A lot of doctors in my area have pain medication contracts now, probably because meth is pretty common here and stealing of prescriptions is even more common. The pharmacies in town even suggest that...
-I have met alot of people I would never have met, and have had some very interesting conversations. -I have learned how to negotiate the wonderful world of health care, from insurance to doctors to...
I had the same problem, intermittent cramping in my intestines that occassionally would send me to the ER for the extreme pain and dehydration because I couldn't drink. Other times it is what I call...
I had really bad side effects from humira too. after the loading doses I started getting the joint pain, worst in my hands, then the fatigue started. first it was just for a few days after the...
I love that I have learned how much my husband really loves me: taking me to dr appts, procedures, driving 120 miles a day to visit me in the hospital, not complaining when I'm not getting anything...
I just switched to Remicade and a week ago my GI made a point of telling me that my risk of skin cancer has gone up. He referred me to a dermatologist to get a skin survery, and said I need to make...
I normally post in the Crohn's forum but found this thread through a search. I wanted to see what others were hearing about the H1N1 vaccine as I am on Humira and have been told at work that we were...
I've been on Humira since October and my last colonoscopy ( a month ago) showed no sign of active disease. Woo-hoo! I have the humira side effect of joint pain, but its mostly an annoyance, so it...
Have you tried physical therapy? A lot of back pain, in particular lower back pain, can be because of weak back or abdominal muscles. What about your bed? If your back seems worse in the morning, it...
I waited 7 weeks to go swimming. I wasn't cleared to go back to work until then. My problem was fatigue, the surgery took a lot out of me. I never did ask my surgeon when I could do things, I just...
I've been on Humira since October. I had joint pain for several months, but in the past 6 weeks it has disappeared. I don't get any soreness, even the week after the injection. It took about 6 months...
Swimming worked for me. The first time I was back in the pool I really felt it in my abs just from holding my body up in the water. And once I started doing some serious swimming I REALLY felt it!...
I use a syringe and noticed the leaking happen to me once. Since then I keep the syringe in a place for about 10 seconds after I've injected all the medicine, giving it a little more time to get...
I work with families with small children, and I am always surrounded by colds, stomach bugs, respiratory viruses, rashes and anything else you can think of! Just this week I met with families with...
When I had a badly sprained ankle last year, my doctor put me on Celebrex because he said it was less likely to cause stomach problems than the other NSAIDs. I was only on it for 2 weeks, and it...
My GI's group uses the gatorade/miralax prep as well. And I have found it to be very easy to do. Since there's no taste and I like Gatorade, its no problem getting it down! And miralax is OTC so you...
When I take my Humira, I am severely fatigued for a day, sometimes 2. And since I started it my joints have hurt and they always hurt worse the first week after injections. So maybe its the Humira...
I was diagnosed with blepharitis last week, and I have follow up appt this afternoon. My eyes feel swollen alot, inside not the eyelids, and I have floaters, but she said the interior of my eyes look...
Yikes, 3 hours?! I don't ever remember a pre-op assessment taking that long! For me or my son's surgeries. They just asked us for detailed, very detailed, medical history. You might want to write...
When you gain weight with Crohn's, it seems like the health professionals don't believe that you are really sick. I had to explain to the nurse that all I could eat was simple carbs, which my body...
I'm a coffee hound too! It used to cause me the same problems, but hot tea didn't. I started eating oatmeal every morning, and now the coffee doesn't bother me. But if I don't have a 1/2 cup of...
I'm sorry for you're frustration. After 35 years I've finally learned that you can't make your parents any different than they are! I've got a brother who has been treated like gold no matter how bad...
I know the idea of a colonoscopy isn't pleasant, but really, it's not that bad! I've had four over the past two years, and wouldn't hesitate to have another one if my doc wanted it. They can make...
When I got my loading doses, the nurse told me that cleaning with soap and water was fine and that I didn't need to use an alcohol swab. I was surprised and later asked a friend who is a nurse and...
I had my husband take me to get my loading doses. I wanted him there just in case I didn't feel well after the injections. I was glad he was there because I was such a basket case BEFORE the...
I remember my doc saying he didn't want to do another colonoscopy on me until it was 4 months after surgery. He said that it could take that long for everything to be healed and any...
Hi Joie I'm really sorry to hear about everything you're going through. It must be very frustrating not knowing when you're going to start seeing the end of the tunnel when it comes to all of your...
I've been on Humira for 5 months and I haven't had that side effect. Then again, I didn't get acne from prednisone either, so maybe my body just doesn't react that way. I don't know if it will work...
Hi Rider, I hope you feel comfortable with your decision. That's the most important thing. I wanted to let you know that when I had my resection, it was the right decision for me. I went from not...
Southwest Indiana now, but a Chicagoland girl at heart!...
Glad you're doing so good!! It took about 6 months before I stopped having the occassional twinge or soreness at my incision site, so maybe it will stop soon for you. I know what you mean about the...
My doc has me use the 4 dulcolax, then half of a large bottle of miralax in 32 oz of gatorade. Then 2 hours later the other half of the Miralax in another 32 oz of Gatorade (not the red one!). I've...
I was diagnosed with mod to severe Crohn's 2 years ago with symptoms for several years before that. One problem I never had was heartburn or any acid reflux. Only ocassionally while pregnant. I've...
I was diagnosed when I was 32, but had symptoms for several years. I had a surgery 9 months after diagnosis. A colonoscopy showed that the disease was active again 11 months later. Its been another 6...
Sounds like you have some inflammation that Humira isn't taking care of. I'm on humira and it has never seemed to work. Its been 4 months. I'm on pred, and that helped some, but as soon as I started...
My doc has me do an entire bottle of Miralax, the big one, mixed into 64 oz of Gatorade (not the red one!). I also take a couple of dulcolax before I start drinking the Gatorade. I've done that 4...
If I know where I'm going, or might be going, I try to check out menus online. Most of the chains have them posted, and if I'm really curious about something, I'll call and talk to the manager about...
I had a resection that sounds alot like what they are considering for you. Best thing I ever did, it gave me a much better life. But the disease came back pretty quickly and I'm on Humira now. It...
IF I get a reaction at the site of the injection it's usually within a half hour. But I haven't had any real skin reactions since the first two months and I've been on Humira for almost 5 months now....
Hi Tom, I really feel for you with this. Medical problems and our kids are the toughest things to take. My oldest son had to have two surgeries in a month last year, due to a dead testicle. He was...
A colonoscopy sounds like your best bet. I'm sorry you had such a hard time with the SBFT, I've done it 2 times and my son once, we didn't have any problems. (I had a stricture at the time). I just...
When I took it, I took 2 pills in the morning, 100 mg, and then 1 pill in the evening, 50 mg, for about 2 weeks so my body would get used to it. That was the doctor's suggestion. Then I took it all...
Irritating, in so many different ways!...
That happens to me too! It can be really hard to concentrate, and my short term memory is fried when I'm flaring. It makes work difficult, and I feel like an idiot when I ask my hubby the same...
You could try another surgeon, there is nothing wrong with getting a second opinion, and you know your body better than they do. Good luck!...
I'm thinking of asking my surgeon if he'll throw in a free tummy tuck when he does another resection!...
Just an idea, can you crush them and put them in some pudding or something? Maybe they'll digest better that way....
Thanks for posting this. I'm on Humira for 4 months now, and I've been getting a redness on my cheeks and nose that worsens after the injection, then simmers down a few days before I'm due for the...
I work full time in non-profit social services. The pay is very low, but the benefits and flexibility are wonderful, that's why I stay. I would have a hard time having to punch a time clock every...