Thank you !!...
My daughter is 16, on 6MP and nexium right now. She has already had 3 colonoscopies as well as upper scopes and pill cam. She is dx with Crohns at 12 yo. Her blood numbers have shown over the last 4...
My daughter is 12 and was dx this June. She use to have velvety skin- then after a few months of Prednisone, she is covered in hair! Her back is covered in it and she is so self conscious now. Is...
when she was dx she hadnt' yet gone through puberty, but shortly after her first round of prednisone she did.\...
Hello. I am the mother of a 16 year old who was dx last January. She hadn't gone through puberty yet. Shortly after diagnosis she was on either intravenious prednisone as well as pill form. She has...
Hello. Recap... My 16 year old daughter is about to start Methotrexate next month, 6 mp hasn't worked- tried it for a year. 2 flares requiring Prednisone recently. The doc says not to worry adn that...
Think of yoru bum like this... If yoiu had a scrape on the bottom of your foot, you wouldn't walk on rocks or maybe even sand, anything acidic. Raw veggies dont' digest all the way (to the best of my...
I wish I could say there was a mirical remedy, but I haven't found one. I have had urgency since I can remember. I would LOVE it if I had more warning. The spasms for me occured after the bm and...
It is nice that we can be straight forward on this forum. The same sensation happens to me and is happening right now. I had been constipated for a couple weeks and recently opened up. The feeling of...
So, you feel better with less D? Good for yoiu and thansk for sharing!! Jen...
spookyhurst and sickandlucky, Thanks for your input. I have found a website with lots of product lists and recipes. It should help. Jen...
Wow. Thanks for sharing. YOu stalker you!!! What a roller coaster you have been on. My daughter takes 6 mp and may switch to Remicade soon. The doc did speak of methotrexate, but we won't go there....
Thanks, Jen...
great to hear how well being proactive in our diets and own health is beneficial to our state of being. I will look the book up and read read read!...
thanks, Melissa, I will let her know. Jen...
pezdog, That would be nice for her to have another person with Crohn's to share things with, as she isn't comfortable with a forum. she is very private. Oh, enteral nasal tube feeding is where I...
sickandlucky, I totally agree. The degree of illness and everything may be more settling than helpful to my daughter. She does have one friend with a digestive problem, not crohn's, but something...
Tom, Thanks for the info. Yes, Marie is on facebook. Marie Witer. Jen...
Tom, Glad the Imuran is workign well for your daughter. I believe the doc did do a metabolite test on mine for the 6mp, I have not been made aware of the results as of yet. I checked out the teens...
Tom, HOw is your daughter? HOw was the absess located and treated? I am worried about my daughter. She is flaring again, seems to be an October thing. She recently had labs and they were awful. Doc...
After reading your post (s), I feel that adding ANOTHER medicaiton to your regimen may not even be necessary. If you only experience the symptoms prior to a bm, then my guess is it is all in your...
I thank yoiu all so much. All very helpful info. My daughter is actually looking forward to the effects of the tube feeding and wants to start sooner than later. I am so glad our doc doesn't just...
WOW!!!! THAT IS HORRIBLE. I WILL ASK ABOUT TPN INSTEAD. IS THAT SOMETHING WE CAN DO AT HOME?????...
My daughter was dx just over a year ago adn seemed to be improving, but in October the severe nausea returned as well as all the other symptoms; exhaustion, weight loss, and abdominal tenderness. She...
Hello. My daughter (age 15) has crohn's disease and I am looking for a website for teens with crohn's. I haven't had any luck. Anyone know of any??? Thanks, Jen...
Thank you so much. I am guessing a course of prednisone will be in order. Poor girl had so many ups and downs with her last treatment....
She woke up this morning saying she saw shadows where her periphial vision would be. I thought it was the onset of a migraine, but she never developed a headache worth noting. A couple hours into the...
great advice, thanks. Oh, and I like your signature :)...
Hi again!! I have been away from teh site for a while as my daughter has actually been healthy. Last week she got the flu and it sent her into a flare. (no diarrhea, jsut wt loss) Her doc will most...
Wow, some story you have. It seems like a long road for you. Good to hear your positive self talk, soon enough your brain and attitude will follow. Keep it up. Quite a surgery you have gone through....
THE LEXAPRO WORKS VERY WELL FOR ME. I DON'T HAVE THE PANIC ATTACKS LIKE BEFORE OR THE HEART PALPATATIONS. IT HELPS ME SLEEP , THOUGH IT DOESN'T MAKE ME FEEL TIRED. THE REASON IT HELPS ME SLEEP IS...
/community/emoticons/shakehead.gif For me, the pain of chronic symptoms put me into a deeper depression ( i already had experiences with depression, but my down times were few and far between). I...
/community/emoticons/smhair.gif I am experiencing the same thing right now. My tongue feels like it is swollen adn the edges are cut. I have found that this happens to me when i may be entering a...
Tom, SBFT went well today, no fustulas or strictures. Yahoo!!! Some blood tests came back though and everything looked normal except for her platelet count was 400+. doc wants her checked for Mono as...
thanks. I will look into that. I did get soem results back and her platelet count is 400. I think she is fighting something. Jennifer...
Yes, sbft is Thursday. I will take a list of things to discuss with him at that time. Thanks agian for yoru words, wisdom,and hope. Jen...
I am feeling helpless and hopeless right now too. I am planning to get some exercise, eat something healthy, and get among people. Those things always give my sould hte energy it needs in troubling...
Tom, You are so right on so many fronts. I would like to wait out the 6MP to see if it becomes more effective, it is just so hard to watch your little girl suffer- AS YOU WELL KNOW!!:) Today we went...
Hope you have a better day tomorrow. Glad you can share with all of us. Jennifer...
If yoru bruises are large and deep purple then please please get a cbc. Not trying to add to any stress, but my mother had leukemia and bruised huge deep dark bruises from just tapping against...
I am saying thank you to all who commented on the poem and liked it on behalf of my daughter, Marie. It was just by chance that she shared the poem with me and I thought it would be great to share it...
Oh my goodness. Thanks for the suggestions and kind words. In my work I "lightly " counsel people adn often use the analogy of their spirit being like a beautiful glass, full of sparkling water- when...
Love your humor- barking at the moon. Very funny. I am so proud of you for trying ot understand your husband's disease. That is awesome. I agree with the above post on the book. My daughter is...
I am so hungry after reading these posts!!!!! - to figure out which foods bother me I eat chicken broth for days until my stomach settles down and heals a bit. I add a new food every few days and see...
Tom, I am very frustrated today. Marie has been compaining about being constantly tired for a couple weeks now- at least. She has lost a few pounds the last few weeks, nothing to be too concerned...
Hi, I altered the poem a little. When it was submitted some of my words had been omitted and altered, but now it is in its original form. I'm glad to see that it had such a strong effect on people....
I typed this poem in for my daughter. Sorry about the type o's. Jennifer...
/community/emoticons/smile.gif Turning Point I feel I am constantly bringing it up But it changed my life completely. The day I was diagnosee wih Crohn's Disease Was the turning point in my story....
Well, I wish she didnt' have to have surgery at all, or the disease at all, but I am sure her doctors are great and taking good care of Holly. Marie is not of Flagyl and has been off of prednisone...
Hi again, Tom. Glad to hear the Senakot is working well for Holly. Marie seems to be doing well. She is beginning to be somewhat nauseous around food again, has lost just a couple #, but I expected...