Does anyone know anything about this disease. My granddaughter was diagnosed with it. The doctors were checking for Crohns but didn't find that but said her problems were from gastroparesis. Both her...
Just because of this, I'll forgive them for beating my Texas Rangers in the World Series....
I've never had issues with coffee with cream but I've tried an iced coffee drink from Sonic a couple of times and was miserable and in so much pain that I'll never do that again....
It's best to know what is wrong. I had issues for 25+ years. Everytime I went to the doctor I was told it was IBS or lactose intolerence. My daughter was diagnosed 18 years ago at the age of 12. I...
Since I have steroid-induced diabetes I'm only on insulin when I'm on prednisone. I haven't had to take pred for 4 years. And the only time I was on insulin was when I first found out I was diabetic...
My MIL had a resection for colon cancer at the age of 74. Lived til last year when she died at 86....
I didn't mind being on insulin either. Getting off all medications for the diabetes really scares me. I noticed that I don't have as much freedom on what I can eat. Even the smallest amounts of a...
Hi, Sorry I didn't notice this post but I'm one that got diabetes from prednisone. It's called steriod-induced diabetes. Great. Was diagnosed with Crohn's in '07 and then developed diabetes within 3...
I found out I had Crohn's when I had blood and other stuff in my urine with a bladder infection. It was a fistula to my bladder. I might be wrong but it could very well be that. Please get that...
My doctor orders blood work on every other infusion. Every 4 months. I can't take 6-mp but remicade hasn't been effecting my blood like 6-mp did....
I too have steroid induced diabetes. I discovered I had both within 3 months of each other. It takes awhile to figure out what you can and cannot eat. It took me about a year to get comfortable with...
Okay, now I understand. There is several reasons why certain foods can cause problems. Not only obstructions, but also the Big "D". I thought because I was in "remission" I shouldn't have the "Big D"...
There are 2 prometheus tests. One to determine if you have IBD and the other to test if you can tolerate 6-MP. When I had a reaction to 6-MP my doctor ran both tests which did tell him that I did...
I too am one that seems to gain weight when I am at my sickest and not from steroids. My doctor told me it's because I'm not as active but I don't think so. I don't notice much difference in my...
It sounds like to me that he is not treating the disease but the symptoms. If you are having bleeding you are slowly doing damage to your guts. My opinion is the best course would be trying to keep...
Why can't Crohnies eat salads? I always thought it was because of possible blockages. I've been on remicade for 3 months now and everything is normal (if you know what I mean) except when I eat a...
Just as a FYI. I have mild Crohn's, in fact, so mild I lived with it for years thinking it was just IBS or lactose intolerence. My doctors thought so too since I have always been over-weight. Even...
Some people are sensitive to steroids. I have steroid induced diabetes. As long as I stay away from steroids I have pretty good control over my diabetes. In fact, a couple of weeks ago I was...
Hey Artist Guy, I've only had two infusions so far and I too have a headace for a few days afterwards. Slowly goes away though. One thing I noticed is that I have the opposite problem the day of my...
Hi Debbie, I found out I had Crohn's 8-06 during emergency resection. I was put on prednisone and developed steroid-induced diabetes in 11-06. Not a fun few months. Try figuring out a Crohn's and...
I had my first infusion last week and having a second one next week. I've noticed changes within a few days. My joint pain is much more tolerable and my bowels are more regular. Only side effect I...
I think you can have both but I don't think a doctor can determine if it's IBS or Crohn's just because you are supposedly in remission. My doctor does that thinking that it can't be Crohn's because...
Oh boy, Oh boy!!! I know that feeling. When I was the sickest, before I was diagnosed, I was watching 2 grandchildren, home schooling a middle school child, dealing with out of control older...
Thanks all, that is exactly what I was feeling but with no vomiting and very little nausea. But the pain was high up under my lower left rib....
I have never been diagnosed with a stricture and my doctor still thinks I don't have any. I think I get them though. Last week I had a sharp pain and have had them several times before. Last time I...
Thanks Rob, I'm scheduled to have it done week one, week two and then every six weeks. I'm just ready to have my energy back and not feel like I'm tied to the house. I've been able to retired but the...
Next week will be my first transfusion. Any advice....
Well, I'm back from the spine specialist. She was terrific. She had me bend in all kinds of different ways and some of those positions really hurt bad. She also believes it's Crohn's Arthritis and is...
Happy World IBD Day everyone. Well, maybe not so Happy IBD Day....
Thanks everyone. I'm lucky that I live in a major metropolitan area and had just gotten a flyer in the mail for a new back clinic. I called and made an appointment with them for today. Hopefully they...
Thanks for everyone's reply. I've never been a big eater and that is probably my problem. For example yesterday I had a handful of blueberries, chicken breast for lunch and a salad for dinner. Oh, I...
I know this sounds nuts but I seem to gain weight when I flare. I had gained about 15 pounds right before I was diagnosed (through emergency surgery). I think that is why I was never considered to...
I have a different theory. I don't want to scare you but I had a bad reaction to 6-mp (the sister drug). It started off with mouth ulcers. My GI didn't seem to be concerned and told me to see my...
I know it's been a long time since I've been online, but I have a question. My back has been getting worse and worse for the last 3 years. My doctor gives me lidoderm patches, hydrocodone and...
I'm another one that has mild crohn's. Started having "D" when I was 19. My daughter was diagnosed with Crohn's 17 years. Whenever I brought up that maybe I had it too my doctors only said I had IBS....
I just hate pred. I had most of the symptoms they warn about and one that is rare. I developed steroid induced diabetes. I didn't have diabetes before I started pred but within 6 weeks I was always...
My doctor put me on Cymbalta because of joint pain and anxiety 3 years ago. I noticed the very next day my knees didn't hurt when I got out of the car. I'm still on the med even though I don't have...
I remember the first time after years and years of the big "d". Before I knew I had CD (was told it was IBS) I had a regular check up and my doctor put me on an anti-anxiety med. It caused me to have...
I was diagnosed with IBS and Lactose intolerance from the age of 18 to 47. Never Crohns. I quit smoking at the age of 46 and had to have an emergency resection within a year and a half. That's when I...
WARNING!!! My eyes went crazy while on prednisone also. It might be a good idea to have your blood glucose checked. I developed steroid induced diabetes which was the reason for my eye-sight to go...
Hi Ashyla03, I found out I had Crohn's 3½ years ago during an emergency resection. I was put on Prednisone and developed steroid-induced diabetes. I struggled for quite a while with this dietary...
What is it about Taco Bell? I can eat Taco Bueno, and all other Tex-Mex but Taco Bell is awful....
I think they are waiting until they get the results back from the biopsies. He did give her a prescription for canasa which I know is the same as pentasa but in a suppository. I'm pretty sure this...
What is so strange about this disease is that almost everyone in my family (Dad, 4 sisters, several aunts) have had to have the gallbladder removed except me. And I'm the one with Crohn's....
My sister had a colonoscopy yesterday for "d" and bleeding. Does anyone know what [i][u] Ulceration, granularity, friability and erythema in the destal rectum compatible with the distal proctitis...
It sounds like fatigue is a major problem with many of us. I'm in a wonderful remission right now but still can't seem to function. I'm just so tired of being tired all the time. I'm wondering if my...
I'm in remission and have suffered from severe fatigue the last few months. Colonoscopy is clear. I have been suffering from constipation so no "d", no bleeding, no symptoms of Crohn's at all. But, I...
I too am an overweight crohnie. Probably why my doctors and I kept thinking my "D" was caused from IBS instead of Crohn's. I might have lived with it since I was in my late teens. I didn't find out...
I'm one that couldn't tolerate it. Ended up with bone-marrow suppression, but there is a blood test that can help determine if you child can tolerate it. I believe it's a Promethus test. I'd...
I found out that I have steroid induced diabetes caused by the prednisone after I was put on it. I found out I had Crohn's, had half my colon removed and developed diabetes all within 3 months. Truly...