I bought one of those stainless steel stretch bracelets on eBay. The seller has a large choice of disease charms. He had one for Crohn's and one for Pred, so when I'm on Pred I can pop on the pred...
Hi! I just had a resection on Nov.4. Mine was a full open, as I have too many adhesions for lap. I have just gotten to the point where I dare eat more than scrambled eggs or pasta. IMO, for what it's...
My shoulder was on the verge of being frozen. PT helped it tremendously. Very few problems with it now....
I am a wife with fibro. I do not ahve children at home, let that be clear first. I do what you are asking your wife to do. I also have Crohn's and lots of back damage. We own a shop and I help run...
I like to use a pig bristle brush in the tub. It does indeed feel good!...
That is one reason I cna't take Remi. It affects me very badly. The last infusion I had, over 1 yr ago, caused intense pain in my jaws and my shoulders. They were almost locked up the pain was so...
I had an infusion a little over a year ago. The pain in my shoulders and jaw was so intense it almost locked the joints up. I can't believe how bad it was. Thank Jesus it only lasted a few days. It...
Yes it is....
My scar is 23 yrs old and still has numbness. It's natural. No worries....
Hi Jersey! I am having surgery on Tuesday of next week. I have 2 strictures that must go. They are way too narrow. This will be my 3rd resection in 30 yrs. That's good according to my surgeon....
I have bulging discs with stenosis in the lumbar region too. It is very painful. I agree that surgery must be the last resort. Many people get help from surgery, but many do not. Scar tissue will...
If you are that concerned about starting the new job, and not taking pred, maybe it would be in your best interest to go on a liquid diet for a couple of days. Let the gut rest. Usually that helps...
I'm sorry navy! I know how awful that stuff is. I'll be doing it in a week and 1/2, for surgery. There really should be a better way to clean out. Why would they make something that makes you want to...
Inositol is good for helping weather related pain. It is supposedly good for moods too. I have started it, but it's way too soon to know if it helps. L-Carnitine is good for sensitive skin. It also...
I'm sorry Pamela! When we deal daily with the 6-7 pain we figure we've got a handle on it. Then on those days when it tops the chart you suddenly feel very vulnerable and ignorant! It hits home fast...
Every time I go into a flare my tongue coats. Nothing tastes good during it. Have to brush it several times per day cos it gets so thick. I started a flare weeks ago, and while most of it is gone...
Just for posterities sake, my blood reads no inflammation too. I have 2 strictures. I go to the dr and tell him I'm flaring, he tells me I'm not. He finally did a sbft and had to eat a nice plate of...
I am always worse in the winter. If I were a betting woman, I'd take a parley on it (lol)!!...
Pred can defintiely destroy the teeth. But so can malnutrition/malabsorption. Then you have the "normal" bone loss from pred and calcium deficiency....
They always cause me to flare. It can take 2-3 weeks for me to get back to "normal" again after prep and scope....
Immodium and a couple of nice, long menstrual pads. This way even if you do have and "accident", you won't soil your clothes!...
You absolutely do absorb magnesium from Epsom Salts. This is why Crohn's patients are told not to do this. Magnesium will cause all manner of problems with Crohn's. It is also true that it draws out...
I get it, but only in my face. My face flushes with it too. Burning red hot. Odd. Not in a butterfly pattern though. My cheeks in general and down my neck and throat a bit....
I get it alot too. Mostly when I am lying odwn trying to sleep, or if I'm straining to hear something. My head just starts to roar. Funny. Thought I was the only one. BTW, I don't ahve HBP, mine is...
I have Fibro, Osteo, several bulging discs, stenosis, Crohn's, blah, blah, blah. The very best thing I can advise you to do is this; never, ever let this take you down and keep you there. You can...
All the best to you. If they don't help you, I suggest a liquid diet for a few days. Let the bowel rest a bit....
If your pc won't give you a referral you should either ask him/her to do the bloodwork that will show AS if it exists; or, better yet, get a new pc!...
Interesting. But it may in fact be that they just aren't able to get to a dr. Through my research I have found that Ashkenazi Jewish men are the most likely to get CD. I think Europeans were 2nd, but...
I got sacroliliitis with my crohn's. Kind of an all-in-one apckage deal!! I can't complain though, because with the exception of a little pain there now and then, it hasn't flared in sveral years....
I won't take any immunizations or vaccines. I haev read up on them and the stuff in them is so bad. NO WAY! But, to each his own. I won't tell anyone what they should do in this case. But, if you are...
I recommend a neurologist if for nothing more than a correct dx. You don't have to get an immediate surgery, just a solid dx so you know where you stand. I have sacroliliitis and stenosis from...
Hi Tilly! Welcome! Sherrien is correct. You cannot lay around all day. You have to get up and do what needs doing. Try to get soem pain meds to help you out. Inositol is supposed to be very helpful,...
I found a good paper on soy. It has an awful high concentration of estrogen in it. The article is named, "Should we worry about soya in our food?" I found it on google. It seems that most soy is very...
Hi Dree and welcome! I can't take remicade, so I cannot offer any advice on that. I have not tried accupunture either. I eat when I can, and when I can't I go on a liquid fast. I have found DGL...
For me it's a times and seasons thing. I can go for months with little to no pain, and vise versa. I would suggest a liquid diet for awhile. I had to recently go on liquid for 9 days. I now need...
I am sorry deb. I do think it's great that they knock you out! Although that could be dangerous too. When I have gotten certain needles the dr ocunts on you to tell them if you feel a certain thing....
PALady, I didn't mean to imply that no one in India is qualified. My only thought is how do I know they are? At least the imaging specialists here have had the proper schooling. I do know that many...
I am sorry you have so much going on Twiggy. Welcome back. I am fairly new here. I hope you can get some answers, and some help from your dr. I have found that that majority of us get only minmal...
Pamela, I've not been dx'd with either of those issues. I will do some research on them and maybe have a talk when I go to the pain clinic next week. The EXPENSIVE Botox has lasted virtually 2...
I technically don't ahve ddd, but i do have degenerating facet joints. I have bad days and easier than bad days. Does the pain ever completely stop? No....
I suggest you get some scans and/or xrays done to find out if it's back damage, ostearthritis, rheumatoid, or whatever. This is where you should start. But, in my experience, fibro is a traveling,...
I have shoulder issues too. That joint is a biggie. I think alot of mine comes with my neck problems though. Not sure. Have you tried either Lidocaine patches or botox injections? Lidocaine patches...
I cannot tolerate any fiber over 3g. I can only do that amount once in awhile though. Were I to do it everyday, I would flare badly. I can only eat a couple of fruits, and then only sometimes....
I go through bouts of hair loss, but honestly think mine is from the CD flares. That is really the only time it is more hair than usual. I have been on 150mg for years. No problems I am aware of....
Obviously I can't take fosamax, and doubt I would if I could. I was on Evista for year though. It didn't bother the CD and I got good bone growth. I stopped taking it though, because I take enough...
Whenever I flare the pain is so intense it is all-consuming. If you've ever seen Braveheart; it feels like being disemboweled, and someone wringing out the intestines like a wet towel. I get 2 types...
Welcome. Feel free to whine, cry, snivel, bleep or whatever you need to do! This is a tough thing to live with. We all understand....
Have you tried Excedrin Tension HEadache? It contains ONLY tylenol w/ caffeine. It may help a tiny bit more than plain tylenol....
I cannot help you. While I am very active and busy, I am not athletic....
I am going in on Nov 4 for my 3rd resection, but the first in 23 yrs. My surgeon made it a point to tell me they do not use ng tubes anymore. Actually they didn't use one for any surgery I've had,...