns at the time of surgery and they found 17 fistulas. Only 4 of them had surfaced around the rectum. They said I needed the colostomy to bypass the rectum and give it a chance to...
I have had my colostomy for about a year and a half. I did not think this wa y at first but it was the best thing I could have done for myself. I no longer have to worry about where the nearest...
I just got out of the hospital because of burning in the stoma. Had a colonoscopy while there and I have active disease about 6 inches in. I can actually see ulcers now on the outside of the stoma....
I work in a nursing home. The other day I was changing a lady and she was upset with the fact that she had no control any more. She asked me if I had problems with "pooping" and makin it to the...
I started my "career" in the medical field after my colostomy. I am workiing as a nurse aide in a rehab center. I could have a reversal but have chosen not to at this time. My quality of life is sooo...
I had the same thing but I am not gonna be much help cause I can't remember what the surgeon said it was. My GI mentioned hernia but the surgeon said it wasn't. It did go away but was kinda sore for...
Hi! Glad you found your way back! I have had my colostomy since Jan. I have mixed feelings about a reversal also. I think for the time being I will leave well enough alone. As much as I disliked the...
I had surgery in JAn. and was left with a colostomy. I thought life as I knew it was over. Actually it was! No more living around the bathroom, spending countless days in the hospital, and spending...
Glad to hear you are doin so well! I never thought I would say this but I think I am gonna keep my colostomy. At this point I don't want a reversal. It is soooo nice not to have to worry about where...
Have you ever tried the stuff called duraderm? I used that when I ripped a big crater under mine and it healed in a couple of days! I was amazed cause I was wondering how that was gonna heal under...
Glad to hear you're doin so well! I never thought I'd reach the point where I thought this bag stuff was a good thing or even ok. But I'm there with ya. This sure beats the heck out of liviin in the...
I've come a long way in 5 months learning to "deal" with this bag thing. It seemed like such a big deal at first I never thought I'd be comfortable with it and accept it. Lately tho I have been in...
I have been having an annoying pain between my belly button and my stoma. If I push on it I could bout go into orbit! showed it to Gi the other day and he says it's a surgical hernia. Anyone else got...
I'm glad to hear you got him to listen. I had to really think back to when I was having the same problem. That has been about 5 years ago. After we got that under control I never really had the D...
I hear what your saying and I have been there myself. But life with this "thing" hangin on my belly isn't exactly the best either. I guess when my gut is behaving and I am only having 4-5 Bm's a...