Thank you so much MMMNAVY!! Once Lizard contacts me I will definitely remove my email from the post!! Again, thank you!! Have a great Sunday! =)...
Hi Lizard99!! Thank you SO MUCH for responding to me! I have been so desperate to reach out to somebody who has been on this diet to see how it has worked for them. I have followed it for the past...
Hello! Lizard99, I was wondering if it would be okay to contact you about David Klein's diet? I have been trying it for the past two weeks and could use some insight on how it has worked for you...
Welcome to the forum!!...
Welcome! This is a great network of awesome people!! Take Care!!...
Newlywed, The same exact thing is happening to me right now. It's so frustrating! I see my doc on Tuesday, so it'll be interesting to see what he says. =( I hope you feel better soon!...
I went through this exact process two years ago and was put on the temporary duty retirement list. It wasn't without a fight though. I did not want to get out of the Navy, but big Navy decided it was...
You can definitely live an active and productive lifestyle! I'm a competitive cyclist and was able to compete once I worked all my "kinks" out (finding out what I could eat/drink while training and...
Octobergirl, Like pimfram, this also mirrors my story prior to my diagnosis. After being diagnosed, it took me almost two years to get it together. After a pretty nasty hospitalization I decided to...
Welcome BWS27!! Remicade has given me my life back! Prior to getting on Remicade my body was steroid dependent. 6-MP didn't work for me either. Remicade did not work for me the first year I was on...
I hope you feel better soon Sniper!! Remicade did not work for me the first year I was on it, but then my doc pretty much doubled my dosage and that seemed to do the trick. Prior to Remicade working...
Good Luck! Please let us know how it goes!...
Hello! When I was on prednisone I, like you, got itchy rashes. I was scratching non-stop and seriously thought I was going to scratch my skin off! I also felt like my skin was way more sensitive and...
Nanners, Your post helped me a lot. I was always hoping that I could one day come off Remicade and be "medicine free." Now I understand why my doc has been telling me I will never really come off the...
Jesi, I know EXACTLY how you feel. I was there at one time too. I was diagnosed when I was 24 years old and felt like I was on top of the world before being diagnosed. I had a great job, had...
Angie, HUGS to you! I was diagnosed at the age of 24 so don't have much experience with Crohn's and children but want to let you know that with your support and love he will get through this and be...
I, like Wyzwmn, have developed my own diet plan over the past couple of years. What works for one person won't necessarily work for another, so a lot of it really is just trial and error! I have...
After my diagnosis I stopped getting the flu shot or any other shot for that matter. The only shot I've received was the TB test, and that was solely so I could get on Remicade! Since being diagnosed...
General Colon Bowel! Hilarious name! Anyway, I too have a juicer which has come in extremely handy. Like you, my body wasn't absorbing nutrients, and eating raw fruits and veggies was wwaaayyy out of...
HUGS to you! Arg, I always gained weight on prednisone. I had this ongoing joke that I would turn into the marshmallow man from ghost busters every time on got on the 'roids. They are awful! I always...
Thank you all so much for your input! I'm going to the doc next week! =)...
dinkydee, My heart rate was sometimes elevated when I was on high dosages of steroids due to my lack of sleep (b/c I totally became nocturnal). However, when I was down to 20mg my heart rate returned...
Hello! I was wondering how many of the ladies out there are on birth control? Have you noticed any problems with your CD? I have been thinking about getting on the NuvaRing but am completely hesitant...
Hello! Have you tried goat products yet? After being diagnosed I became (like so many others) lactose intolerant so have switched to goat products. I now drink goats milk and eat lots and lots of...
I actually have been drinking Xango for the past couple weeks and have to tell you, it shocked me. I have been in remission for about 6 months now and wasn't sure if I should try it. Well, I did, and...
I tell people that it is an auto-immune disease, they don't know what causes it, but there are theories! When they ask me what exactly Crohn's is I tell them, "When not in remission I poo lots of...
Hi Mrs M! I, like everybody else, have had to dramatically change my diet. For breakfast I usually eat one fried egg and a glass of goats milk. I then eat goat yogurt for a snack, a baked piece of...
Iram, I was prednisone dependent for roughly 2.5 years. I would always relapse about 3-6 weeks after tapering. Once relapsed, I would get put back on prednisone (btwn 40-60mg), and then taper 5mg...
Good luck!! =)...
arrowslinger, My food diet is pretty bland but works for me! Basically I have an egg and goats milk for lunch, goat yogurt for a snack (they have some pretty good flavors...i don't recommend trying...
Black Widow, I totally feel your pain! Been there quite a few times. I, like you, lost clumps and clumps of hair. Every time I took a shower my hair would come out in huge clumps. I was surprised I...
LMills, I am SO SORRY to hear this. =( Unfortunately I had the same problem...every time I flared my mom would ask me what "I did to cause it." It was seriously frustrating. So, what I did was start...
Hello! I have read this book and yes, I tried this program religiously. Unfortunately, it did not work for me. I bought all the supplements (including the detox clay, it just came out like white...
Hey Guys!! I feel like my intestines are getting stabbed with tiny needles. I'm also extremely bloated. This has been going on since last Thursday. I'm not flaring at the moment, and am still having...
MsRockonBelly21, First off, welcome to this site! This place has helped me out SO MUCH. Secondly, I am really really sorry for all you have been through. My doc recently had to double my remicade...
Welcome omigrandma!!!...
Justin r., I too experienced lactose problems after being diagnosed with Crohn's. What I do now is drink low fat Goat Milk, eat Goat Yogurt and Goat Cheese, and drink Goat kefir. It took a few days...
So sorry to hear about this...will keep Mike in my thoughts and prayers....
Aw Randy, I'm SO SORRY you have to go through this =( I will keep you in my thoughts and prayers!!! My hubby and I just moved to Silverdale last week and are lookin for a place to live! It's...
Hello! I always take my prednisone first thing in the morning otherwise I wouldn't be able to sleep! I take the full prednisone dosage at the same time. Good luck and I hope you get to sleep!!! Gotta...
Hello, I am sorry to hear about your daughter. I have been on remicade for just over a year now and am finally in remission without the use of prednisone. My doc had to double my dosage of remicade...
Pigdoc, I'm sorry about your recent hospital stay. I'm glad your home! 40mg of prednisone doesn't make me swell as much as 60mg, but I still get the lil pot belly, thicker thighs, and moon face. I...
gitti, I tried the Makers Diet and though it is a healthy way to eat it did not put me, or keep me, in remission. I bought all of the supplements, detox clay, and followed the diet religiously and...
LMills, I'm so sorry this happened to you :cry: The first time I had my first big accident was at 330 in the morning. My dog woke me up because he himself had diarrhea and needed to get out as soon...
Thank you all SO MUCH for your responses! I have started the warm compressions and it is helping take the pain away. I have only been using warm rags but will sit in the tub tonight with epson salt...
Hello Everybody :sad: I have a pretty painful cyst on my clitoris that my gyno said may need to be surgically drained (ouch) if the antibiotic doesn't work. I was wondering if any of the ladies on...
I was recently put on the Temporary Duty Retirement List due to my Crohn's. It was ridiculously frustrating for me as a young LT Intel officer. I still did my job despite my severe CD, but big Navy...
Welcome to HW! This place has helped me out SO MUCH! Take care of yourself and keep your head up! -Emma =)...
Wow, that's a HUGE drop! I have only been allowed to taper by 5mg a week when tapering. I think that he should get a second opinion on that. Or recheck with his doc, and find out his reasoning. Maybe...
Welcome! The disease is really scary when first diagnosed (and even after one has had it for awhile). A few months after I was first diagnosed, feeling absolutely horrible, I looked at my dog and...