hey all been pretty good last 6 months managed to get off the roids loose some of the roids weight feeling good,work said they will consider me for a pernament position if i stay well. Last few weeks...
40mg of roids is brutal to be on, i havent had tpn i didnt want it wen i was sick, the roids cld be contributing to the 125 pounds of weight,i lost 10kgs when i got off my dose of 40mg. if u are...
hey everyone,currently back on the pred at 20mg (crossing my fingers tht 20 will wrk and i wont have to go up to 40) so with the weight loss with the pred i reakon most of mine is all of the bloody...
heya thought ill throw my 2 cents in,defiantly go to the er for help with weight/pain mangement and perhaps a better treatment plan,being that under weight really knocks u around i was around 45kgs...
i was on aza when i was first diagnosed think by the time i was diagnosed i was pretty sick,the pain was crippling on the floor in a ball trying not to vomit,i couldnt eat anything going through was...
defintly take someone with you,you will not remember what they say after the scope.I had syptoms for 5 years i think,kinda got use to it,my orthodontist was the one who suggested that i may have...
i had my first scope when i was 19 it was pretty scary,but it was such a relief knowing what was wrong with me,my last scope i had just recently i had a wee bit of pain but they sedated me...
im in the same boat with the food thing,nothing like a good beer with a nice steak,may hurt going through but it was worth it,though atm my flare up is resulting in me doing the stupid food diary...
when i was on 40mg i basically started to turn into wolverine from xmen....i noticed one day that my forehead was hairy............im currently on 30mg dropping hopfully 5mg a week as my scope came...
im only a temp at my job and i have been there for bout 10months ive had over a month off work due to my crohns and they havent fired me yet, tho they have asked me to reduce my hours from 40hrs a...
do you exercise during a flare? i worry that a good workout might somehow make my flare worse...sounds stupid but i dont want to wear myself out with excercise + work and make myself worse the next...
lower right pain was the same i had which was that my illuium (sp) was basically completley blocked i had terrible pain,nausea,sweats and was in a terrible state.I had right hemicolectomy with...
hey i was 21 when i had my illeostomy, i found that wearing dresses with short shorts the best/most comfortable. hides the bag and the shorts kinda keep the bag close to you so it doesnt move about...
if im doing something special i take either half a immodium or 1/4 i found that taking a whole 1 made me feel really uncomfortable and bunged up lol and not having to worry about "am i going to crap...
ive been both under weight and now "överweight" i found that people find it easier to make rude remarks about how boney my knees are,ask if i eat,and call me a bitch coz i was skinny and made me feel...
same here if im going out with friends i wld take half a immodium ,my mates know im sick and they get that i may need the toilet.... so its annoying but i got use to it and i wld always have a can of...
hey all XD hafnt posted in ages been going pretty good with my crohns which is surprising to me,on 150mg of aza atm and it seems to be keeping it under control.had one flare and manged to get it...
i always sturggle with prep the stuff i haf to drink lots of i cant stand most of the time i puke it back up the pico prep stuff is ok thou only a couple of glassses full...
lol hate my clothes atm just wen i get back into a NZ size 8 i keep putting on weight and nw ima 12 :( want to be back in my 8's damit cnt tell if this weight is from the roids or me finally putting...
i had my TI removed and now currently in remission i have b12 injections every 3 months coz the bit they took was the only bit which absorbs b12,my recovery was quite long becuase i was so weak and...
big boobs arent that great ive recently gained 20kgs and gone up a cup size and i hate it! all my high skol life the size of my boobs was constanly commented on by my friends lol now i hate them they...
y do doctors sem confused about meds for crohns? i was under the impression it was a genetic disorder where something was wrong with u immune system? y wld it suddenly be fixed? i was quite upset...
trust me taking a few pills is worth it,wish i was dx earlier least then i wouldnt of needed surgery when i was real sick i was taking 26 pills a day,now its just 3 and some metamucil,i never lost...
i myte try the vitamin d aswel i feel real tired all the time in remission atm...
i just feel like crap most of the time hate it dont feel like doing nething :( i get a tingly face never knew wat it was from so i figure that it must be b12 related :)...
my fav was the baruim one LOL so cool tht we haf a color,never knw that either...
pretty much most of the stuff i eat im not allowed but my worst is energy drink the caffine and da bubbles are nasty also curries LOL im so BAD...
dont think it did much for me just recently stopped taking it as my GI thort it was contributing to my D (which is a side effct) hafnt really noticed any other side effects from it...
LOL it seems to be murphys law for people to tke the stall rite next 2 ya i usually think to my self "WTF y take the stall there GOD i hate you!!!" i went to a all girls high school thankfully i...
think there was a bit on sapranos bout crohns/ibs adriana was sick it was very vague adn said it was the stress was making it bad that was bout it had her running to the toilet a few times too but i...
i have 2 friends with crohns adn each of our experinces with this disease has been diferent mines was painful and needed surgery whre as my other frined get sores in his mouth and thats bout it and...
i have real trouble describing pain to when i try and describe any pain i always feel idiotic...
i usually get joint pain in my elbows adn knees....also siatica (sp) (hip pain) -_- stupid crohns hafnt found nething really to help just heat ....
hafnt really thort bout my worries bout this disease....there nothing really ne of us can do,things change so quickly in our lives as for bags well i had one for 2months last year and they really...
more than what ive dne arrived home from my parents house and relised my flat is a complete utter mess :( guess ill get on to it soon ish tum going a bit nuts after all that xmas food :( still pretty...
i had a temp illeostmy and i reallly liked it lol i mean not the cooles tthing for a 20 yr old to have but it was a good learning experince so if i ever need one or i get real sick i knw its a good...
home monitoring kit would be useful lol im quite sick crohns wise atm but my bloods are normal CRP low as its been for ages under 5 im not sure how quickly bloods can change...
soory bout my post just had a bad day at work with ppl judging me on what i did and didnt eat......gets annoying when ppl are paying constant attention to wat u are doing and think ur making things...
think mum did mash with lactose free milk for me wen i was sick,use to haf it with canned spag and ummmm carrot and parsnip all mixed in together reallly yummy snds weird but i loved it but spag...
LOL i totally agree!!! my mum is trying to get me to buy other things other than food lol coz on the weekends i tend to buy the bad stuff coz i dont haf work and i dnt mind crapping constantly :s so...
Pain is a very tiring thing last year before my resection i was in a ALOT of pain and i now relise i shld of been in the hospital just before my surgery...as for you i think if ur pain is bad and ur...
i just had a crazy thort.....imagine if i didnt have crohns disease but was only lactose intolerant........IMgaine......i kinda find this post insulting....
yeeeeaaahhhhh i just dnt haf milk,or cheese......pretty much one of the easiest foods to elimanate frm my diet....cerals with fruit and dont eat ice cream.....and im frm NZ im surrounded by cows adn...
also defintly go to ur doc,i find with this disease its better to be safe than sorry,even just making sure that anything you do is ok,must be hard for her being so young and hafing this disease,i...
hey a few weeks ago i had simmilar pain in my tum,the instant i ate it wld hurt real bad,the docs thort it cld be gallstones etc but i tried some anti acid stuff and it seemed to help,i had damaged...
i gain weight on pred adn that mostly due it can make me eat bout 3 times as much as i usually would,so just monitor wat u eat and protion control.thou i do get the other lovly side effect of my face...
i only thingi notice when i lie dwn atm in on my back dunno if its frm work sitting all day and not moving much or wat ever just feels like pressure on my back :S and i usually end up getting things...
the thing i crave most would be fizzy energry drinks which are really bad for me coz they haf caffine in them etc and i always end up going nuts on them like every couple of weeks,basically my diet...
think thats the ting i hate bout this dumb disease is that u can think ur good then BAM its going nuts im in a routine of haf good tum one day and D the next so im never sure wat to xpect,like the...
i had that a few weeks ago,really painful aye,wat meds are you on? try some anti acid stuff before u eat as long as its ok with meds,that wrked well for me thou i had to get one which sed that it was...