The only thing that can relieve a headache for me is ibuprofen. I am allergic to aspirin (it makes me faint) and tylenol does absolutely nothing for me, I might as well eat an M&M. I find if I can...
I have taken both Asacol and Colazol. They did not work well for me; my damaged area was too far gone for those meds to make much headway against the problems the damaged area causes. I don't...
These may be some dumb questions, but I don't know what these things are and/or the differences between them. From recent posts, I can see that they are both painful and dangerous, but that is almost...
I continued to have loose stools after my colon resection last year. The biggest problem for me didn't really seem to be the loose stools, but the GAS. There was just NO holding that crud back and I...
I tried it and it didn't work for me at all...HOWEVER...I tried it during a particularly awful flare and I only received relief from this flare after having surgery to remove the horribly damaged and...
I had been using Phillips' brand of "Colon Health" and found I had the best results (less gas, formed stools) if I took 2 capsules, 1 every 12hrs. My Mother recently talked me into trying Align...and...
I think most irritation after applying a protective cream could be caused by not having the area fully cleaned/dried...and you've just smeared goop on that now holds the 'nasty-fluid' residue against...
Um-HMMM! I'd have *soooo* wanted to throw something. /community/emoticons/devil.gif Soda Crackers? Soda Crackers ! AND Ginger-Ale ! Who knew?! Wow! This is great! Now we can all spontaneously cure...
Advil (Ibuprofen) is the *ONLY* thing that will knock any of my headaches down. Tylenol, Aleve and all other non-ibu products *do not work* for me. I have to stay away from aspirin and...
Two things to add: #1) I have a sturdy, lidded "poop-bucket" that goes in the car with me for any trips. I keep it lined with a plastic bag and keep a roll of TP in there. ALWAYS, at least half a...
I think we can have difficulty with proper nutrition absorption, which certainly can unbalance things and make us fatigued. In addition, when I am even in a mild flare, I do not get very good...
I believe I am happy. Even though I am very limited in what I can do physically, and how far away I can get from my bathroom at times...yes, I am happy. I think it is because I enjoy what I can, when...
I spend most of my time in my home or very near to it. Last year, I bought a "poop-bucket", a heavy-duty plastic, short, round bucket with a lid. I keep it lined with a plastic bag and have a roll of...
I would start taking Folic Acid and/or a Biotin product right away, to help your hair. I absolutely notice a difference when I take it, vs when I don't. I go through rebellious periods where I get so...
Patience is not one of my virtues...but if I must wait, well, then I must. heidi...
Welcome. 6MP: I tried 6MP and it turned out to NOT like me because I developed acute jaundice. Have your blood tests done faithfully and if you get nausea that anti-nausea meds won't control, tell...
IMO, I would try the cheap one first and see if it works for you. I tried the DAC's&CT also, and I had quite a bit of gas with it, so bad that I was having to take extra-strength Gas-X 3x/day....
*closes eyes to send good thoughts and healing wishes* heidi...
I had an open surgery and I wore the gown and men's pants. I'll tell you, that was the *longest* period of time in my life (after-diapers) that I did not wear underwear. 0_o I had a suction-drain...
BRAT = Bananas, Rice, Applesauce, Toast. Similar to using "RICE" for injuries: Rest, Ice, Compression, Elevation....
When I was flaring badly, I disliked eating, because I knew that whatever went in...was coming out. Also, on certain meds (chemo) food didn't taste 'normal', so I was eating less and choosing strong...
I understand your frustration. My Mo.ther was in denial for quite some time after I was diagnosed. She would come up with all kinds of crack-pot ideas for me to try..because so-and-so's brother's...
I wipe there, too. Figure I'm "in-the-area" and everything could always use a pat-down to make sure no moisture is there. I believe the little blood smears are because your anus is relaxed after...
Yay! Reading your posts (Phoebesky, Veebo and Ides) made me smile and feel very happy for you! I didn't feel mis-managed, but I do think my Drs were stumped. I am glad he referred me to my current...
Of course you don't look sick, right? So you can't possibly be as sick as you say you are. That infuriates me to no end. OH! That annoys me to no end! Makes me want to sit in their lap (no...
How do I handle stress? I don't. It man-handles ME! Usually it picks me up and twirls me over its' head, making the room spin and I feel nauseated. Then it bounces me on its' shoulder a few times for...
I eat out, and the only concession I request of the restaurant is to give me a close and clear path to the restroom. I do not care for fast food places (though I will admit to an unhealthy 'jonesing'...
I have seen at least 5 Drs about my Colitis/Crohn's. Initial diagnosis, two others for 2nd and 3rd opinions. Both had the exact same info as Dr. #1. Dr. #1 was okay and we had minimal results with...
Since my surgery, I've been hovering right around 118-122. I'm trying to get to between 125-130, but it just doesn't look like I'll make it. One thing I'd like to do is try to build some muscle. I...
I bought a bag of Myoplex something-or-other (soy protein?) from GNC. I chose the vanilla flavor and I mix a scoop in all of my glasses of milk. I also found that taking immodium tablets and a...
I didn't want to spend the $30 so husband and I chose the $12 Colon Health by Phillips and it helped quite a bit, though I was gassy for half of the 24hr period. I started taking a capsule every...
Ha! I remember the hydrocortisone enemas! The very first one? I was able to hold that one in for 5 min. EVERY enema after that? Maybe, MAYBE, 30 seconds. I was so inflamed that if anything was in...
Thoughts and prayers winging your way!...
Me, too. I believe it is just a result of soft stool being extruded through a rather tense butt. The stool isn't firm enough to make the anus open to allow passage, so because the stool is soft, the...
IM with a short, sharp needle. I alcohol wipe the top of the MTX vial and then the area I will be jabbing and finally my fingertips. *If you let the alcohol DRY it does not sting. If you DO NOT let...
I had thought about just under my hair-line at the back of my neck. Not much opportunity for stretching out of shape, and with it being just a tiny dot over a comma, I could possibly get away with...
Aaaaaaaaah-ha-ha-ha-ha-ha-hahahahaha-hah! I can see it now: Bbbbrrrrraaaaappppp! Why yes, I *do* have a Hemi!...
After my colon resection in 2008 I wanted to get a "semi-colon" tatoo to celebrate! Nope. Haven't done it. I'm such a chicken. heidi...
Gah! I just polished off a large-ish bag of The Vines! ...though they don't seem to give me much problems, it is just a huge sugar rush. I cannot stop eating them. I usually only splurge on them...
Ah-hah-hah-hah-hah-hah-ha! They have my "semi-colon" t-shirt with the dot/comma ; I loved it!...
Advil/Ibuprofin is the *only* thing that will stop my headaches. I cannot take Tylenol or Excedrin, anything with 'acetaminophen, because it will make me FAINT right out and I cannot rest or...
Do you have a local or area News Channel that would be interested in your plight? A human interest type story of the beleaguered, ill every-day person up against the Big Bad Hospital kind of angle?...
I went to a medical supply Pharmacy and bought a sturdy, round, low sided bucket with a lid. I line it with a plastic bag and keep a roll of TP in there. Folded in the backseat is a bathtowel and a...
My resection was almost a year ago (2 days to go: May 8, 2008) and I just stretched my arms overhead to guage my abdominal resistance, and I am *still* feeling a 'tightness' at the very top of my...
When I read your post, I was getting angry at him for putting such pressure on you. "...he has found my illness quite hard to deal with at times..." Yeah? Does he think *you* are having a picnic...
I couldn't fight the Pred eating compulsion. It was crazy: eat a meal and 15min later I could eat *another* full meal, 20min later my body told me it was hungry *again*. When I was at 60mg of Pred, I...
I have used Lidocaine patches. heidi...
So, it goes to your heart from the outside? Where is the access at? (I'm assuming it is on/in your skin somewhere) Is it access for you or only for doctors? It sounds scary, the part about the...
I'm sorry, I have no information to offer, other than I wanted to reply to your query, since you posted it more than 4 hours ago. I had a capsule endoscopy done before my 2008 surgery and I was made...
Late to the party, haven't visited in a while and I'm glad to hear things went well, but... May I ask a dumb question? *embarassed* I think I figured out that SVC is the superior vena cava, since you...