My husband has Trigeminal Neuralgia and has suffered excruciating pain for five or six years. He has taken tegretol, lyrica, gabapentin, and vicodin. His pain was mostly a ten all of the time with...
Sorry to hear you are suffering. My husband has TN and has suffered excruciating pain for five or six years. He has taken tegretol, lyrica, gabapentin, and vicodin. His pain was mostly a ten all of...
This could be the start of trigeminal neuralgia, my husband's had it for years from lyme. Hopefully not but if it persists, see a neurosurgeon. Good luck, Miss...
You may want to look into something similar to the Cowden Protocol or other natural treatments. Miss...
Best of luck to you. I started LDN in November of '08 and it's still doing it's thing for me. Currently, it's the only drug I'm on! Miss...
My husband and I were at the hospital the other day for an un-lyme-related issue. There's a guy in another room around the corner with his kid and we hear this conversation between him and the female...
This might sound strange and it came from an alternative source. Lyme patients livers sometimes do not work properly, my husband's liver enzymes have never normalized since he got lyme eight years...
I should have probably posted that we did not eat the meat from that deer. The only reason that we knew there was something wrong though was because the part where my husband shot her he tossed that...
These tests are just so inaccurate who really knows, ya know? My husband definately got his lyme from cutting himself while skinning a sick deer. He never had a tick bite at all. It was just two or...
I got off the pred in January and have been doing very well with just LDN ever since. I have 2 normal fully formed BM's most days, occasionally 3. I don't remember the last time I saw blood, which...
If you go to www.lowdosenaltrexone.org and join the yahoo group there are thousands of members that have taken LDN for numerous years for many different disorders. My doctor just faxed my script to...
www.lowdosenaltrexone.org ...
I don't think the second study is quite done yet. Don't expect to hear about those results for a while yet. Miss...
Also, do you find that in the summer you're healthier? It's like a pendulum for me, I wonder how much my Crohn's is connected with Vitamin D. Winter is sick, summer is health. Seasons, indeed My...
I truly feel that LDN is the only reason I am off pred. I started LDN mid-November of 08 while still taperring pred. I think I was somewhere in the ten to twenty mgs range. The two were probably...
There are many women on the ldn yahoo group that took ldn while pregnant with no problems. Miss...
No problem. The one I'm taking came from my kinesiologist but the bottle says MMS Professional PGL International and there's a site and number on the back of the bottle. The MMS is dosed one drop to...
The kinesiologist we see has people coming from all over, even out of state. I have never met anyone in the waiting room that said he wasn't right on. He even teaches and travels all over the country...
My husband also alternated with quina so I'm assuming it also attacks the lyme. I guess banderol is another one? He was taking something for drainage along with the drops. Drainage insures that the...
I had major bleeding issues, was severely anaemic. This was initially brought under control by remicade but then restarted and I had too many sides from the remi. I have been on LDN since...
The reason for alternating is because the lyme will eventually "hide" from one and it will no longer work. It is also recommended to take one and a half days off between switching so that gives the...
So happy someone else here brought this up! I have been taking MMS for several months now with tremendous results. It was mentioned on another forum and I looked into it and it has done wonders for...
I got thrush the very next day after my first remi infusion and also right after the second infusion. Miss...
I have kept a food journal for six months and have found absolutely no food issues setting things off for me. It's my cycle and hormones. I can be fine for three weeks then boom, bleeding and D and...
Glamourgirl, You aren't even at full dosage yet, you have to give it some time. Sometimes it takes several months to notice any difference. I've been at full dose for three months and still have some...
Bookworm, my energy levels have been great since I started LDN. I'm assuming from the endorphin boost. I also sleep much better now, sometimes get up once to pee. I'm sure more sleep helps the energy...
LDN is definately worth a try. It's the best thing that I've tried. Remi worked very well for me but I had a lot of sides from it. Good luck with whatever decision you make. I was thinking if LDN...
Hey bookworm, I just took those sides from remicade as a sign of my body rejecting the poison that it truly is. At this point I feel that LDN should be the first standard form of treatment for...
I was having a lot of reactions to the remicade from the very first infusion. They even gave me benadryl before each treatment. I worked very well for me until my first monthly cycle kicked in then...
My only issues ever have been bleeding with D and mostly around my period. I started LDN mid-November and was up to full dose by the end of November. I am definately better than I was. Most of the...
The best thing to do with the ldn yahoo group is to set it for no email and just check the board or sign up for the daily digest and you can skim over that in a few minutes usually. I've been on ldn...
I am so sorry to hear of such a little one with these problems. I can't even begin to imagine what you are going through. You should definately check out low dose naltrexone, it has done wonders for...
I started at 1.5 for a week with no sleep problems. Went to 3.0 for a few days, then to 4.5 and been at full dose ever since, that was around mid-November. I did have a few dreams but nothing freaky,...
You may want to look into Low Dose Naltrexone before resorting to surgery as well. More information can be found here http://www.lowdosenaltrexone.org/index.htm Just another option available. Miss...
Hi Melissa, I hope you used a compounding pharmacy that's familiar with LDN like Skip's. I was on 20mg of pred and LDN at the same time, down to 2.5 mgs this week then hopefully off the pred for...
Hi Andrea, I take my LDN each night around nine thirty before heading to bed. I normally go to bed around ten but watch TV and sometimes am still up for the eleven news. I had a lot more energy right...
I missed my period for several months when very sick too. Apparently that's pretty common. Now since I've still had some bleeding issues, especially around my time of the month, my period is...
Naltexone is not an uncommon drug, it's been FDA approved since the eighties. The standard dosage for naltrexone is 50 mgs. In order to get it at the recommended 4.5 for autoimmune disorders it must...
My husband used to print for a living and actually printed up letters for different drug companies stating if you write X amount of prescript ions for whatever you will get X amount of dollars. This...
I would not recommend sending or showing your GI just any info on LDN. I would highly recommend you do your homework at this site first if you really are interested in trying it....
Naltrexone has been FDA approved and been around much longer than most meds that people take for crohn's/colitis. It's just used in a lower dose for immune disorders. If I was pocketing five grand or...
There is much more information about LDN at this site http://www.lowdosenaltrexone.org/ You can also sign up for the yahoo group which has over five thousand members and ask whatever questions you...
I had LDN prescribed by my family MD. I had looked into the current study going on at Penn State Hershey, it's the second trial there. I opted not to persue that though since there's not guarantee I...
I can't remember if I lost more than normal when I started using the nioxin or not. I was losing ALOT, like at least a handfull a day. I would brush my hair before showering to get the loose stuff...
I noticed within a two or three weeks much less loss and new growth within a month. I would be very cautious with the scalp treatment though if you have tenderness. At first it caused some redness...
I have had a lot of hairloss too and thought it was from the remicade. My sister-in-law is a hairdresser and she said to go back two to three months from when it started and look at what was going on...
Isn't Humira an immunosuppressant? I'm pretty sure LDN and Humira would work against one another. Miss...
I started LDN a month or so after my last remi infusion, they actually recommend about 50 days. You can be on low doses of pred while on LDN. When I started LDN and the remi wasn't quite out of my...
Hi, wanted to jump in here with my experience with Remi. I was in a TREMENDOUS flare when they started me on remi. I was in the hospital for twelve days, so malnourished I was on TPN for four, going...
I did have a few dreams at first, nothing nightmarish though, maybe the one where I was prego again lol. We have three children and I'm done so that was not a pleasant dream. Anyway, one in...