Ok, thanks for that tip. So then another stupid question... does a few buttery ritz crackers count as fat, or does it have to be something more obvious like a peice of chicken of a bite of cheese?...
Thanks all. We do work closely with her GI. She is on remicade and has been in remission since her second infusion over a year ago. All her blookwork comes back perfect, and she is symptom free and...
Wow, that's a lot of Vit D. And how high are your levels when they do test for it?...
When my daughter had a dry rough patch across the top of her shoulder, I asked her doc if we should be using cortisone. She said, no, use some extra virgin olive oil. It's more natural and will do...
does anyone know or can anyone recommend appropriate supplementation for vit D3? My daughter's d-hydroxy levels came back at 26.8, which is "insufficient" according to the scale. She's been...
Use olive oil or coconut oil for a natural moisturizer. A jar of coconut oil will go a long way, and you can cook with it too....
Personally, I think it is triggered by a pathogen/bacteria. No IBD in my family or my husband's. As a matter of fact, a mild case of psoriasis in an Aunt is the only auto immune disorder in our...
Lady Sapphire - Please please first of all realize that you are NOT filthy. You are sick. You will have good days and bad, but with any luck you and a decent doctor will find a medication, diet or...
My daughter's doc uses her CRP results as a marker for active disease. Her sed rate fluctuates, but is usually pretty close to normal now that she is on remicade. Last time she had her infusion...
A relative just sent me a promising article regarding Crohn's responding to CLA supplementation. http://www.sciencedaily.com/releases/2012/03/120319194215.htm The dosage for 90 days was 6 grams...
Here is an article on glucosamine that might interest you. Of course check with all docs first. http://www.crohns.net/Miva/education/articles/N_acetyl_Glucosamine.shtml ...
Biotin is supposed to be great for skin, hair, nails. Also there is a multivitamin specifically for those with GI problems. It's called Fovia and I've purchased it online for my daughter. I believe...
Just wanted to share this article with everyone. Here's hoping they are onto something. http://www.ynetnews.com/articles/0,7340,L-4175702,00.html ...
Sorry to hear about all of your son's health issues, especially this current one. Do you have an official diagnosis of Crohn's from all the testing he has just been through? I have an 11 yr old...
Vicky - My daughter has been on Remi for a year now. It's been a great year. She felt better after the very first dose. Not immediately, but I would say that within about two or three weeks I noticed...
Has anyone ever tried, or is anyone currently on a regular dose of n-acetyl glucosamine? Curious. I've read recently that it may help those with Crohn's....
OMG. I was so afraid to read this, but glad I did. Thank you for posting something positive! /community/emoticons/tongue.gif ...
Thanks for all of your replies. Just for a short history, at the time we chose to put our child on Remi, we had exhausted Prednisone, Entecort, Pentasa and 6MP. We had tried EO28 Splash and she out...
Thank you for your replies. I feel a tiny bit better. @Ishiman - My daughter (only 11 now) started out being diagnosed at age 9 and put on prednisone for 3 months, and pentasa. Blew up like a...
Has anyone on Remicade read the latest FDA update on cancer risks associated with use of this med? I saw this article posted on another site and is has scared the heck out of me... especially with my...
My daughter had her first infusion on 12/28. I could see it was making an amazing difference within the first week afterwards. More energy, better mood, NO stomach pains, huge increase in appetite....
BSMOM - Oh, please don't cry! Stay strong and do what needs to be done to help your daughter feel better. Things WILL get better and she can lead a normal productive life with Crohn's. As my...
OH...and we all forgot to mention this diet, help, recipes, etc. are also detailed on the website www.pecanbread.com . It's a great site. Personally, I bought a Yogourmet yogurt maker and I do make...
I have a 10 yr. old girl who was diagnosed with this last year at age 9. First let me say, I'm so sorry you and your child are going through this. It's truly scary when you don't know what to do...
Blueberry - I have to ask cuz I'm curious... do you find that the menstrual pain triggers a Crohn's flare? Just wondering cuz I've had what I've always thought was severe menstrual pain for the last...
My daughter was diagnosed with Crohn's at age 9 also...just last year. She is doing well now, but of course not perfect. Life does go on, and she does normal things... mild anemia is a continuing...
Have you tried taking an iron supplement? My daughter is 10, also on 6mp for about 4-5 months, and also shows slight anemia on bloodwork. I haven't started her on iron yet, but many have posted back...
Just thought I'd share an article I read about the benefits of taking Vit D with your largest meal. http://www.healthday.com/Article.asp?AID=638872 ...
Rider Fan - Good to know. Do they come in a small enough pill for a tiny girl to swallow? Are you buying them online? And are you careful what time you take them also, i.e. away from meals or other...
@ Spookyhurst - Thanks. I have called and requested a Free Sample of the Scandishake mix to let her try that. @ All - Iron! Cool! Will def. get her the Solgar iron tablets. Hope they are small so...
Thanks so much everyone, for your suggestions. I do have her on Ensure but since she doesn't like it at all, she drinks only a little at a time. I did not know iron would help with anemia tho...so...
Did the B12 shots help with the anemia, or are they used for an energy boost? I have an oral b12 spray for my daughter. Maybe I should give it to her more often....
Recent bloodwork shows my daughter's inflammation levels to be dropping rather impressively since starting 6MP about 4 mos. ago. She has been feeling pretty good, with some intermittant tummy aches...
I just received my order for George's Aloe Vera liquid in the mail. I ordered this on a tip from a friend. Wow. It has no sour taste, no bitterness whatsoever. In fact, it tastes like water. My 10...
I have read that the probiotic L. Reuteri is helpful in dealing with GERD/acid reflux issues. I can say that my son has reflux and I do notice less burping from him when he is on L. reuteri....
Thanks for all your replies. We will hang in there with the 6mp for now. Even though her CRP is not dropping quickly, she is def. feeling better. Seems odd to me tho, that some of you say that you...
To anyone who has had experience taking 6MP, my daughter has been on it for two months now. No side effects that we have noticed at this point. We just had her bloodwork checked again...the first...
If you cannot access the link provided, try going to www.drneubrander.com . once there, click on "downloads" link and find the one about mb12 injections....
Our son's doctor used to prescribe them for him. (He has autism and b12 injections have supposedly helped many ASD kids, but not ours.) Here is a link to his VERY SPECIFIC directions on how to...
Okay then, so my best suggestion is this: make your own yogurt. It is soooo good for you (if you can tolerate it) and is loaded with billions of natural healthy bacteria. Much more so than you can...
GSE will kill off yeast quickly. Eight drops of it sounds like a lot. 2-3 drops two or more times per day should do it. If you mix it into something strongly flavored like Welch's grape juice, you...
To me, Vicodin IS something stronger but I guess that all depends on your experiences. My daughter uses hyoscyamine, and it does help....
My daughter was on it for about[b] three months. It took another 3 months for all the puffiness to go away. She tapered very very slowly from 30 mg down to nothing. [/2]...
They do ship internationally, and I believe Canada is included in that. You'd probably want to check into shipping expense tho, to make sure it was worth it. I purchase a lot of supplements from this...
So great to hear that Cata is doing so well still. As for us, we are still holding on to a full case of the grape flavored EO28 Splash because my daughter thinks it tastes awful and refuses to drink...
Ordered some from Vitacost a few months back. Are you finding this to be more helpful than other strains of probiotics? We haven't notice a change....
Have you read the book "Breaking the Vicious Cycle" by Elaine Gottschall, or checked out the website called pecanbread.com? Also keep in mind that some Crohnie's are able to get into remission with...
"Breaking the Vicious Cycle" by Elaine Gottschall is the book everyone is referring to for the SCD. The website is called pecanbread.com....
Hi Mighty Mouse, and welcome to the board. My daughter was diagnosed with Crohn's last year about this time. She is only 10 years old (as of next week). I don't have Crohn's myself, but as a parent...
Thanks everyone. It's like having my previous child back...wonderful. Praying it lasts. MissaPriss, good luck. I sincerely hope it works for you too. Please keep us posted on your progress with it....