I gained quite a bit of weight BACK with remi, which was a good thing. I'm not as young as I once was, and I think my metabolism has changed some. I try to keep busy with walking (I walk the golf...
Not sure my life is "normal," but I am working and I love to golf (about a 3 handicap now.) I got on the right meds for me about a year and a half ago and have played some of the best golf of my life...
I was very weak mostly due to being malnourished last summer when I was flaring badly and couldn't eat much. Since going on Remicade I've gained back all of my weight and have even started lifting...
I've had a few breakouts, mostly on my shoulders and lower back however. They seem to take a while to heal. Not too bothersome, but I have noticed a slight increase in breakouts. To some extent, my...
Yes, my feet were terribly swollen before I went on Remicade. Seemed to coincide with my Crohn's arthritis. I went to multiple docs including a rheumy and they all pretty well scratched their heads....
I noticed quite an increase in my eating once I went on Remicade. However, I was down about 30 pounds and must have been malnourished. I've gained back all of my weight and my appetite continues to...
I had been so sick I wasn't able to do anything for the last couple of years. At 33 (almost 34) its embarassing to be living with my family, but I know why I am and appreciate all that they help me...
Been on Remicade since November. I've gained back 30+ lbs. in that time (to say I'm able to eat like a madman now is an understatement.) I have problems with fistulas/abscesses and it's helped to...
It can get better. My meds are working for me right now and life is closer to "normal" than its been since my diagnosis 2.5 years ago. So it can happen. We all hope things get better for you too!...
We already have this legislation here in MN. I have a card from my doctor's office should I ever need it. (Haven't yet.) There's a law that states that diabetics can bring food wherever we need to as...
The social isolation of chronic disease is tough to deal with. I hear ya. I'm a little younger (33) and haven't been on a date for years, can't eat at a restaurant, etc. It's made my social life...
Ah, a thread I can relate to! I use an insulin pump to control my diabetes. The steroid-based meds really made my sugars hard to control. My sugars usually run very consistant (around 120 average)...
Before Remicade: anywhere from 2 to 8 a day. After Remicade: 1 or 2 (usually 2) and like clockwork....
I've had 3 Remicade infusions so far. It's been working very well for me. I am allergic to SO many things, so I was really nervous. I use benadryl tablets before I go just in case. I had horrible...
I've had my Week0, Week2, and have my third loading dose coming up next Monday. I could tell it was working the night of my first infusion. I had a lot of terrible joint pain and swelling and it got...
I'm guilty as charged for coming here to vent and share when things haven't been going too well. So, I figured it was time to post up that I am doing well right now! :yeah: I've gone for two Remicade...
Just had my first Remicade infusion on Monday. So far, so good. I had the typical G.I. symptoms from my Crohn's, (weight loss, lots of trips to the bathroom, lots of bleeding, fistula, abcesses,...
Ha ha... had a similar experience about a week ago. There's an elderly woman that works in our office. She must be about 80. Anyway, she sells all these vitamins and herbal supplements in some sort...
I seem to recall Tetracycline doing that to me also many moons ago before I even had Crohn's or Celiac. They can do that to ya. Usually listed as a possible side effect on all antibiotics. Not sure...
I saw the ad during normal hours too. I was really surprised someone could have CD and be a pro football player. The site is sponsored by Centocor, so there is an ulterior motive. Still, it was nice...
So glad it worked for you Michael! Yeah, it was scary thinking about possible reactions. I just finally had to convince myself that the nurses have seen it all and could handle it if something were...
Yeah, I know. I haven't been on the Entocort very long. Maybe 3 weeks? It was just a stop-gap until I got on the Remicade. I had been on just the one pill for a week already. I honestly just couldn't...
Hey all, Just wanted to poke my head in and say all went well yesterday with the Remicade infusion (what a relief.) No allergic response or anything (pre-medicated with 50mg Benadryl to be on the...
Yeah, I'm gonna try it. :tongue: The GI clinic just called to confirm my appointment for Monday and I didn't even freak out and cancel! :smilewinkgrin: I really want to feel better. I was unable to...
Oh jeez. I am scheduled for infusion #1 of Remi on Monday. :cry: I'm having serious second thoughts. :shakehead: A lot of my Crohn's manifests itself in joint pains. The last thing I need is a drug...
I see you have diabetes too. Any affect on your bloodsugars from the Remicade? My GI said it shouldn't cause any problems in this regard, but I am curious. The Entocort I'm on now messes up my...
Hey, thanks to everyone for the encouragement. It's tough to not feel "defeated" by all of this. I am hopeful it will all be worth it and I can return to some semblance of a "normal" life. Hopefully...
Thanks so much. I'm at the desperation point too. I can barely walk, dress, drive my car, etc. I have to go in on Monday for my TB/Manto (sp?) test. Maybe I'll ask to see the infusion center while I...
I've been fighting for so long trying to not take drugs for this DD. Been on Entocort lately, but it only worked for about a week and a half and my arthritis is now back with a vengeance and the guts...
I've had low back pain lately. Just had a CT scan and the colon is inflamed. The pain has been in the low right of my back. They said that's where the colon is, so it's causing the pain. I was...
I really want to try this diet, but it is SO overwhelming. I went gluten free 8+ years ago, and that was a big change. I have really lost a lot of weight the last few months (20+ lbs.) I just don't...
Wow. That is exactly how I would describe the feeling when I first started noticing what turned out to be Crohn's for me. I'd notice at night when I'd go to bed. That "something crawling up me"...
I tried Pentasa briefly. It was like cr@pping fire for me. Horrible. I noticed those little "beads" too....
Yeah, I have both. No rice??? As mentioned, they may want you to go on the SCD diet. I eat rice as part of my gluten free diet. Celiac.com is a good site....
Glad going gluten free has been so beneficial to you. I went gluten free years before my Crohn's diagnosis. It was like night and day when I stopped eating gluten. I've been strictly gluten free for...
I'm always freezing and completely intolerant to cold. The worst part is I go to bed with lots of covers on because I'm cold, and I end up having night sweats. One of my family members has been...
I had my gallbladder out last Spring. It did take a while before I felt completely "healed" inside. Steroids supposedly slow healing. Maybe the Entocort slowed that healing process?...
I took two doses of Cipro back toward the end of May. First dose was before bed. I awoke in the middle of the night with my achilles tendons throbbing in pain. I was awake for part of the night, and...
I am prone to abscesses and your description sounds a lot like how I feel when I have one. (Which I think I do right now.) I have lots of pain in my joints and the night sweats are really getting...
Just talked with a naturopath about vitamin D the other day. He said that if one has difficulty digesting fat that the D level can be low....
Probably the anti-biotic. I read the product labels on an anti-biotic recently, and it said that a change in stool color can indicate a secondary infection. Probably want to tell the doc about it and...
I had mine out last March. Mine was removed lapriscopically and the recovery was pretty quick (about 2 weeks as I recall.) I was pretty sore for the first couple of days after it was removed. Nothing...
There's been such good discussion here, I am hoping to add on rather than start a new thread. I saw a naturopath on Friday. He seems convinced I need to go on the SCD diet based on my symptoms. I was...
That is what I have read- that the pred/Cipro combo makes people more susceptible to tendon damage. Good call on your part....
Are you willing to let us know what they were able to find at Mayo that other docs had overlooked?...
Ne Ne, I just saw your thread, and it hits home for me big time. I have been passed around to the doctors here in the Twin Cities and I am contemplating the Mayo as well. Vent away! We know how you...
Don't be too quick to dismiss this. After all, the best reason docs can give for why we have this lovely disease is basically, "I dunno. But let's suppress your immune system." Do some more reading...
I just wanted to bump this thread and ask if anyone else has similar issues to what I am experiencing. I took two pills of Cipro back at the end of May (in case I had an infection due to Crohn's.)...
mkl11, That's really interesting. I never would have guessed they'd use a machine. Wow. Did they recommend any other dietary alterations to deal with the yeast? (Like no yeast-containing things like...
My recent "odd" symptoms: My feet like to swell up on me now. I get swelling along with discolored/ bruised looking areas where the swelling is. First time it was the ankles. This time it feels like...