Hi Jo- I have no experience with IVF, but I did have a subtotal resection in 2007, with three repeat exploratory abdominal surgeries. I had the full incision. earlier this year I gave birth to my...
everyone has their own story, and no two stories are the same. Sometimes is hard to know where people are coming from, both in positivity and negativity. But that's the beauty of life, we don't NEED...
I was on it for a very short period of time a few years ago, but didn't notice any difference. That being said, I was in the middle of a serious infection and flare, and the only thing that probably...
Hi Jennifer- I have a rectovaginal fistula that has been going on 4 years now (hope this doesn't discourage you!). I am 27 and have been married 8 years. I totally understand where you are coming...
Hi Kathy- I've been on Imuran for several years now and am feeling pretty good (thought I suppose it is a Imuran/Remicade/Cipro/Flagyl cocktail). I think that your doc labeling Imuran as a form of...
Hi Nico- I know everyone is different, but I never had anything like this when I was on Humira a few years ago. I mean, I understand that injection site reactions would seem like a somewhat normal...
I'm currently on a Remi Imuran combo and getting over a cold (3 weeks long). I was on Humira and Imuran about 4 years ago and it seemed to take about the same amount of time when I got sick. So, I...
Hi Riley and October Girl- I had my first child earlier this year. The CD was rough while I was pregnant; lots of cramping and D, a ton of diaphragm pain from bloating, plus an active RV fistula. And...
Thanks Ginny and Rosie Yes, I'm on Warfarin. My INR is checked every two weeks at this point because it has been difficult to stablize it. My Pharmacist and I went through my LAC tests last time I...
Hi, I'm from the Crohn's forum but was recently diagnosed with Lupus Anticoagulant. I know that many people with Lupus also have LAC. All I know about the condition is what my pharmacist could tell...
Subtotal colectomy in 2007. Mine starts an inch above my button, curves around the left side, jogs back to the middle, and goes another 3 inches down. About 5 inches total. Mine started...
Has anyone here been diagnosed with Lupus Anticoagulant? I was recently diagnosed and only know what my pharmacist and the internet can tell me. Anyone have any insight or tips? Has anyone been...
I had 5 infusions last month and a follow-up infusion yesterday. I can't say that the venofer helped very much. Maybe a little but not a lot. I'm supposed to have an infusion monthly now....
yay for me! I developed a stye infection in my eye a few days ago. I think i've had this eye infection once before when i was a teenager, but it never hurt like this. My whole right side of my face...
I just wanted to update everyone on my sister. Her MRI of her knee showed that she had a 3.5cm ganglion cyst under a knee. They figure it is from playing tennis. She has to have surgery, which is a...
I have no experience with seizures but just wanted to say how scary that might be! Thank you for helping me be aware that this could happen. I'm really glad you are okay....
It looks like I have Ileocolitis with both stricturing and fistulizing Crohn's (yay for me). Has anyone ever heard a doctor tell them that UC is in the large bowel and Crohn's is in the small? I had...
do you happen to be on Remicade? I only ask because Remicade can cause scar tissue to narrow. I hate to tell you this, but I had the same problem and after 3 scopes of not getting through, I had a...
I have a fast heartbeat when I'm either feeling really crappy or dehydrated. Once when I was in the hospital my pulse was up at 170. And it was kind of funny. it would go from 150 to 170 when i'd get...
I've taken it when I was at my worst, but it didn't seem to help. Sorry! Cheers...
July through September are the worst for me. But I've seem to have survived it this year. So far. Quick! Someone knock on wood for me! Cheers...
Welcome Welcome! This place is a life saver. you'll love it here! Cheers...
that was incredibly helpful pb4, i really appreciate it!...
aimee, how often do you get them? I'm on a 5 infusion serious right now. You do maintenance infusions? how often?...
Wouldn't it be great if someone created a dictionary for CD? I'm not new to this scene, but I was thinking today, how many types of Crohn's are there? I hear of Fistulizing Crohn's and Crohn's...
Hi. Just started Venofer on friday. I had another dose today. Did anyone get a lot of help with this? If so, how soon did you feel better? My ferriten is 5, so I really hope it will help. Also, did...
Hey all- This is kind of a side topic. I hope it's okay to ask it here. I hear all these questions about talking to employers about your disease and stuff. Well, my husband very well could be...
belleenstein- one thing you might want to have checked is Vasculitis. I had pain, tingling, and numbness in a hands, fingers, and toes about two years ago. after months of neurology visits I was in...
Everytime I try to run my whole system cramps up and I feel sick. I had most of my large bowel removed last year and i have always wondered if when i run my gut is jumbling around in all that extra...
I tried it for 6 months and it didn't work for me. now i'm back on remicade....
ditto to the above. I have pain in the evening....
I don't know about diabetes, but beware of blood clots. I've had a clot and it can be dangerous if not taken care of. They're especially known to wedge themselves in your legs....
Thanks tsitodawg- I remember your funny "bomber" story from another post about pill cams. That's actually a really great idea. I didn't even think of it. They have pretty good insurance, but we'll...
Sniper- So glad you're okay. Many prayers coming your way... Cheers...
wow chroniemom - if i was a newbie i WOULD think that was crazy! But since I know CD, I know that anything goes! That is some great advise that I will try if my fistula starts a-leakin' again. I...
hi john- i noticed no one had responded to your question yet. I don't know about hernia surgeries. thankfully i have never had a hernia. but i did have a surgery to repair my fistula. I didn't work...
hey. i feel your pain. I have a rv fistula that has been open for 10 months. It was simply awful. constant drainage that burned my bum and gave me a nasty butt rash. can't go swimming, bike riding,...
thanks patientspiders. To me a colonoscopy isn't a big deal, because I've had so many. But for a 15 year old? I just worry about her. Also, I'm concerned that they might not find anything in the...
I take a whole bottle of miralax and mix it into a big 64oz of gatorade and then drink a cup every 1/2 hour until it's gone. Then I take 2 tablets of dulcolax. works like a charm. and it doesn't...
I take a children's chewable multivitamin. Chewable vitamin's are supposedly easier on your system than regular ones. And since your daugther has mild Crohn's you probably don't need to go all gung...
Hi Husband- Sorry about your wife's diagnosis. Whether it's minor or severe, it's still not fun. Everyone is different when it comes to Crohn's. Different in symptoms, severity, what we can eat, etc....
My little sister is 15 and she's been having tummy problems for about a year. She has the SAME symptoms I had when I was her age; can't eat chocolate, can't eat high fatty foods, and ab cramps. Now...
My next remicade infusion is in a week and my joints are screaming! It's mostly my hands, elbows, knees and feet. Anyone with any brilliant ideas on how to ease the pain so I don't walk around...
I agree with Karendee. I don't think they can legally do that. If you could get a written statement from the person who said you missed out on a job promotion because of your FMLA use, it would be a...
What do you mean you got turned down because of your FMLA? Did you max it out or what?...
I take Iron Gluconate. It doesn't seem to bother me. I'm starting iron infusions soon since the pills take so long to start working....
I was on Humira for 6 months last year and it did me no good. In fact, I had a major flare and a fistula develop while on it. So I'm back on Remicade now....
I would love to find a good nutritionist here in the Portland, Oregon area (if any one knows of one, please let me know!). The one time that I saw one she literally pulled out a book and made me...
Okay, I must be way behind. Can someone tell me if Tysabri is out public now for Crohn's, or still in trials? I'm not a clinical trial wiz so i don't know a lot of the steps and processes. Thanks!...
I had severe nausea for 2 months with it. lost a lot of weight (which i was actually glad for). but now it's mellowed out and I'm glad I'm on it. Oh, and it also made a lot of my hair fall out. For a...