Hi there, I just wanted to let you know that the same thing happened to me when I first started Azathioprine. It was horrible, I'd have canker sores covering my mouth. I called my doctor, and he said...
Tsitodawg, That's great that you were able to go back on it. Unfortunately, I wasn't. I wasn't even an hour into it before I had tightness in my chest, trouble breathing, and I got really hot. So no...
If it were me I'd avoid Remicade for as long as possible. Once you're on it, you can't come off of it and then restart later, so it's a life decision. I would probably try to find other avenues of...
When I was on it I didn't have any reactions. I got 1/2 a dose of Benadryl because that gave me a worse reaction than the Remicade. When you get it, they'll weigh you, and you'll have to wait a 1/2...
I don't know what they gave me for my last c-scope, but I do remember the nurse pushing the drug in my IV and I was done for. Next thing I knew I was in recovery wrapped in a blanket. They got me...
Had another visit with the doctor today since I've been in a flare for 3 weeks. He's keeping me on 60 mg of Prednisone for another 2 weeks. He did tell me that he rarely goes that high with patients,...
Thanks Gail. I've never had a blockage or stricture before, so I have no idea what one feels like. It was a little better yesterday. I had it happen a few times, but it wasn't as intense nor did it...
Hopefully someone can help me out with this. I've been flaring for 19 days. I was on 40 mg of Prednisone for the first 14, then my doctor bumped me up for 60 mg. Around day 15, I started getting this...
I was on Remicade 3 years ago and then stopped it. Last Tuesday I started it again, my 1st infusion. Today about 5 pm, my neck got really stiff, along with my back and right knee. Now, at 8pm, I can...
My GI gave me an Rx of Oxycodone for pain a while ago because he couldn't figure out why I was in so much pain in my back. I cut them in half because they are too strong for me, which is actually a...
I work retail. I'm lucky I have a job right now, but I've been at the store for 4 years, so I'm holding on tight until I can find something else. Check out Craigslist for your area, and if you have...
I had the flu 2 years ago, and it led to getting a flare, I think because of my immune system being down. But it was a mild flare and cleared up when the flu did....
Is there a way to find out how much insurance is going to pay for before I start the treatment? I'm assuming I can ask the Dr. office and they can find out for me. I go for TB test tomorrow, so I'll...
Sean I read about that. I'm going to ask him about it, but he is really certain that this is one of my best options right now....
Just back from Gi visit. Seems as though I'll be starting Remicade again. I was hoping to avoid it. I was on it 3 years ago with good results, missed a couple of appointments, and was doing so well...
I was born March 4, so neither rings true for me....
Both of my flares have come right around Thanksgiving and Christmas, unfortunately. The first one (pre-diagnosis) started mid-October and continued until just after the New Year. The 2nd one (that...
Hi there. Sorry you have to be here, but it's a great source of information. You'll find that this disease is highly individualized, and what you can eat can vary day to day with how you feel. When...
Oh my how could he eat toast! I had VERY strict instructions for no food today, and nothing after midnight. I stuck very well to my list given to me by the office of what I could eat. I plan on...
I think I spoke too soon! Things seem to have started moving a bit. I want it to start, cuz that means the sooner it will stop!...
I'm currently doing my prep for my C-scope tomorrow. I'm just finished liter 1 of the 4 liter container. My instruction sheet says to only drink 2 liters if things are running clear. Well, nothing is...
I stopped at the pharmacy today and got my PEG3350 prep for Friday. I saw on the Rx that I was supposed to get the drink mix, and 2 bisacodyl tablets. Well, I didn't check the bag before I left, and...
Hi all, I was on 40 mg of Pred for 22 days when I finally got in with my doctor. He was surprised that I was still in pain, so he gave me something for that, but shocked I was still having 15+ BM a...
At my last visit my Dr told me I could take Immodium to help slow things up while flaring. It's been a God send. I went from 15+ BM a day to around 4 or 5. But that could have to do with him lowering...
My GI told me it doesn't work as well if you come off of it and then go back on it. I was on it 3 years ago, and stopped taking it (I don't remember why - I think I missed and appt). Now he's talking...
I've been having severe back pain for about a month now. I have an emergency appointment with my GI on Friday to discuss it, I'll try and remember to come back here and let you know what he says. I'm...
I have a scope scheduled for next week. My prep is to take 2 Bisacodyl tablets and then drink PEG 3350. What exactly are these 2 things. I have a pre-written Rx for the drink that I'll get next week,...
If I feel OK, we are going to go to a section of town where they have a big outside party. There is food (won't eat any) and drinks (won't drink any). They block off the streets, and play music and...
I take children's vitamins. I have to take adult ones with a huge meal otherwise I get terrible nausea, and I hardly ever eat meals that big. I've been told by a couple different doctors that...
Hi all, I've been on 40 mg of Prednisone now for 15 days, and there has been no change in my flare. Still bloody D, cramping, back pain, getting up 5+ times a night, nausea etc. Of course the Dr....
That's interesting. With my back completely cramped up, pelvic pain, and joint pain, the only OTC meds that seem to affect it is IBprofen. Tylenol won't touch the pain. Unfortunately I just talked to...
Hi all again, I am in such severe back all weekend. Just a constant ache from my mid to lower back. I am using a heating pad, but as soon as I come off of it the pain returns. I called the on-call...
Hi ChronicallyIll, I'm 24, diagnosed at 21 with CD. Like you, I'm absolutely terrified of surgery. I have a c-scope on Jan 9th, and I'm so afraid that I've done some sort of irreparable damage and...
Hi Pink, I'm currently involved in my 2nd flare. For me, it involves blood in my stools, then it advances to just blood. I get nausea, severe cramping, lower back pain (basically my entire equator...
Thanks for the information on the Pepto. I didn't know they could interact badly. I guess if my doctor would call me back, I could know these sorts of things. I was able to eat today for the first...
Thanks CrohnsDaddy. I'm pretty sure I have an open sore, as I was bleeding pretty heavily before I started all the meds, and I still have some bleeding, mostly in the mornings. Patience has never...
Hello everyone! I just found this site, and it's been a great help so far. I'm 24 years old, diagnosed Dec. 2005 with Crohn's disease. Luckily mine doesn't seem to be too terribly awful, but right...