So glad to hear from you Randy! I hope you had a MERRY CHRISTMAS. I am getting over the flu - Fun! Fun!My mom had a terrible bought with her CD last October and they thought there might not be enough...
Congratulations - I can share my story as my CD flared while I was pregnant too. I actually had bad morning - really all day - sickness the first trimester. The second trimester I did really good...
Hope you are better soon! I went to the ER one time and they told me I had the flu & gave me a shot in the butt. Four days later I had 18 inches of my small intestines removed from an abscessed...
My mom had 5 foot of necrotic bowel to be removed and the doctor said something as simple as bending over could have pinched a section to make it happen....
I've always heard Prednisone can cause gum damage....
YES! I had a fistula from my small intestines to my abdominal wall. It was there for about 2 years. It closed (like you said) with the abscess inside and I had about 5 surgeries at different times to...
My husband totally doesn't understand or even try to understand my CD. He told his employer I had a terminal illness instead of a chronic illness. That was about 10 years ago - I guess they are still...
While in community college full time I worked part time - classes during the day and work at night. Then for my bachelor's degree I was a full time student with classes at night 4 days a week and...
Glad to hear from you Randy! Hang in there and take care - You are a fighter!...
Been there done that and I know it is not easy. When possible I would bring my daughter into the bathroom with me, even thought that is not ideal. My daughter also helped me heal and see the bright...
My stomach seems to grow throughout the day. I can be my normal size when I get up in the morning and throughout the day I can tell my stomach gets bigger. Sometimes by the time I go to bed I look...
My pain was constant. Maybe that's good that it goes and comes - I don't know. Good luck on the 22nd! Hopefully you will get some answers....
If the pain continues I would be sure they check for an abscess. I had pain that I was told was just CD pain and I needed to deal with it, after almost being addicted to pain pills I learned I had a...
This happens when there is not as much intestine for the food/stool to go though. For lack of a better term - "it goes straight though you". The organs to digest things are not there to do their job....
I have been on 6MP for about 12 years now with NO problems. I had tried Remicade and it did not work for me. 6MP has maintained my CD symptoms and I have not had any adverse reactions to it in any...
Hang in there Randy - you are tough! I remember when my dad had his teeth pulled for dentures. It was bad and we knew he was in pain. Time will heal - good luck with the dentures....
Glad to know all went well with your kidney issues. Will pray all goes well with your teeth too!...
Just wondering if anyone has heard from Randy - Did he have the kidney surgery and teeth pulled and how is he?...
I always had a temperature too when it was an abscess - this meant infection. I had an abdominal fistula and that scar site sometimes will get hard and then go away - not sure what the deal is, just...
It's OK to rant - you shouldn't keep all that inside - we have enough to deal with already! After 7 surgeries for my CD my gallbladder decided it was jealous and needed to come out. I tried to get...
I have not heard of that, but I had a hard time tapering off below 10mg. So that might be why - you don't shock your system all at once by just dropping - you sort of fake your system out on how much...
My mom started Pentasa when it first came out for CD and it was a wonder working drug for her for many many years. She has since had colostomy surgery and the doctors say it is not longer effective -...
You are tough Randy! You have been through so much you can handle this with no problem. At least you are use to meds and dealing with things and the doctors are on top of it to take care of your...
Check out the CCFA website - They have a list of docs that are a part of the Crohn's & Colitis Foundation of America. www.ccfa.org...
Mine were every 4 weeks. I was told dosage was based on your weight. They didn't even get mine ready until I showed up (partly becasue of the price), but so they could weigh me each time too. It took...
My goodness Randy! God's not done with you yet - that's for sure. You have been such an inspiration to me! Glad you are better and headed in the upward direction now....
Yes, it can come and go and may depend on what he eats. I agree with getting a scope from both ends - no fun, but it should help the dr see better what is going on....
I have not heard of anything you can do for these noises. Just know you are not alone. Sometimes my husband will ask if I am going to explode. Mine have even woke me up at night. Of course they are...
I am not from that area or know of any doctors in that area, but there are a list of doctors on the Crohn's & Colitis Foundation of America website www.ccfa.org You can search by putting in your...
My GI is 1 1/2 hours away - he takes care of all my stuff. There is local GI in my small town that I feel comfortable calling on if needed to where I could not get in with my GI since he is at a...
That just means it did not digest and came on through whole. I see this with lettuce and tomatoes a lot for me. Nothing to worry about as far as I know....
So glad to hear from you Randy! I have lurked here several times looking to see how you were and honestly it worried me when I didn't see you around. You are my inspiration! Hang in there & take care!...
My mom had this surgery a few years ago and she has done really well. Had we know what life was like now she would have done the surgery years ago. There is an adjustment period and you have to learn...
Stress causes flares, so if she is stressed with flying it could cause her to flare. Stress causes my bowels to go nuts, so I could see the fear of flying and possibly crapping all over yourself in...
I have had the flu shot for years now and I have NEVER had any issues with it or any side effects. One year I even got 2 - one for the regular flu and one for the swine flu! It is my understanding...
I understand your anxiety. Coming from my background and line of work I would say you need to contact the police if you think the man in coming after you or even if you think he is watching you....
Hi there! I am new to this forum. I have Crohn's Disease and I frequent that forum. I am not really sure what is going on with me anxiety wise. I can tell that over time (say the past 10 years)...
I take 75mg of 6MP a day....
I have been on POentasa and 6MP for 11 years now and I have had NO problems. I get bloodwork done every three months to check my blood counts and once a year they check my liver with bloodwork. 6MP...
Check this out - Interesting..... http://health.yahoo.net/news/s/nm/pig-parasite-may-help-treat-autoimmune-disorders ...
Hang in there! I know it gets hard sometimes, but we can't give up! I try to focus on all the things I am going to do when I feel better (small and large things). Yes, I don't know when that will be...
I am on 6MP and my dad had the shingles. I had no problem being around him....
I tried Remiciade and it worked for me some, but did not ultimately do it for me. 6MP has been my miracle drug. I had a hard time getting off Prednisone. Pentasa maintained things for awhile and I...
I can relate. My husband thinks if we don't talk about it then it will go away. That's how he deals (or doesn't deal) with it - he doesn't talk about it. Hard not to talk about it after 6 surgeries...
With the anemia you might need to be taking an iron pill as well. When your iron is low it makes you tired. I had to take a perscription iron pill for years....
How many times have I said this - Hang in there Randy! I hate that, but at least the steriods are working and you aren't playing the "guess what med works game". My mom was on Pred for about 5 years...
There is a gene that links CD (NOD 2, I think) - everyone who has CD has the gene, but everyone who has the gene doesn't have CD. There is an environmental trigger to the disease too & this can be...
I would tell them your history. Throwing up while you are out of it can't be good for you and they should consider that. My mom takes a long time to wake up. She always tells docs this and they don't...
CCFA website has info on this www.ccfa.org Joint pain is due to CD. I have had my share of it when I am having a flare. It comes and goes like the flares. I have chronic dry eye that my eye doc tells...
I had my gallbladder removed. At first I did have more D, but dr said that was normal after gallbladder surgery. After a few months and things settled I can't tell a different from before. D says...