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nruth, have you tried any of the cholestyramine drugs, Questran being the most popular? After 2 bowel surgeries the d can be caused by bile salts which in healthy people are absorbed in the ileum....
Dave, I believe that Custom Probiotics Starter # 2 is not legal because it contains B.Longum which is bifidus. Moodindigo...
Years ago I had the same symptoms you are describing--"pounding heart" and tightness in the chest. My doctor sent me for esophageal mannometry which measures the pressure in different parts of the...
Dunny, After my third resection, my doctor ordered Questran for me, a drug that absorbs bile which can cause D. Bile is usually absorbed in the ileum and when that is removed, the bile passes into...
Zanne,I wanted to suggest another product that you might tolerate better than Ensure. It's called Boost Breeze, and while it contains 250 calories, it has no milk or fat. It could help tide you over...
Hi,T-Missouri, I developed erythema nodosum and fever shortly after I started 6mp. My doctor and I both thought it was from the drug. When I stopped the drug, it disappeared. Since I never tried...
kjones27, A relative of mine had a condition called intessuption: Intussusception (in-tuh-suh-SEP-shun) is a serious disorder in which part of the intestine — either the small intestine or colon —...
Nanners, I notice in your signature that you are on Estrace. That reminded me of the time I was called back for repeat mammograms because the radiologist noticed a dense area in one of my breasts. He...
Audrey, If you have a well qualified surgeon, you already have the best chance for a successful surgery. He has to tell you about the worst possible scenario (a bag) - I'm sure he will make the best...
I took Humira three years ago for about 5 months and stopped mainly because I had a bad rash that was diagnosed as psoriasis. I never had psoriasis before I took Humira. Usually derms can diagnose it...
CH and Roni, I had my first of three surgeries in the early 60's. At that time the thinking was to take out some healthy bowel at each end of the obstruction to make sure to "get all of the disease"....
I took Humira in 2008 for about 6 months. About 3 months in I started noticing a rash, however I continued taking Humira because I had a good initial response. The rash became severe after a while...
Nanners, my pain was not severe enough to require pain meds. The pain would last for weeks or months sometimes and then subside. That made it even more difficult to diagnose. I don't underestand why...
Zanne, I also have had three resections and periodiaclly have had odd pains that my doctor has attributed to adhesions. I have never had anything as severe as your pains, but I think it could be a...
Gail, I notice that you are taking asacol. Some years ago when I was on that drug I was living with some moderate to severe joint pains. I used to have to walk down stairs backwards, lift my leg with...
Hi Aimee, I developed a severe case of psoriasis shortly after starting Humira. It's now a year and 1/2 after I stopped the drug and I'm still dealing with psoriasis. I never had it before. It's a...
LauryLu I use a product called Resource Breeze by the makers of Boost. It has 250 calories and taste like a fruit drink. No milk. I didn't tolerate any of the drinks you listed but this one seems to...
Hi irv, I've been taking Questran for years and one hint I can share with you is to reduce the amount of Questran until you find the least effective dose. It's not necessary to take the whole sachet,...
Jasper01, He comes very highly recommended from a few doctors I know in the Boston area. I have family there and I wouldn't hesitate to see him. Moodindigo...
Another arguement in favor of worms.... http://www.nytimes.com/2009/01/27/health/27brod.html?_r=1&ref=health Moodindigo....
Camjames, I've had baloon dilation about 4 times before my last surgery and it probably postponed the surgery by about 5 years. I would also do it again, in fact I may have to. Moodindigo...
Laurylu, Both Entocort and prednisone are steroids---the difference is that Entocort works mainly in the intestine- only about 10-20% is available outside of the intestine, while prednisone affects...
Broomhilda, That's putting it mildly! I take baths with an Aveeno product that contains mineral oil and oatmeal---sure keeps me lubricated. Funny, you got psoriasis from Remicade and not Humira....
mkl11, I am one of the few who got a severe case of Psoriasis from Humira. Spent time in a psoriasis center getting phototherapy and baths with coal tar. It was no fun! If you type "Humira induced...
NostraHistoria, Thanks for that information. I've been on and off Entocort for a few years at various dosages (3-6 mg) and would hate to have to stop it. It's been helpful for me, although I always...
Hi Blossom, I've been preoccupied with family so I had to put off my response. What good news you responded so well to Humira! I hope it continues for you. I had a few good months and then it stopped...
Hope I'm not breaking rules by sending this. http://online.wsj.com/article/SB123059825583441193.html The title is "The FDA Is Killing Crohn's Patients" Moodindigo...
Chasity, I took Humira for about 6 months and stopped because it stopped working after an initial good response, but mainly because I got an increasingly severe case of psoriasis--a condition I never...
Andorable, I found that it is important to take Questran before eating any foods containing fat because when fat enters the stomach it triggers the release of bile. Without the presense of Questran...
Zanne, I think you're referring to Colestid--- the pill. I used a hammer in an attempt to crush it into a powder, and also tried a mortar and pestle without success. That's one really hard pill!...
Hi Andorable, I've been taking first Questran and then Questran Lite successfully for many years. I believe Questran is flavored with sugar while Questran Lite has Nutrasweet, otherwise they are the...
Dunny, I have no experience with lupus, but I do with a rare side effect of Humira--- psoriasis. A rheumy told me that Humira remains in the body for over 50 days after you stop taking it. I found...
SCD, You got a lot of good suggestions--I'm going to add my thoughts. My understanding is that in a healthy person, bile is reabsorbed from the ileum and transported back to the liver. When the ileum...
Thanks Blossom, I checked out the CCFA site and other entocort sites. I learned that "continual treatment for more than 3 months has not been shown to provide clinical benefit". Apparently it's not a...
Hi Blossom, Even though your outward symptoms are mild, a stricture at some point can lead to obstruction. As much as a medication hater that I am, I would think it would be a good idea to be on...
Hi Blossom, Right now I seem to be tolerating Entocort. I too am allergic to Pentasa. I get skin issues with many drugs....including the contrast dye called Optiray. Huge rash lasting almost a month....
Blossom, I am another one of the rare individuals who got EN from 6mp. In my case I had fever also. My doctor was very surprised but it was one drug side effect that he could actually see. So many...
Packfan, My dermatologist had no problem relating psoriasis to Humira. I started Humira in Oct 07 for CD and stopped in March because I had what she diagnosed as severe psoriasis on arms, legs and...
Sniper, It's not likely because it's very rare, but I was one of the unlucky ones to get psoriasis from Humira. A biopsy should clarify this although my PCP said any 1st year med student would...
MyLife2, I get frequent UTI's when I am on Entocort. The same thing happened when I was on prednesone. My GI and my Primary care doctor tell me that Entocort works mainly in the gut, and that it is...
Hi JP1, About two months after I started Humira I woke up with a black eye. Also noticed a bruise on my leg. My doctor felt I could continue taking Humira. Shortly after that I noticed a rash on my...
misterie- I had different symptoms from the ones you described. What I felt was constant painful irritation and tenderness---my eye was never red or stuck. It sounds like two different conditions! My...
Misterie, Immediately after I had surgery for a cataract in my left eye, I noticed some pain in my eye. Cataract surgery is painless --this was unexpected and the surgeon said this would disappear....
buzzifingers, Perhaps you could try taking something like Gelusil. (It's an anti-gas.) It might help you get rid of some of the gas and you could see if the gas is causing the pain when you breathe....
Have you had your EN biopsied? The way you describe it, it sounds very much like psoriasis which is triggered by infections and viruses and appears on arms and legs. I guess I have 'Psoriasis' on my...
OHCrohns50, A few years ago my doctor wanted me to try 6mp, which I think is similar to AZA. Less than a week later he diagnosed EN on my legs. I was happy to be in his office at the time so he could...
I'm one who experienced new on-set psoriasis from Humira. It's pretty rare but not unheard of. Seems to be resistant to treatment. I started coal tar rubs with phototherapy recently----rather be at a...