Thanks guys just thought I'd share my good news with my support team of super fabulous crohnies. I am hoping everyone else has some good news to share soon because lord knows we get our fill of the...
I am in the same boat. My crohns is doing really well with remicade but I have severe joint pain everyday and it is worse after activity. I am on hydroxychloroquine or plaquenal 400 mgs a day, it...
I get them about a week after it use to be the day after then it gradually moved out to about a week after.Usually it is severe joint pain for me so I take benedryl that's what the nurses told me to...
So I Just got promoted! I am really excited about the job I am a supervisor now and I am enjoying work so much more now. The stress is still there but it is different stress it is for me the kind I...
thats cute gail i will have to remember that :)...
oh that makes so much more sense than laugh out loud! thanks sniper...
so i have always wondered when you sign your name lol.gail if the lol part was for the standard laugh out loud or something else? I don't know why but i have always been curious about that :)...
soooo I have really struggled with body image from prednisone side effects but I have been on 1 mg for 2 months now and my severe bloat and moonface is gone! (still have a little extra weight)....
I'm sorry hon I completely understand they are all over my arms so i only wear long sleeves or 3/4. they are also on my abdomen thighs and butt. I 've tried everything so now I am just waiting for...
crohns daddy I was thinking the same thing. I understand what you;re saying of course we need to be careful but if you are having a low quality of life and something can fix it then embrace that do...
Today one of my co workers said " your face has slimmed down" then I said thanks, then she said " BUT YOU STILL HAVE SOME HIPS ON YOU" True story and I was never fat before prednisone in fact I was a...
I understand you there I am only 20 taking 4-5 percoset a day just to function along with about 5 other pills and remicade infusions. oh to be young !...
thanks guys told him several times I was nervous about it and my pharmacist looked angry that the doctor would do that I guess Ill call my GI....
so the rhuemy put me on Nsaids and I said that I am concerned about a crohns flare but he just kind of said if it happens we will stop. he tested me for ankylosing spondylitis and I am now going to...
Just to set the record straight I have no intention of perusing legal action I was just venting my frustrations. I am very aware it would be almost impossible to prove but I am wanting to go down...
most likely it is your body saying hey where is my remicade! I started getting sick about a week before my infusion....
Thanks guys, I am really upset about it but it is a huge company so I am not going to push it and my friend in management has FMLA too and I don't want to make her a target or put her in that...
nope they turned me down because I have it and use it when I need to I am far from maxed out....
I just found out from someone I am close to in management that I got turned down for a promotion because of my FMLA. I was super disappointed because they told me my stats weren't good enough. hmm a...
Hey guys I have missed a lot of work, I am trying but a lot of days I just cant make it. Any ideas of how to get some extra cash on the side. I was thinking ebay, but I was hoping for more ideas. It...
MMMNAVY I am so glad I am not alone! honestly I am the exact same way constant daily abdominal and joint pain. I am constantly on pain meds it sucks....
I dunno I had an anxiety attack yesterday and left work today I am going in late because of joint pain. Does it ever stop? Will I be able to get through a full day of work? I just want to be normal,...
I have been on it since October and I was tapering 5 mg a week and when I dropped from 5 to 0 that is when I ran into problems. I was the most nauseated I have ever been in my life unable to eat...
so I am back on prednisone that was a short lived 5 days off and then I went into shock so I am back on it. Just a reminder slow and steady wins the race so taper slow. Because adrenal shock is some...
I have officially been off prednisone for 2 days!!!!!!!!!!!!!...
good call Ivy I didn't think of that, definitely a good idea to make sure they are okay to take with your other meds. I hope you are doing better kam....
I have to take pain meds or I can't move , when you are in pain you deserve to be treated. If your GI gets upset then that is his problem he should be giving you what you need. I don't understand...
keep pushing through celey. I know its hard but you are a stronger person for dealing with this disease. It's okay to have these bad days, just relax, sleep and tomorrow will be a new day. Keep your...
i was reading your blog and noticed the osu sweatshirt, where did you have you surgery done was it in Oregon? I am in Oregon and my doctor is referencing surgery he said he would send me to portland,...
so today I came into work with intense pain in my stomach and joints feeling really crappy but putting on a happy face. I actually even left early today because of the pain, anywho I open my email...
I have crohn's colitis too and I have been with my boyfriend for almost 4 years now. I have been DX for almost a year and he is the most supportive person ever. I know what you mean though most guys...
he everyone i have been on 10 mg of pred since tuesday and every week i taper by 5 mg so next week I would be on 5 mg. I really want to get off of this seeing as how I have been on it since October...
Sorry you are not sleeping well! My gi prescribed me 2 oxycodone at bedtime for my abdominal and joint pain a week ago and I am finally able to sleep. Maybe they could look at giving you some pain...
sorry i meant your pain is legitimate not illegitimate. Percoset is making it hard to type tonight :-)...
sorry my reply sent before I finished typing.... anyways I know it is tough too see your body go through these changes and still not feel better. It can be overwhelming at times and its okay to get...
Hang in there K! I have always been tiny until the evil prednisone and I gained weight too...
My boyfriend and I are talking about buying our first home and when I am looking at listings one of the most important things to me is if it has 2 bathrooms, 1 bathroom makes it a deal breaker lol....
Your doctor isn't the one experiencing the pain, I would like to see him have crohn's for a day then tell you that you don't need meds. I take percoset daily and have had severe pain since February....
thanks songstress I needed that! I don't know what I would do if I didn't find this website. It is nice to vent and have people know exactly what you are talking about and fully understand....
So I am having a rough day, I am in a lot of pain with my joints and my stomach. I called in and said I would be in late to work but now I don't know if I am going in at all. I am just so tired of...
pumpkin seeds omg I love them and have been craving them for weeks but sadly that would mean a lot of pain! I also love salad with ranch dressing but that would be a night on the toilet :(...
Thanks guys I really appreciate it!...
1) you start at 2 weeks, then 6 and eventually 8 weeks apart. But it really depends some need it more often than others. 3) It cost $7,000 for each infusion, luckily i have reached my max payout for...
no msn, sorry but I have email :smile: do you know how i could send you my email without posting it for the whole internet to see lol?...
hey celey we should chat! being the same age I am sure we are encountering similar issues!...
My main issue isn't their appearance, although at 19 I don't enjoy having giant stretch marks, my main issue is that they are super painful they are deep rips in the skin. I am trying mederma and...
So I have gained weight from being on prenisone for the past 9 months, now that I have tapered down to 15 mg a day I am seeing some of the weight come off :). The down side is that it has thinned my...
wednesday2007, I know exactly how you feel I have those days where my positive "it will get better" attitude takes a back seat and I need to just cry! Of course the prednisone makes those days more...
I have really been struggling with my sick leave and guilt and this has made me realize that I should just say screw it! I mean I am there a lot of the time when I should be sick. My co-workers don't...