I have also devloped sever cystic acne on my face and neck. I never had it before and i developed it two months after starting humira. I seen a dermatologist who conducted no tests except looking at...
Hi All i am seeking advice on behalf of my mam. My teenage sister was diagnosed with epilepsy two years ago and to date she has been on 3/4 drugs over the two year period. All of them have had side...
Thanks guys for your feedback. I really believe its the imuran as its the only thing that has changed in my life in the last year and a half. My skin seems to take forever to heal now also. I havent...
Hi All, Long time no post. Hope everyone is keeping well :) This a question for those on Imuran. I have been taking it 1.5yrs now (150mg dose) and my skin is in an awful state. Im putting it down to...
I was diagnosed with Crohns last year but i have a strong suspicion i went undiagnosed for years. I never suffered with Joint pains until i actually got diagnosed. The gi just brushes them off as...
i should also mention im getting pain in the heels of my feet and stiffness/clicking in both my knees. I tapered off prednisolone in december...
Last month Ivy - they were pretty normal - nothing out of the ordinary showed up as far as what the GI said....
Hello all, I need some advise before i run to my doc. I started imuran 3 months ago and am on 150daily. I have been getting severe pain in both my shoulders which spread down as far as my hands. I...
MMMNavy what is an EGD? Ive been chewing on gaviscon and drinking milk to beat the band!...
Hi Nanners, thanks for the speedy reply. Yep am on prednisolone. Do you reckon that would be the cause? Its happening everytime i eat, even if its only a piece of bread....
Any of you fellow chronies suffer with heartburn/indigestion? Ive never had it before but the last couple of weeks ive been plagued by it no matter what i eat or drink. Is this normal?...
i too get this exact rash when my crohns is flaring and when i am not taking prednisolone. (The pred always clears it up) Dermatologist doesnt know what it is and my GI says that is "more than likely...
Prednisolone has twice brought me out of horrible flares. It gave me the energy to get out of bed and get on with my life. I hate the side effects but i can live with them. im still on it and...
Beave - im on 150mgs per day. I too am trying to stick it out but im feeling pretty crappy with it. I hate the way medicine can make this dreaded disease calm down but then you have to live with the...
Hey thanks for that Nanners - ill mention that to my doc. The nauseous is driving me round the bend!...
Thanks Teddybear. I really hate to have to call the doc on it. I was at my normal General Practionner yesterday for my blood work and mentioned it to the nurse. She said the imuran can cause this...
Hi folks, any tips for warding of the horrible sickness in my stomach thats caused i think by the imuran? Ive just recently upped my dose (as per docs instructions) and i swear i have this horrible...
A short dose of pred can sometimes work wonders for people. I found it great but alas i didnt taper very well and am back on it along with imuran. Im hoping for a long remission :) Hope you are...
Hi Conor, Wanted to say sorry to hear you defo. have this stupid disease. But id say it is a relief to finally be able to know what is going on with your body. This is the start of a long road for...
Conor - i get a horrible rash that weeps and itches when my crohns is active. Prednisolone always gets rid of it but my skin always has evidence that the rash was there. Its just another thing that...
im back on Pred & just started Imuran. So once again the mystery rash goes unsolved until i come off the pred. It always disappears when i go on Pred. As for my back pain the GI said it could be AS...
Best of luck Conor - hope you get some answers finally...
Great thanks for all the re-assurance guys. I had a feeling i was being a bit of a worry wort! Im paranoid about the imuran. I know there are some great stories out there about it and also some...
Hi Guys, Just another "quick" one from me to you! Have any of you told your bosses/co workers that you are on immunosuppresants? Im starting Imuran and am concerned i could pick up something in the...
Hi all thanks so much for all your replies. Going on what you guys have said im very positive that it is not AS as the pain is not so severe that i cannot walk or go about my daily business. It is...
Has anyone with Crohsn experience of ankylosing spondylitis? My GI thinks this is what is causing my mystery back pain. Any info much appreciated...
Is Crohns really a digestive problem? i didnt think it was. While i believe that diet can help with symptoms etc of Crohns i dont believe that diet can cure it completely. Maybe im wrong; feel free...
Not sure to be honest. I had bloods before a colonoscopy and the bloods were normal but the colonoscopy showed inflammation. They peformed a biopsy on the inlfammed tissue and it was my crohns....
yep i have conor. Most of the time my bloods come back normal even when i have inflammation....
Took years for me to get a diagnosis. My old gp was an ejit. I eventually switched doctors and my new gp requested a colonoscopy. I had the colonoscopy and a biopsy and diagnosis was made the same...
Thanks for the info Keeper. I think im im going to ask my doc to refer me to a rhuematologist to see of they can help. Re: Back pain -is this normal or something any of you have experienced with...
god Ann my heart goes out to you; you've had an awful time. Im only recently diagnosed (after years going to an idiot gp who kept insisting my bowel problems were kidney infections!). My new gp is...
Wishing you a speedy recovery x...
Thanks for your replies guys. Gail - i was on prednisolone which i tapered off last week and am currently on pentasa. The rash has been with me for almost two years and seems to intensify each time...
HI I JUST NOTICED SOME OF YOU guys are from ireland; what doctors do you attend? How do you find their attitudes in general? Ann - hope its not bad news; ill say a prayer for you....
Hi im back to call on your fountains of knowledge guys! Ive to see my doct next week as i have some back pain under my ribs that my GP is putting down to the crohns, so she wants me to see my doc who...
IM Still undecided as to what to do. Im not in any pain. I think ill give it until the weekend and if it hasnt calmed down ill go the doc. thanks for your advice. Stupid clothes are starting not to...
THANKS patientspiders. Im like a hot air ballon myselF trouble is there is no air escaping! Im on 20mg having tapered down from 40mg. Ive no pain its just pure uncomfortable and my breathing is very...
HELLO all, me again. Ive been on prednisone the last month and im wondering if what i am about to say is normal because im starting to feel a bit unwell and am wondering should i bother the doc. My...
ive off to nyc in three weeks and its the same time as i finish my prednisone taper. Do you think it would be safe to get a tattoo then? its my first tattoo and i wanted to get it done in funcity...
my thoughts and prayers are with u xxx...
Once again i have to say how sorry i feel for americans. We have a free healthcare system in ireland (not without its problems of course). I myself still pay for private insurance just because id...
HI ALl, im hoping someone can help ease my fears so to speak. I want to ask my doctor to test me for lupus but dont want her to think im a paranoid android. My aunt died of lupus years ago and i only...
ive had no surgery thank god but in the morning my stomach is nice and flat. As soon as i eat i look about 4 months pregnant for the rest of the day. It gets me very down as i always get people...
thanks for all your input guys. Reading other peoples experiences is such a big help. I think it is all just so new and daunting that i feel abit lost at times. My aim is to become one of the people...
So im fairly new here and im having a bit of a bad week emotionally! My crohns which was undiagnosed for ages and last week i started prednisone (after unsuccessfull treatment with entocort) For the...
God, reading your post brought back so many bad memories for me. I was diagnosed with crohns this year after having problems most of my adult life. I ended up in hospital with suspected appendicitas,...
I started on prednisone last friday and i am allready experiencing great relief. For the first time in as long as i can remember i dont actually feel sick. However im finding it hard to sleep (this...
Hi screamingbelly ive been taking calcium supplements allright, osteoperosis runs in the family! on a happier note im coming to new york on holidays next month. can you reccommend anything fun to do...
yep keano! its anightmare! Ive had an unbelievable amount of sick leave this year because of it!! So im taking next week off as holidays to stay home, get some rest and start the new drugs, fingers...