Hi keeper, thanks for your reply. I will mention the joint pain to the nurse on my next infusion, because I doubt I will be seeing my consultant before then. Incidently I took some steroids lastnight...
Ok so I've had 6 infusions since last october, and I'm no better than when I started it, and I'm now getting it every 6 weeks, although thats only happened on my last infusion. I'm also getting...
I got mucus at first, then I started getting stomach ache. I only had some idea of what it was when I mentioned the mucus to my mum and she had ulcerative colitis, so she said it sounded like what...
I've just gone back on Remicade after not taking it for 4-5 years. I'm on my 5th infusion, but it doesn't seem to be working yet, not sure if it's going to. It worked well for me the first time, but...
I was sent a letter this week as well and I've just replied asking to be excused. There is no way I can do it at the moment, so I'm hoping it's not going to be too much hassle being excused....
lol yeah that's the only good thing about the moonface, it fills out your lines abit :D...
I was on the Elemental diet for 6 weeks. It didn't put me in remission, it was hard to stick to and I was ravenous the whole time. Didn't help that he put me on steroids at the same time. Might be...
Yup! That old moonface just happens overnight I've found. Don't know about you, but my eyelids want a piece of the action as well and have puffed up too, making me look tired all the time, not to...
I don't know if it helps stop hair falling out, but Sea Kelp is meant to be good for hair growth. I'm taking it at the moment, but it can bring you out in spots but not always. Worth a try? I've not...
I get night sweats as well, I think more from the Pred than anything else. I sleep in a top that will absorb the sweat and if I wake up I just make sure I have another tshirt to hand to change into....
I was on Prozac three separate times and three times I flared up. I didn't actually connect it to the Prozac until some time later, but then realised that everytime I had flared up, it was about 6...
I lost 2st since last June. I went down to 7st (sorry don't do pounds) but I am now about 7st9ish. I am on 25mg of pred at the moment and seem to have developed a sweet tooth again, don't really like...
I've been single for nearly 4 years now, and I was doing the whole internet dating thing until I flared up again in July. Now I don't even bother trying to meet anyone online or otherwise because I...
Lancashire (NW), United kingdom....
I also get Mucus when I stand up, but haven't found out what's causing it yet, if anything inparticular. Sorry I can't be of any help, but would be interested to read the responses. I am in a flare...
I replaced my toilet seat and was about as excited about that, as you sound about your new toilet haha. My old one had come loose and I was too ill to get out and get a new one, so half the time when...
I would advise anyone taking codiene (I was on codydramol for years) to see whether their chest pain coincides with taking the codiene. Took me years to work it out, but not had it since I stopped...
OMG YES! I'm not the only one! I was actually talking to someone about this the other day and I'm sure they were just thinking yeah yeah, don't make excuses, you're just a dumbass. But I know I never...
I got it from gallstones, so I had my gallbladder out. Then I was still getting pain in my ribs and narrowed it down to being allergic to codiene. Had to stop taking my codydramol. Think it was...
Have you noticed any change yet Dietcoke? Glad your quality of life is better now than before the remicade Erik45. I'm not really seeing any difference yet. Wondering whether the weakness in my legs...
Well I had my 4th infusion today, it went well, no reactions. Went straight into town shopping afterwards for 4 hours and only had to visit the toilet twice. Was feeling pretty well, but could be...
Hi and thanks for your post Belleenstein. I've looked it up on the net and thought it didn't seem much to worry about at the moment as it's only out temporarily when I go to the toilet. I have had a...
Yeah it did concern me when I sat on it once haha. It hadn't quite gone back in from going to the toilet, and I was like wtf is that. Was pretty uncomfortable. More in a ewww way more than painful....
Didn't think it was anything to worry about really that's why I've not been to the doctor. I'll make an appointment though and see what they say. Thanks for your replies....
Has anyone else developed a prolapsed cervix from all the straining to go to the toilet? My cervix drops down everytime I go to the toilet but goes back in again, but I find its taking longer and...
Guess not then lol. It works though, trust me :scool:...
Just thought I'd mention that when I had Fissures (pretty big ones) I decided to try putting Adcortyl in Orabase on them that I use for my mouth ulcers and it's heals them up pretty quick. Has anyone...
ImAud, that's reassuring to hear that it wasn't till your 4th or 5th that you saw any improvement. Means I still have hope. 78SilvAnniv, Sorry you didn't get any relief from it....
Hi Gail, glad you're not doing too bad, weather here is not so bad at the moment, bit wet, but not freezing. I've had 3 infusions, should have had my 4th 2 weeks ago, but had an infection so getting...
I tried Humira for a couple of months but just got worse on it, and developed an infection and was constantly having chills and a high temperature then it I couldn't keep anything down so had to go...
Thanks for your replies, I hope it works too. Hope you're both doing well?...
The only reason I am still hopeful of it working is because it worked for me before, but I know that it may not work a second time, I'm just grateful that I haven't had any adverse affects to it so...
Sorry if this has been asked before, but I am just wondering what the longest time is anyone has been on it till it has started working? I've had 3 infusions now and it's not working, but I don't...
Got my phonecall to go for my remicade on Monday, Yayy can't wait, although it's not done me much good so far, I'm still hopeful that it's going to miraculously kick in all of a sudden. I have a...
I've been told surgery is my only option too but I'm holding out for now hoping the meds will put me back in remission, but I would be interested to hear how you are getting on with it, how painful...
Thankyou both for your replies. I've actually done my wrist in vaccuming, so I think I did overdo it. Apparently a side effect of the cipro can be tendon damage, esp if taking Pred as well, so think...
Ahh thanks for the explanation :) well if you can take the coated ones, I recommend them. If not, wrap them in tissue then get dynorod out to unblock you afterwards ;) That's what I've had to do when...
Do you have the enteric coated ones? (red coloured). If not, get them. I can't take the uncoated ones and always ask for the coated ones. The white ones are disgusting. Not sure why they even do them...
Hi everyone :cool: Just thought I'd post an update on whats happened with me since I last posted. Well I've just spent another 10 days in hospital, got out today thankfully, was going mad in there. I...
Hi mkl11, I was on Remicade 3 years ago with great results but the hospital just stopped my infusions with no explanation (I now know it was the cost, and because I was feeling well, they just took...
Hi, I'm on the Elemental 028 extra diet, and I find it really hard to stick to. Theres only been one week since I left hospital that I haven't cheated on it, and that's only because I didn't have...
Thanks for the link, I've bookmarked it too :) Looks interesting....
WImom, my mother had Ulcerative colitis as well, she managed to control it by diet though eventually when she found out what affected her. I don't know of any other family members having anything...
Thanks for your reply WImon. Sorry to hear your husband has had such a bad time with his Crohns, even after having an illeostomy. I'm definitely not going to have surgery unless I really need it. By...
Just before I went into hospital I was getting fevers and chills really bad to the point my teeth were chattering. My consultant took me off Azathioprine (and humira) and said I might have a low...
I'm having the same problem. Been throught two bottles of Nystan and it's still there. Are you on steroids at the moment? I'm thinking they have something to do with it....
I agree there seems to be alot more rules on here than there were 4 years ago. That's about the time I used to post/read more regularly as well. I threw abit of a hissyfit when I got told not to...
Hmm, just had a quick look for some info on the Makers diet and already I am put off by the whole religious thing it seems to have going on. I think I'll just do the SCD diet, seems easier....
Hi Roni, I tried the SCD diet a while ago when I was flaring, about 6 years ago now, but found it hard to stick to because I don't drive so it was difficult to get the ingredients like nut flour to...
Well luckily my docs is about a 2 min walk from my house, and the chemist is attached to the doctors surgery so it's pretty handy for me. Hence me not wanting to change my doctors lol. Would be so...