dietcoke

esOR Mine was done by Dr. James Becker and Pat Sylla at Mass General Hospital in Boston. Both HIGHLY recommended surgeons....

hi ep49: I know exactly what you're going through. I was scared out of my mind to have the surgery, I saw some psychotherapists and got meditation tapes to calm me down before and even during the...

Thanks for all of your replies. No, I don't know wear an ostomy belt, but I will look into one. Also, the idea of wearing something tight fitting to bed is a good idea. I do that during the day, but...

Thanks for all your replies. I just get worried about absorbing the nutrients, and of course blockages. That's interesting that it still happens after many years with an ostomy. I would think your...

I had drainage tubes after my proctocolectomy. I had four of them ,two on each side. I just had to be careful not to lie on them which I did a few times, and they leaked onto the bed. They are more...

Congratulations! that's wonderful news!!!!...

I think it has more to do with your quality of life, not the specifics of the disease. I've had crohn's colitis for fourteen miserable years... Through my marriage and the birth of my one child. I...

Hi Alcie: I was debating the same thing as you. I just had my surgery 4 weeks ago, it was a total proctocolectomy with perm ileostomy. I let my surgeon decide what was best for me because I really...

Thanks ironmum: it's been absolutely terrible for the last few days. It just comes out of nowhere and lasts at least a few hours. It is my lower back and hips and NOTHING makes it better, no...

Owww. I had my surgery exactly two weeks ago today, total proctolectomy with perm ileostomy, what a mouthful. Anyway, i posted a few days ago about bad gas pains, which i still get. Thanks for all...

Hi everyone, I just wanted to report that I am home from the hospital finally after my surgery. I had a very successful surgery but the recovery was a bit slow in the hospital. I had very low blood...

Hi, I don't have a supplier set up yet because I have no idea what type of supplies will work best for me. unfortunately, I will have to pay for 20 percent of the supplies after I reach my...

My ostomy nurse suggested a waffle pillow. I don't know exactly what that is, but she said she would give me plenty when I get to the hospital to take home with me. Also, Desertsun, I think my...

I was highly allergic to asacol, the key ingredient being mesalamine, same as apriso. For me, it took about a month and a two week hospital stay to determine that was causing my problems. For me, I...

I just read all of your replies and they all make great sense. I guess I am just scared to have surgery, and open surgery sounds even scarier. I have a gut instinct about this surgeon and he works...

Rosemary: have you seen doctors at Mass General Hospital, Brighams and Women's, Beth Israel, Newton Wellesley? I live in MA too and these are where the best surgeons are. I have been interviewing...

I met with two different surgeons and got two different types of procedures they think they should do for me. I wanted to know if anyone has any input on these as I am so new to this surgery thing:...

Ugh brian84, that stinks. Thats what I'm worried of. You didn't have any crohn's in your small intestine or ileum before the surgery? I worry a lot about this because I have tried literally...

I am going to have a total proctocolecomy with perm ileo. I have crohn's colitis, in my colon and rectum. I met with my first surgeon for a consult a few days ago and I was surprised to hear the...

Asacol, Remicade, Humira, Cipro, Levaquin, Budesonide, Prednisone, Cyclosporine, 6MP, Methotrexate, Human hipworms, SCD Diet --- that's all I can remember to be honest, and I know there were many...

bluegrass: thanks so much for your answer. I am in the process of writing questions and about to start interviewing surgeons. My most curious questions is, How long did it take you to get back to...

Insofla, what liquid vitamins and minerals are you taking? I am in desperate need. Thank you....

Congrats Linn! I have my first infusion of Tysabri on Tuesday and I have to say I am nervous. I am also a maid of honor in my sister-in-law's wedding next Saturday so that isn't helping things. Did...

Hi everyone: I usually post in the Crohn's group, but thought I would post in the MS group. I have severe Crohn's Colitis. Long story short, I have exhausted all meds and I am scheduled for my first...

How did you get your doctor to prescribe you stelar a when it is still in clinical trial phase? also, have you been on tysabri and why did u stop? I am waiting for my first infusion and terrified....