Holy Moly! Thank heavens I live in Canada, because after going down to 95 pounds (from 150) and nearly losing my job because of sick time usage, I went on Remicade. After nearly two years on it, I no...
Hi Indigo I have had Crohn's and AS for about 15 years. The symptoms you describe sound like AS but only a rheumatologist can diagnose. Please talk to your Gastro guy and get the name of a good...
I've always approached the doctor nurse competence thing in this way: I am the boss of my body and my medical treatment. They work for me! If I am not happy with things, I tell them so politely and...
nruth I love your post!!! And couldn't agree more, the more I go to the hospital and the doctor the sicker I discover I am! Seriously though, what I have discovered after 15 years of living with this...
CORN??!! Some of you eat corn?... I'm clenching just thinking about it! :) Happy Thanksgiving to all you American Crohnies! Michael...
Pharmacies should be taking them back for proper disposal. Most meds have a relatively short life cycle... no more than a year at most and often much shorter than that. Please don't flush old meds or...
pb4 I hope your daughter will be okay. Don't ever feel bad for advocating for her. We are our own best advocates, and doctors are not gods. Especially gp's, who often have no idea about the...
Krica Congratulaions! What wonderful news. I hope and pray that things will be well for you and your baby. Michael...
Hurrah for you Stephen!!! I'm so glad everything went well and you are experiencing some relief. I hope you have a long remission! Take Care Michael...
Just a wee note to say that frequent bowel movements can indeed indicate a blockage... in that only liquid can get out. I, early on, thought I was constipated because I was having only frequent but...
mom1978 I'm not a doctor but what you are describing is definitely not IBS! Sounds to me like you need a second opinion. A colonoscopy will not always show active disease if the scope doesn't get in...
txguy0419 So sorry to hear you are having such a hard time! Hopefully you will be on the mend soon and will enjoy a strong remission. This DD does suck hard, what?! Good luck! Michael...
Hi! I'm just grateful to live in Canada where this isn't an issue. Except of course for paying for drugs... we don't have a national pharmacare program here yet. It saddens me to hear about people...
Hi Roxette I have both Crohn's and AS and struggled for many years to get both into remission. Everyone's experience is different, but I found myself using canes to support myself when I wanted to...
Remicade and Methotrexate have been great drugs for me. I was down to 94 pounds and suffering from a severe flare of the Crohn's and my Ankylosing Spondylitis was crippling me; now, nearly 18 months...
Stephen Hope you are on the other side of surgery and finding out that you are okay. Keep us posted about how things are going please! Sending good thoughts your way! Michael...
Miguel Good for you ! I hope things only get better and better for you. These diseases can get you down pretty low... good doctors, knowledge, a sense of humour and a good support system will get you...
Hi As I've mentioned in a previous post Remicade and Methotrexate have worked miracles for me! I had been in a flare for two solid years, down to about 94 lbs, usng my canes for the spondyitis, and...
Hi stephx Relax! Surgery is a big deal, but you can get through it and I bet you'll find afterward that all the anxiety was for naught. Expect some discomfort and tell the nurses about any pain......
It took about 2.5 years and three GI changes to finally get a diagnosis. By that time I was down to 90 lbs and had developed a fistula and abscesses all over the place. I was quite a mess for a while...
Hi lil momma I have had Crohn's for 14 years and had three resections and an adhesiotomy, along with many complications. I haven't had a solid bowel movement in 16 years.... altough many people I...
Navy Wishing you a speedy recovery. I am new to this forum, but am overwhelmed by how caring people from so many different places can come together. We crohnies have to stick together! Good luck to...
My last flare before going on Remicade saw my weight go down to 94 pounds from my usual weight of about 135. Since starting the new med regime I am in the strongest remission I've ever had and now...
I have not had to use my canes in more than a year afer being on Remicade and Methotrexate. These drugs have changed my life! Good luck to you!...
I've had three surgeries for CD and my recovery time depended on how much bowel they took, complications like fistulas or infections, etc. My CD never went back into remission after surgery, so that...
Just joined this forum myself today and am finding lots of useful info. I've had a bad time of it over the yers but Remicade has been a wonder drug for me. Keeping my fingers crossed that it...
I have been taking Remicade every six weeks for 18 months. It costs about $3600 each time. Luckily I have insurance through my work and I only pay a $10 copay fee. It's been a wonder drug for me. I...