Hello everybody. I had right hip pain about 4 weeks ago. I went and saw two doctors, they told me it was inflammation from my Crohn's or a muscle sprain and gave me muscle relaxers. A couple days...
Hello everybody. I am in so much pain and my doctors will not do anything for me and really do not want to go to ER. (but may have too). On my right side, I popped my hip last weekend and I have pain...
I have a stricture in my throat for the last five years. I have almost chocked to death on steak, chicken, peas and my pills. I have to either crush or cut up my pills to get them down. I even got...
Hello Everybody. I have a couple of questions maybe some of you can help me out. I applied for SS Disability and got rejected. They told me one I was not sick enough (Ha Ha, 9 open wounds of my...
I was diagnosed at nine years old but before that I had all the symptoms. I went to er several times could not eat, lost a lot weight, threw up all the time, fever/chills, killer stomach pain, going...
I have used fleet brand or you can use the generics all the same. A box cost 2.00 for two. There are only two factories that make enemas. I found using first thing in the morning is the best. Good...
Hello. I get backed up alot with what I have going on. Use eneymes for two days, it will come out. My Gi explained it this way at the end of your track everything has built up and become hard so the...
Hello Everybody..I remember my first questions to doctor when I was nine and they told me I had crohn's. Will I live and how long do I have? I asked these questions because they had told me I had...
Hello. My ankles and legs swell every time I am lacking blood and retaining fluid. Then after a couple of days of getting filled up with a blood transfusion ( seven this year already) they go away....
Nanners, Hope you get well soon. I will say several prayers to get you thru this rough time. Good Luck, Mr. D...
Hello Everybody...I went to two doctors today and neither one of them helped me with my problems. They pretty much let me decide what treatment to do for my problems. My legs are swollen left leg has...
I have had 12 surgeries on different fistulas in my 30 years with crohn's. My lucky number 13, I am dealing with now has to close with Humria because it is to big of a risk to open me up. They did a...
Thanks for the kind words. They did two ekg's on my heart last week it is fine. I have leg swelling almost every time I lose blood within 48 hours they go back to normal.My shortness of breath has...
Hello everybody..Had to go ER on Sunday night because I could not breathe, had no energy, pain in chest and lungs and right leg got huge from calf down to my foot. Was in ER for six hours they...
Hello Fuzz. I did both last wednesday. It is alot better only have to be knocked out once. But My endoscoping did not come out so well, they took a biospy and I have a major candid yeast infection in...
I was on remicade for three doses and then I had the side effects. The biggest being the fistula and open wounds it gave. The risk involved is that I weight 90lbs., have no blood, and have 7...
My open wounds have all closed but one and it is not draining much because of Humira shots are working. But my new problem is that all the drainage and food that is not digesting is going thru my...
Well Nanners, we are in the same boat..I have to have cataract surgery also. I go in friday to set mine up. The eye doctor told me same thing it is from my Crohn's and over use of steroids. ( I was...
I work for a major retailer as an ASM and I told my District and Store manager, I had Crohn's during the interviews. I did not go into much detail, just that my disease was in remission, They hired...
What do some of you do when you are in so much pain..Your meds are not work..You are praying your pain would just stop...You are questioning WHY ME...What do you do take your mind off it?..Is there...
Sorry to hear about people sticking their nose in your business. But I have the problem the other way, I only weight 94 pounds right now. I get do you have cancer, are you a druggie, or my favorite...
Hello CD89. I have a fistula that is connected from my small bowel to my bladder. I had this for the last 18 months and it is the worst pain ever. It started with gas/air and brown and black liquid...
Hello Everybody. Last Wednesday morning I had a Bladder scope. Doctor said shortest he had ever done, 90 seconds. They gave me three numbing shots and as soon as they got the tube and camera in me, I...
i have cataracts that will need to be removed down the road when I am better. I also have behind my right eye an ulcer that blocks my vision and I have to go antibiotic drops for two to three weeks...
Hello everybody. Has anybody had any success with alt treatments for pain and helping your Crohn's. Such as Accupunture, Oxygen Chambers, Hypnosis, Etc. I was told by a doctor that I should look into...
I going to do couple of posts for different questions. I have lots of gas/air coming out three areas ( a trifecta). One, the normal area where it should come out. Two, out of my open wounds on my...
I have been on Loratab 10 for the last two years. I think they are not working that good anymore. So I ask my GI Doctor to give me something stronger. He told me that is as strong as he will go with...
I am currently dealing with a fistula that is connected to my bladder and is running thru my small bowel. I have eight holes on my stomach that has drainage coming out of them. My opening to my...
Hello Everybody...I have been having a tough time with my legs and hips hurting extremely bad. My doctors told me it is lack of blood and my infection or my arthritis. The only relief I seem to get...
I have been getting the chilis/shakes for the last year off and on. It from my infection in my blood that they can't get under control. Also, I was told it was lack of blood, no iron, not eating...
Hey Questions for everybody about work. Do you work ft or pt and if you do work on days you are sick how do you make it?. I work as a manager in retail and somedays are ok but other days I want to...
Hey Silver. With my Fistula that is connected to my Bladder, I have a UT Infection. I went and saw an Infectious Disease Doctor. She ran every test you can think of blood and culture wise. They told...
I can't have surgery to repair mine because three surgeons told me if they opening me with my problems, I have a 50/50 or less chance of living thru it. The problem I have with the fistula, it is in...
Hey Sniper. I can tell you it does happen..I have a fistula ( the size of a quarter) right on my Bladder connected to my small bowel for 1 year now. I never thought what is coming out of my private...
I have my TPN and Antibotics running thru my Picc line. I keep it clean that is why it was in for over a year. The problem the drs. think was that my infection was coming up from my open wounds and...
Hello Everybody. I have a Picc Line in me for 14 months. I had the original line in me for 12 months until it got infected. They found out when I was in the hospital the infection got into my blood...
Hi KJ. Sorry I didnt get back to you last week. I just got back, was in the hospital for my first humria dose and getting more blood and iron. You ask about when I was nine. I had lots of pain,...
Hello. I am somewhat of a new member, I use to be on here from 2001-2004. But I went into remission with a couple of flare-ups for the last couple of years. That is until last october when I got...