I just took my last pred. two days ago and I am having withdrawl. Basically I feel yucky and dizzy and kind of "weird." I have had a very difficult time concentrating and remembering little things. I...
I would be wary of detox pills because they impact the digestive system. Also, just because something is natural does not mean it is safe. I lost some weight using Paul McKenna's system. He has a...
It is more dangerous for the baby if you do not take the meds because a flare up would do more harm than the drugs. You could tell people to mind their own business and not make judgements when they...
You are all so funny! The humour really helps me keep positive about this! Since joining this site I have even been able to make jokes with my non-Crohn's friends... My husband hasn't really come...
I know you said money isn't the issue, but you are likely eligible for EI if you have enough hours because it sounds like they terminated you without justifiable cause. So, if you were wondering...
Got to love the prednisone eh! I was just starting to lose my "prednisone pounds" from the last round when my Dr. put me back on it... Now I have new prednisone pounds and prednisone acne! Also, my...
Thanks. So far prednisone is the only thing that has helped my mouth, I am on it now and am being tapered off. I will definitely talk to my Dr. about it. Thanks for the info and I really hope you are...
Conor, I was wondering if you could describe the symptoms of having Crohn's in your mouth and throat. I get large canker sores in my mouth and throat, is that the type of thing you get or is it...
I get this but only when I am in a flare. It is really painful! I didn't mention it do my Doc. because I don't feel comfortable talking to him about that. I just avoid sex while I am sick. It sucks...
I am not sure where you are from but I know in Ontario the review is about whether or not you are now medically able to work. They cannot make a decision based on the economy, it needs to be about...
One of the problems that I have with Crohn's is severe, frequent, and numerous canker sores in my mouth and throat. The only thing that has ever helped with this is prednisone and homeopathy. I have...
I was diagnosed when I was 19, so I have not had any experience with the disease that young. I do know how hard it can be and my heart goes out to you and your son. I know there is another member on...
I get night sweats pretty often, I have to sleep on a towel to absorb the sweat, then when it gets too wet I just switch towels (saves changing sheets or sleeping in a puddle). It never occurred to...
I realize this is an old conversation, but this is something I have spent a lot of time working through, as I love to eat! As some of the previous people mentioned, popcorn is a killer for me! If I...
If I even forget to take my pills I get symptoms... I would be worried about this approach myself. It's your body and you have to do what is right for you, but you may find that if you don't treat it...
If 90% of North Americans were only absorbing 3-10% of the nutrients in their food, wouldn't we have a crisis of malnourished people instead of a crisis of obesity? When we get really sick with...
I take Immuran and my Dr. told me that Immuran has been used for liver disease for a long time, so there have been many studies on the effects of Immuran on the fetus. He said that according to...
This is where I have been having my pain. I also get the sharp pains. My Doc just put me on a high dose of prednisone and cortifoam (foam steroid that you take anally). I am hoping this will help, he...
The comments about "faking it" are so interesting to me... My last boyfriend accused me of faking it and one time when I was in so much pain I was crying I asked him to take me to the hospital. He...
When I was really sick about 6 years ago I didn't have drug coverage and I was on Pentasa. My Dr. gave me free samples because I couldn't afford the drugs. You could ask the Dr. about that. I don't...
I usually go to the same places so I know where bathrooms are. If it is a new place I find out where the bathrooms are pretty quick. I keep lots of kleenex on hand that I can use as toilet paper and...
That is one symptom I don't have that I wish I did... I keep gaining weight because of the prednisone. I am back on it now, so I am pretty sure I will be gaining even more weight now... I am about 20...
For the women out there, do you find sex painful when you aren't feeling great? I find that it can be very painful, I have assumed it just goes with the territory. I haven't mentioned it to my Doc....
If she is asking specific questions like when your tests are and when you are going to the Dr. I would say that is an invasion of your privacy. I would check out the employment laws in your area. If...
I usually go to a generic place that has a variety of options. I am in Canada and I usually suggest we go to Kelcy's (a chain) because I know that they have things I can eat, and whoever I am out...
I find it difficult to know if it is Crohn's as well. Generally I figure if it doesn't go away in a few days it is Crohn's....
When I am really sick I pass many foods intact. I never really worry about it, but I do take a multi-vitamin to ensure I get all my vitamins....
I agree. We cannot restrict ourselves all the time! When I know I am eating something I will pay for later, I just make sure I savour every bite so I can get as much pleasure from it as possible!...
This is too funny. I have a serious phobia about running out of TP. I buy in major bulk even though it is just my husband and I at home! I dream of a padded toilet seat for those midnight runs (pun...
Do you mean mucus in her stool or mucus leaking from her anus when she stands up? I get lots of mucus in my stool but no leaking. The mucus is part of the inflammation, I believe. If it is leaking...
A few people mentioned tears.. I started crying at work on Friday because I was so frustrated with this disease! I took Monday off and went in today, and I almost starting crying again! I actually...
The funniest thing like that that happened to me was after I ate vegetarian lasagna one day... my poop had chunks of carrots, spinach etc... it was like i chewed up the lasagna and threw it into the...
Yay!!! That is worth celebrating!...
If I eat anything with nuts or seeds I am almost instantly in pain and I begin bleeding... So, I have become very good at avoiding these things! The thing I struggle with is portion size. I eat when...
When I first started dating my husband I was very embarrassed about the symptoms of Crohns... the gas, the diarreah, accidents... it was very difficult for me to discuss the disease other than just...
The poor thing! Pentasa worked really well for me for a long time and I had no side effects. I hope your little one gets better soon....
Every website on Crohn's lists pain as one of the symptoms, usually it is the first one listed! Strange. I am sorry you had that experience. I hate when Dr. do that....
That is one of the reasons I joined this web site. I realized I have to learn more about this disease so that I can communicate better and so that I can get to know when it is time to call the Dr.,...
Painful...
I have Crohn's Colitis too, I don't really know what that means but this is what my GI has told me. I also get incredible pain with no diarrea, which I was confused about but my Dr. said it is...
When I was really sick about 6 years ago, I was working but receiving no drug coverage. I didn't make very much as it was my first job out of school. I mentioned that to my Dr. more as an aside, I...
I started on Asacol, when that stopped working I moved on to Pentasa, and when that stopped working I went on Imuran and prednisone. I have been on Imuran for a few years and I have never had any...
I get frequent, numerous, and sometimes quite large canker sores in my mouth and throat, very painful. I think that is what you would get from Crohn's in the throat and mouth. Not sure though, I...
My Dad has Lupus and he gets this. His ring and pinky fingers have curled right up to his hand and and he actually cannot straighten them out. Obviously I am not a Dr., but reading your post reminded...
I read a book which really helped me with pain management without using meds. I don't like using meds so I try to avoid them as much as I can. Obviously I do use meds for pain management sometimes,...
I don't know anyone with Crohn's (other than myself..) I have to say, it is so nice to chat with people who get it! I have been so humiliated due to this disease! Having an accident in public is so...
I have a full time job and a part time job, both in the social services field, very busy/high stress jobs. My bosses are both great and understanding. I don't miss much work because I have learned to...
prednisone does that to me....
Wow. It sounds like you are going through so much! This disease is so hard, I cannot imagine going through all of this while also being a single mom with two young children! I hope that you give...
I always gain weight on prednisone. I call the weight gain my "prednisone pounds!" I still have about 16 prednisone pounds to loose....