I am my best in the mornings. It is almost like the rest has done my tummy good and as the day progresses I get worse. At times I have wondered if it is because there is nothing in my stomach in the...
Thank you for the comments:) I ended up calling the doctor and after talking with him we are going to wait it out. He thinks it is a flare and can be taken under control without going to the ER...
Hello everyone, I am having greenish BM's this morning and woke up to a dark bruise that is about three inches on my right side. I am not having any pain, I am concerned about the brusing because if...
Hello everyone, I have to say that since bring officially diagnosed with Crohns my sense of tast has changed and I always chalked it up to my medications. I am currently down to just 4 asacol daily...
wow, I have to agree with the others. I am so impressed that you took on the 3 week trip, thats just fantastic. I am glad to read you are feeling better without the ativan. For me that stuff can be a...
I sweat too and I asked my GYN about it after reading several places that crohns can throw you into early menopause. I am indeed in the beginning phases of it! I am so sorry to hear yours in in your...
I get that same way in my mouth. I always believe it to be from the crohns. I gargle with as warm as I can stand it salt water and use a drop of theives essential oil directly on my tounge....
I am the odd man out here (or woman :) ) My GI told me it was ok to do a cleanse when I asked him. I have used it twice and it is an herbal cleanse with an AM and PM dose. I make sure I take my...
Hi, sorry to hear about your troubles. I am not sure where you are from, however around my area there are a lot of farmers markets and such right now. They have very good prices and fresh foods which...
I am so sorry Claire. I honestly don't know what to say except I will be praying for you and yours....
Hi! I too suffer from Crohns and axiety disorder. So many people just do not understand how it feels to have to plan out every single detail of your day. Please let me know if you need someone to...
Does anyone ever experience tingling? I have been having it on my right side, which is the side that normally feels swelled or tight. I have just weaned off of endocort and it has been a few weeks....
I have been taking endocort for three years now. I am currently trying to go off of it for the fifth time--every time I end up right back on it. Of course, I am praying that this time is different....
I have been on endocort for three years. I use to take 2 3mg caps a day until November when I flared again. I now take 3 3mg a day. The doctor said just to make sure I am taking a high dose of...
Thanks everyone. I think I will use the free weights I have here and keep walking when I feel up to it. I would love to join something like a Zumba class (my best friend just asked me to actually),...
What type of work outs do you all do? I have been walking some, although not very far distances (about 10 min. 3 times a day). I know they say working out is one of the better things to do for stress...
Hi! I have gainned quite a bit of weight since going on paxil and endocort. The doctors tell me that endocort is not to put weight on a person, I disagree and think it is a combo of the two....
My ultimate goal is to be able to go to the zoo, movies, out to eat, etc...with my kids without worrying about my crohns or anxiety! My daughter is starting to want to visit colleges, I would like to...
Well... I went ahead and ordered it. I will let you all know! I was told this afternoon that it just has to be verified and then I will be notified it is being shipped. It is to be sent Fed ex, so it...
Hey there! I am going to go off of my Paxil and start on St. Johns Wort. I have went from 20mg on Saturday night to 10mg Sunday and last night...this is to be my last night on 10mg. I am feeling a...
Sorry, I live in America. There are several places online that you can order at a reduced rate. I am curious to see if anyone had luck doing so. THanks....
Has anyone had any luck or problems with ordering their perscript ions online? Thanks!...
I started paxil a few years back and it has served me well. My doctor started me on 10 mg and then 20 mg after a few weeks. I have been at that dose since, however I believe I need to be on a higher...
Hey there. I am sorry you are feeling so stressed and anxious lately. I have a little to add to the relaxation the others have talked about--I add an essential oil such as lavender. I take a drop to...
I have been on 9mg since November (my last bad flare). I took 6mg for 2 1/2 years before that --when I get off the endocort I am flaring within a mo''s time. From my experience you I think it is...
I'm sorry for your troubles. I am finding myself in a similar situation, however it sounds like your stress levels are a lot higher than mine. My doctor has me take .5mg of xanax during times like...
My doctor tells me that the Paxil would be out of my system in three days....is that incorrect? I am getting more worried by the moment:)...
Thanks! My doctor has tried me on cymbalta and didn't have me wean off the paxil. He said since I was only taking 20 mg that it would be fine....
Hey there, I am going to go off my paxil and try a natural remedy. The baseline for the product is St. Johns' Wort. Has anyone had sucess going from perscritption to natural?...
I have been on either 6 or 9 mg of endocort since dxed and am currently on 100 mg of imuran (since nov). I don't know how much it helps until I get off the endocort....when I do I am flaring within a...
Thank you so much...that is exactly what I needed to know!...
I too am looking into changing jobs. I started an Avon business last October knowing that I will eventually not have my current job due to my missing so much work. My provost has mentioned to me...
Hi everyone, Have any of you had this issue? My GI said this, "your blood work looks ok...please make sure you repeat in a mo because your white blood cells are elevated"...WHAT???? I was a little...
I am sorry you are feeling so lousy. My dr is amazed by my fatigue saying I shouldn't feel that way. He also says I have never been in remission. I have to say the fact that you are still exercising...
My rt upper thigh gets stiff, sore and double sz when my symptoms are worse. I broke down and bought a cane to help when this happens. I have three sz pants that help with the situation. Have you...
I thought when I was at the hospital when my stomach looks preg and the pain was laborlike that we agreed to order the Remicade. I mean he even had them do the TB test while I was there. I am...
Crohnie...we did have a meeting of the minds a year ago and decided imuran first, then remicade if it didn't work. In addition we talked about it when I went into the hospital, as a matter of fact I...
I cancelled again! I couldn't bring myself to go. I wish he would just order it since I was in the hospital in nov. He said that day that I hadn't felt good in 4 yrs...why wouldn't he just order it?...
Thanks Gail! I am going to go today no matter what! I have called my dad to go with me and he will be like ...girl you are over thirty years old its silly to be nervous about the doctor, lol! I am...
I have cancelled two appts that are to get me started on the drug. The doctor says he HAS to see me before he can ask the insurance to cover it. I am a nervous wreak, literally about this drug. I...
Thanks in advance for answering:)...
Well, I was feeling really crappy yesterday and missed my DR appt. I called and she told me that he is going on holiday and I can't get in again until mid Jan. It was my understanding that after the...
Yay! Glad to read you are home. I hope that dull ache goes away soon...
I didn't feel that way at all on Pentasa. I would ask your gi about your problems...good luck!...
Hi! I really get a lot of support from this group of great people. I read mostly too:)....
I have been on endocort since being dxed--with the acception of a month. I have gained 50 lbs since starting on it. My dr said it was because I could eat more(not my gi), yet when I went off of it 6...
I have had three ct scans...two with barium and one with a barium enema. I will NEVER have a barium enema again. I t was horrible! I think the berry or bannana flavored barium have the least nasty...
Ohgosh...I am so happy for you and I thank you so much for sharing! I am getting ready to start the drug(I got my tb test sunday)...I needed to hear a great story:)...
He sent me home with vicotin. Also, he increased my endocort to 9mg a day from 6mg. I go see him on wed for a follow up....