Hey All, Still in remission!! I am back to normal, bm's once a day sometimes I even go a day without one. Anyone else tried gluten free or Larabars? I cant believe this was the magic bullet for me....
I will live off ensure the rest of my life before I let them cut on me again. My CD became 90% worse after my resection....
I tried SCD while flaring. I think that was the biggest issue. It was possibly years ago but all I remember is the food I was allowed to eat was very hard on my inflamed bowel ie. Almond flour,...
Cindy. I'm sorry I just realize you posted. I will answer your questions in a few hrs. I just came to update. Had a colonoscopy today. No active disease! The terminal ileum is as narrow as a pencil...
To be honest none of them are great. It def. takes a while to get used to the taste. I think they are all mostly Dates........I like them all except the cherry pie flavored....
noories said... Great news! i gave my GI the finger after every medication combo backfired on me! i've been med-free for 1.5 years now and in full remission! ps: just keep a food journal just in case...
30 days of 100% health. I forgot how it felt to be normal. I was at the end of my rope Failed EVERY drug under the sun and just quit! I said screw it. My MD wanted to increase my Imuran again to 300...
RedBridge is 100% Gluten and wheat free. If you have to have a couple beers these are the ones to get!! I had a few over the weekend and it was awesome...No bloating or anything....
Hello My son recently broke out in a rash. It was red and itchy. raised and inflamed. I gave him a bath in Colloidal Oatmeal and it did wonders for him. I was just wondering if anyone has tried this...
Yes or No...
Hello- I just had the pleasure of seeing Dr. Valentine myself. He's great! Hey Shiney are you in FLA? Are you having any of the scans done? Thanks...
UPDATE I started Imuran yesterday and will have blood work at 2 weeks and then Thiopurine levels checked at 1 month. Its hard to sit and wait!! Im scheduled for my CT Enterography / 18F-FDG PET on...
Yep the test if for Thiopurine metabolites. http://www.ingentaconnect.com/content/fm/pgs/2009/00000010/00000007/art00004 thiopurine metabolite testing has been established as an adjunct to monitoring...
Seems like I can only get it from their website and its SUPER expensive. Is there any way to get it by script? Im in the US any help would be great....
In what way was the VA correct? Im also a veteran. I decided to use my privite Insurance because I was deathly afraid of my local VA clinic as they almost killed me once and almost made me a...
Re point two, I must add that these "newer" scans are not available in all areas, so docs prescribing c/ts and x-rays are not necessarily ignorant of the research, but simply working with the...
Finally got to see Dr. Valentine at Shands hospital at U of F. /community/emoticons/turn.gif Southeastern Center for Inflammatory Bowel Disease Im going to use this thread to track my progress and...
Hey guys anyone tried this? 100% pureed apples oranges, and other fruit. oly has 1g Fiber. This could be a great thing for us chronies!! replaces eating the actual fruit...
Just checking.....
Hello guys and girls. I took Cimzia for 6 months. I hade severe D for the week following my monthly injections. Weeks 2-4 were moderate "D" but really had no pain. My GI took me off of it because he...
Gotta laugh! I read alot of post but usually stay logged out. I have a few questions and was wandering what your thoughts were Quick History Crohns Disease diagnosis in 2005 Prednisone Pentasa MORE...
No the VA about killed me a couple of times. I stay as far away as possible when it comes to my medical treatment. They have covered me for my crohns though....
Thanks I made an appt with him next week to find out what his deal is. What could he be concerned with?...
Hello everyone I am in desperate need for some medical knowledge . I think everyone is aware of " crohns arthritis". I have been seeing a rheumy for this for over a year now. The problem is the VA...
My back issues are degenerative. OI had problems prior to Crohns. However I need bilateral joint replacements for my hips. Definatly pred related.......
I have brought this up before but really hit a wall trying to find answeres.... Here is my issue: LDN taken in small doses bind to the opioid receptor for a short time tricking the brain into...
Thanks, anyone else? I was actul\ally on Cipro 500mg BID for the first 30 days. flared as soon as I stopped the Cipro. All labs are comming back okay. I would use pred but my hips are shot and dont...
When should I notice a change? Ive been on the drug for 75 dayss and im flaring worse than ever!...
First and foremost I would like to ask everyone here to please rate the following medications on a scale from 1-10. 1 being mild and 10 being very hard on the body. Fish oil Remicade Humira Imuran...
Are there any results? I thought tthere was a guy around here that was enrolled.....
Humira is no good for me . I have not tried anything else exept for pred. Based on research I thinking of trying either Rifaximin or Cimzia or remicade. Anyone have suggestions. ...
Whats the latest news on this treatment? I used to hear alot about it. Is it working?...
I think Ill enroll in the U of M trial! Im just wondering if these are worse than the TNF blockers?...
Yea, I go tomorrow. Just nervous......
hello.....?...
Ustekinumab - Used to treat psoriasis. It not a TNF blocker but a IL-12 blocker whatever that is. It is still an immunosuperssive but treatment is only 7 injections a year. The University of Miami...
I had a CT Scan done and got the results. It apperas there is some soft tissue surrounding my thymus. The thymus is responsable for autoimmune diseases. Thymus - organ serving as the site of T cell...
I have crohns disease and just had some blood work done for Lupas like symptoms. Havent been to the doc yet but I did get my results... ANA 1:640 Homogeneous PTT LA 46 (normal <40) Histone AB 2.1...
Good Luck to you and your family....
pb4 have you guys tried LDN? The side effects are very low and it has helped me greatly....something to thik about....
Im 5'7" and never had any issues....LOL I found a 5ft wife...... Have your son tested for HGH deficency. If he is low Insurance must pick up the bill. Mine was normal so I pay the $280.00. My goals...
Anyone out there trying hgh? Ive been doing it for 4 weeks and feel pretty good. Its very expensive though. $260.00 for 20 days. Zorbtive is FDA approved for short bowel.so you can get insurance...
I had it done in november, saved me from surgery. Yes they can do it during a normal colonoscopy but my GI wanted to do it in a hospital due to perferation being a common complication....
Hi I have Crohns disease. I was taking Humira from September 08 to November 08 about 10 weeks. I was taken off Humira by my doc due to weird side effects, Rash on face, numbness and tingleing of face...
http://dsc.discovery.com/news/2008/12/24/candy-canes-germs.html ...
http://dsc.discovery.com/news/2008/12/24/candy-canes-germs.html I just came across this. I was comming here to post...LOL...
I Guess I up the creek then??? Its either stop LDN and take narcotics or Stay on LDN and Take NASIDS... Either way MY gut will suffer....
Hi folks. I feel LDN ( Naltrexone ) has helped my CD. I have not had a flare for the longest peroid since diagnosis in 2005. The problem. I cannot take Pain killers..... Which NSAID is the eaisest on...
Ides, Im assuming your AVN is pred related? I just had an MRI done of my hips which showed Extensive AVN of both hips....
Im not sleeping due to the pain. But overall my energy levels are in the dumps. Sleep deprivation? or something eles. No flu like symptoms....