when i go into the lady's (and i will use that term loosely) room and i see toilet paper on the floor and pee dribbles on the seat, i have to wonder - do they do this at their own house??!! i will...
Yes, my CD is flaring right now... I made an appt with a new therapist, but it's not until 9/2....
idk about the Remicade being a factor, but I know that for myself, I don't drink ANY alcohol at all because of the effects it has on my CD....
Thank you both.. I never gave any kind of background on myself.. I am a 32 yr old female and I am normally on the Crohn's disease forum.. again, thanks for the words of encouragement....
Hi... I don't really know what's going on with me. Some days I'm ok, upbeat even, but something is always missing. Most days I just want to be by myself. I try to be "normal" for my daughter (10...
good call on that one phoebe...
Your boss sounds like my boss, well, ex-boss now.... I had to ask to go home early one day and she asked me why I wasn't feeling well (she already knew about the CD).. i said i hadn't been too good...
I am on 6MP also and have had 4 Remicade infusions so far... I have not noticed any weight gain from it. I have never taken Lialda... Good luck!...
When I get like that it's usually because I'm having rectal inflammation.. I use Canasa suppositories and they work wonders! You may want to ask your doctor about it....
I have put myself on pred several times. I've lived with this disease for so long that I can usually figure out when I need it. It's not like anyone's using prednisone for fun! My doctor trusts me to...
This was really good! Not like that 1-5 smiley face stuff... I'm somewhere between a 30-40 mostly......
Ice cream cake at my daughter's birthday party last weekend.. unfortunately, there was a lot left over and I've indulged a couple of times... not the best move since it has all the ingredients that...
thanks for your help.. unfortunately we don't have a costco around here.. i will try calling around different pharmacies today......
Does anyone know of any Rx assistance programs for 6MP? Teva (the manufacturers of it) are no longer giving help to new applicants... idk where else to try... I just lost my insurance and only have a...
I have had something similar and the docs told me it was proctitis... Canasa suppositories are absolute lifesavers at those times!!...
I am on Loestrin 1.5/30 and I've had no problems with it regarding my CD. In fact, being on it has probably benefited it because the heavier my period, the more symptoms it will cause; being on the...
Why does she tell you you can only have it every three months? I get mine every 4 weeks... I definitely notice when I'm getting close. And the next day or 2 after I get it I'm noticeably LESS tired....
PowerAde Zero... I am a water drinker, but I was introduced to this after my last stay in the hospital.. the Zero means no "crap" in it :) The blue is the best....
I'm jealous of all of you on here who can eat strawberries!! No berries of any kind for me :( After my resection I was told "nothing with pulp" so no oranges and anything like that... apples and...
I do it all the time; my doctor actually is quite understanding about these types of things... idk about dropping 10mg at a time though. Even when my doctor puts me on it, she has me go 5mg at a...
I'm not sure how long it takes to leave your body, but I know that when listing your meds (for doctors, etc.) you're supposed to list it if you've taken it in the previous 2 years....
That's some sever bloating! I use Tums for mine... 3 or 4 seem to help... Good luck......
I am not a chicken and that's sounds like a fantastic idea for a tattoo!! Esp since I, too, am a semi-colon!...
I drink PowerAde Zero... the "zero" means it has no calories and no "sticky stuff"and not a real strong flavor like some of those other drinks like them... and it's inexpensive....
I have had 2 infusions so far... after the first one I noticed a difference, after the second one not so much, but I'm hoping the third will be my charm! After each infusion I feel bloated and gassy...
uklass - I also had a right hemicoloctomy, and although my Crohn's felt better, I slowly became more and more exhausted and fatigued.... When I finally asked my doctor about it, I was told that...
Do you have Bentyl? That helps......
I take Percoset.. I started them when I was in the hospital in January and have found that they work wonderfully.. the only thing is I hate asking my doctor for them! She will only give me a...
strange......
I get them every 4 weeks and i can definitely tell the difference.. usually the next day... I can tell when it gets close to time for my next one without even looking at the calendar!...
Pretty much learn your tolerance level... sometimes there are things that I HAVE to have, and I'll weigh whether some pain is worth having those things... like are those Oreos really worth it???...
I have had 2 infusions so far and they are administered over a 2 hour period... my doctor's office does not give other meds until/unless there is a reaction. I'm in the office for about 2 1/2 hours....
I have had 2 infusions so far and I have found that I eat a whole lot less now... it really kinda made me lose my appetite. But just like all things Crohn's - no two are alike :)...
I personally do not have a port and never even thought about it. My daughter used to have one for chemo, but it has been out for years now. There was never a problem with it, but the doctors said...
I have just started Remicade (2 treatments so far), but I know from speaking with the nurse who administers it to me that she has patients who have been on it for several years, far longer than 1-2....
I was diagnosed at 16, and it started out with extreme weight loss, pain and vomiting. They had me on Prednisone to get it under control. Soon after I started 6MP, and aside from mild to moderate...
Are you already off of your dad's insurance? Because if that's all Medicaid needs in order for you to apply, then that's your best bet. If you're not off of it, you should still be able to use it...?...
I have found that I get heartburn/acid reflux at higher doses of Prednisone and they lessen as the Perdnisone dose gets lower. I take Protonix and that makes a huge difference for me....
I was speaking with the RN who was giving me my Remicade infusion, and we started discussing Rem vs other biologics. She was saying that the docs in my office have found that they see the best...
Hi all! I just wanted to share, update... Here's the condensed version: I had a horrible flare back in January which caused me to land in the hospital for a bit. I ended up on a course of Prednisone...
Wow, that was wonderful! As it is still cold up here, I haven't been able to have much sitting outside and enjoying the world time.. but I did see a beautiful red cardinal zip by in front of my car...
Why is ok for people to remark on how much weight a person has lost, but who would dare say how fat someone has gotten??!! I've heard that too - when the same people who know that I was in the...
Give yourself as much time as you think you need. Going back too early will only set you back, or so I believe. I am out on disability right now because of a bad flare. Although I am feeling much...
i once read that if people with UC smoke one cigarette a day, it was shown to help with the disease; but smoking aggravates Crohn's & Crohn's symptoms... i have found that being around people who are...
i was supposed to get my second remicade infusion last thursday, but came down with a cold 2 days before : ( we rescheduled to this week, but i'm not quite over it yet, so i'm going in next tuesday...
DAIRY DAIRY DAIRY... I had a bowl of cereal yesterday for breakfast, idk what I was thinking! But I felt it all day :( also, peanut butter, anything with coconut oil in it, or seeds in/on it, pork,...
I feel that way......
I get bone pain in my left thigh and sometimes it's so bad it goes down the back of my knee and into my foot. I've found that it's worse when I'm on higher doses of prednisone....
I was diagnosed at 16.. everyone thought I was anorexic and told me to eat.. or that my abdominal pain was "just gas" and no one would believe me that SOMETHING WAS WRONG... finally someone got the...
The one Crohn's side effect that I wouldn't mind having - weight loss - is the one I don't have... the only time I lose weight is when I'm in a serious flare and can't eat ANYTHING... literally...