i can't believe how far away some of you are from your doctors :( i'm incredibly spoiled with a 2.5 block walk from work - otherwise about 30mins metroing from home....
I am 25 years old, diagnosed last November. I've always had a sensitive stomach and been rather gassy! ever since I was a baby (says my mom). I started having severe pain and problems summer 2003 but...
I've been on Pentasa 6 pills a day for almost 2 months. I didn't start seeing the little beads until about 2-3 weeks ago. I'm pretty sure it's just from the meds and isn't anything to worry about. At...
I eat two pieces of wheat toast with honey and smooth peanut butter everyday at work :) with tea. It has become a new favorite, and comfort. Sometime I have PBJ for snacks too :)...
My blood sugar fluctuates really easily (maybe I should get that tested..) and if I don't eat every few hours, I feel lousy. I've had the chills, shaking, nausea, low body temp, dizziness - that...
i like the vanilla ensure - but can only do half the container at a time. there's too much sugar - it makes me nauseous. any amount of the strawberry made me feel sick, but im not one for fake...
My left eye likes to be inflamed - which means the cornea swells and makes everything blurry. Lately its been better, wearing contacts less and glasses more (sigh) had eye drops and goopy stuff for...
I didn't notice the beads until my symptoms were less and I was feeling better. Initially when I needed them to work most, I didn't see them. It took a good month or so before I did see them. I've...
I just had my third colonoscopy yesterday, and I think I woke up. I'm very small so I don't know how much meds they use on me, but I feel like I had seen the screen for a bit and I think I asked "OMG...
oh man - good luck! the sad this is - the pills are way better, but i suck at taking pills. and did i mention im a huge baby? heh....
so today - is prep day. Tomorrow is my colonoscopy. Luckily, it's at 830am, so I'll wake up, shower and head right in. I hate prep day. I am SO hungry. SOOO hungry. but also luckily, my doctor let me...
I'm leaving for Iceland! for a week with my boyfriend on Sunday - first big vacation, very exciting! Since I'm blessed with the pains of Crohn's, I need to snack often. I'm working on making a list...
I dont remember what the symptom of my eye was called - I think something with a C? My cornea swells up because my eye is really dry. I had been recommended a new brand of contacts which I tried to...
Thanks Nanners :) I'm hoping it kicks in more - in less than 2 weeks I'm going with my boyfriend on a week long vacation to Iceland! I'd hate for my silly tummy to interfere with our trip. I had...
Its been over a week on Pentasa for me - I think it's starting to get better? Maybe? Does it usually take a few weeks to notice improvement? I've noticed a few improvements, but not as much as I'd...
I have inflammation in my left eye! I've been to the eye doctor and had medicine for it, but it keeps coming back. It's getting annoying. I even had to put these goop in my eye when I slept....
I don't think you're being a jerk. You can't relate, so it's hard to understand. It's a complicated disease, and can also be frightening. He probably told you early on about it because it has a huge...
I haven't taken anything since the end of december - tried the diet route - which helped until now. It seems if I get a cold or get stressed or fall out of my strict routine, my body gets very angry....
Every little bit helps! Keep it up! <3...
I'm with you on being underweight - recently I started going to the gym to help gain and I've found that it greatly increased my appetite. I've managed to gain 3 lbs! (steady at 100 now!) and keep...
It seems like he has no idea of what you're experiencing and doesn't even want to be bothered. I would say that you have a case against him, especially since you have been trying soo hard regardless...
Thank you for the suggestions!? I am going to look into trying boost and Peptamen - I do need more protein! What I'd love is a personal chef :P...
LOL - my grandma tells me that I should have milkshakes - lots of them! Too bad ice cream has soo much sugar! But I should include at least one sundae a day ;) I think that sounds like a good idea,...
I was only on 6mp for 4 weeks - as i developed hives all along my lower back - but I recommend taking it at night before you go to sleep (as others here suggested to me!) It did make me feel nauseous...
I too am also trying to gain weight! I'm at 97lbs now.. sometimes at night it goes up to 101 - but back to 97 in the morning, le sigh. I joined a gym and go twice a week - to test the waters - I've...
Wow - great!! Now I am very excited to continue with my work out sessions!! I've never done yoga or pilates but I believe the gym I joined offers classes.. I will definitely look into it!! Tomorrow...
I'm sick and tired of weighing under 100 lbs and decided to try to be more proactive about it. I joined a gym. I investigated many gyms in the area and finally found one that I felt would be best,...
I'm going to be making it tomorrow for my first time for Easter! I'm very excited and looking forward to it... my boyfriend and roommate are also looking forward to it :P I was debating whether or...
The doctor told me 6mp would take up to 3 months - I actually noticed a change pretty quickly. My appetite increased and I was able to eat, my bowels changed more to normal and the bleeding stopped...
I'm my daddys little girl :) princess even! i probably confide in him more than any one else. although - once he moved from our hometown in CT to CA - is when my iffy symptoms increased. trying push...
sorry to hear that you also had an abnormal pap :( i hope that your colposcopy goes well on the 4th - keep us updated. i'm not sure how they knew based off the pap that you had HPV and that it was...
I've only been with my current boyfriend and not had any problems before, so I'm hoping that HPV isn't the case.. thanks for all your posts. I just wanted to see if my hopeful hypothesis could be a...
I was only on 6mp for 4 weeks (the month of December) - having then developed hives - and not been on anything since. Adjusted diet etc and feel more or less ok. I have good days and I have bad days...
he told me to come in every 2 - 3 weeks. the first 3 weeks i did well - he increased to 75mg and then i felt nauseous all the time - more blood work and dropped back to 50mg and then hives....
maybe it's time to discuss a different form of bc? with a different hormone? depending on how long youve been on your current bc - ive been told the effectiveness could last anywhere from 2 - 5+...
i took it right before i went to bed. soemtimes id wake up from the nausea but roll over and go back to bed. when the doc increased my dose i was nauseous all the time. decreased it back and then i...
although i am blessedly small chested - bras are still incredibly uncomfortable! i love wearing pjs :D BUT something id like to also suggest - when i was at my sickest and lost a lot of weight my...
when i was 21 (25 now) and before i was diagnosed - i had hot flashes which didnt seem to make sense! didnt put 2 and 2 together at the time since the doctors were all dumbfounded by how i was...
Thanks for the post :) I'm going to share this book with my boyfriend and my family. It's all so new to me too, I appreciate it. xxoo...
I find that alcohol that has a lot of sugar in them - make me feel lousy for days! (mixed drinks, malted..) Red wine actually helps me feel better! Otherwise, I don't drink. I've never been a fan of...
My friend told me that cramping like that could mean that your body is preparing for the baby (shes experiencing them now and early along) - maybe good signs - here's to hoping! xxoo...
yay congrats!!! i am there with you on the attempting to gain weight train! it's encouraging for me to hear of your success :D so far I'm up 3 lbs - at night it's 5 lbs (at 101!) - but back to 98 lbs...
i take ibu for headaches, migranes, cramps and when my body is sore. I used to take tylenol because I know it is gentle on the stomach, but I hear it's bad for the liver.. but never noticed any...
Cinnamon and spice tastes similar to maple and brown sugar - if you're feeling adventurous :P xxoo...
I try to eat oatmeal every day. On days that I don't eat it - my BMs are inconsistent or nonexistent! But the next day I eat oatmeal, and I'm back to normal. I suggest you try it! I like to use plain...
I also have a mild case and am not currently on any meds. Since I had an allergic reaction to 6mp - still on Benadryl (2 weeks) for hives. They are almost cleared, woo! I was on Asacol before I had a...
For a while I was having similar night sweats. I asked my OBGYN about it and she prescribed a birth control pill (Yasmin) that put my hormones on track and limited my night sweats. I typically only...
Did your doctor suggest the vitamins, probiotic and teas? I'm trying to figure out how best to approach trying a different way, and who to ask. I'm still very new to all this. Since my doc...
My nutritionist told me about Marshmallow just today! I'm also looking into Probiotics. Is there anything else you take, or just the Marshmallow?...
oh sorry! I didn't think about posting the links before hand, thanks for the edit :) since I've had a reaction to 6mp - I'm not currently on anything. We have to wait for the hives to clear before we...