I had high hopes for this....tried it for 3-4 months with no change....then tried adding some probiotics to my diet, no change...now I am on to the coconut oil...hoping THIS will make a positive...
I don't have much luck with pain killers in general. I was on liquid morphine for my Pg in my leg, and it didn't touch the pain I was having.I was put on tramadol this week for a pinched nerve in my...
glad to hear it myrne!! I can hope. Best of luck to you with everything. Keep us posted! Hugs & prayers to you...
I have been on prednisiolone for the last 2 weeks..started at 30 and tapering 10 a week. I have gained 20 lbs in this time frame. I am at 115- more or less what I used to be when I was well. I am...
positive thoughts & prayers to you and your loved ones...
I have really dry skin also. I can take off a dark shirt and see it covered with white dead skin.I am getting a lot of relief from the Vasaline spray and go oil. Its keeping my skin nice and soft....
tried all the diets and nothing made a diff. never heard of helminth, so will look that up. With the humira, its been avoided due to my family risk of leukemia, lymphoma & melanoma; also its not...
I was just wondering opinion/ experiences with steroid treatments. I am currently on prednisolone starting at 60 tapering each weeks for four weeks at 15 less each week, This is the only thing I have...
I love steaks and such and oddly enough my wacked up Chrohns savaged body handles it better than anything else, besides crab meat. Cant tolerate much else, so I eat a fair amount of it....
any idea which issue this is in? thanks for posting itits good& I will be ordering the book as well thanks again...
Going to try and make a long story short /community/emoticons/confused.gif I have been house bound for almost 2 years due to the severity of my Crohns. Except for a 3 day hospital stay for a blood...
my gp wont do prednisone( i usul take prednisolone) he feels he side effects are to long range. Done te brat diet also, everything turns into liquid.....nothing makes easier : ( Diciliome? is is a...
I have been a Crohns sufferer for years. I have tried all meds leading up to Remicade, which I took 5 times until I developed an allergic reaction & was tested to see if I had the antibodies,...
I also deal with PG and have for 5 plus years.No pain medication has ever touched te pain I feel for this, so I dont use any, besides an occasional tylenol. Advil isnt recommeded for Crohns patients...
im ordering the VSL this week from amazon....my dr wouldnt write a scrpt for it. Feels there isnt enough info on it.I currently take the OTC Culturelle 2 times a day and see some improvement. Hoping...
Pretty much everything I eat, does not agree with me. I do seem to have less stress in my gut if I eat different meats. Going to try Bison this week after hearing about how much more protein it...
i tried to take a taxi and they wouldn't let me. Made me wait til my daughter got off work at 9pm. Glad he can take you after all!!...
I called my PC and he would't prescribe the VSL #3 said he didnt know enough about its benefits. So I am going to order some thru Amazon. Hoping tos see improvement. Currently taking OTC Culturelle...
ordered some thru Amazon today; hoping for great results! Nothing else seems to work....
tyvm...
Where you able to order from? I looked online at GNC and the didnt carry it - froma small area so there are no herbal/alternative shops available. Keep us posted. Im so sick of living in a bathroom...
They told me that with PG it affects skin/ wounds healing. So to risk taking a skin graft I could risk having 2 open wounds if it didnt heal properly. Also with the immune system being poor that also...
I have had a big wound for over almost 4 years now. They have told me they dont expect it to close. We continue to try new dressings and the thing ebbs and flows. Its painful beyond belief, but no...
pyoderma gangrenosum........sucks to have /community/emoticons/shakehead.gif ...
polymem non adhesive pad...we are trying something new the last few months by applying some hydrocortizone cream to the pad. After thats on, I wrap a kerlix around it to keep it in place. I dont do...
My wound seems to be more moist, with the more I am up on that leg or use it more. Like if I drive or use steps, etc. The hydrofera worked for a few months for me then we went to Polymem Foam Pads....
I used the hydroffera blue in the past, it didnt do anything for my pain, and kept my wound too moist, so I had to switch to something else. I was told you have to use sterile water with it. Glad you...
I was just going to say, they told me with having PG, a skin graft was out of the question. Mines also on my calf, and after 3 years they have said they dont think it will ever close. Keep us posted...
sorry to hear you& your husband are dealing with PG I have had it for the last 5 years. I have yet to find a pain killer to touch the pain. Morphine in an IV did nothing. Oxy did nothing. At this...
I also suffer from PG, I have a wound that covers almost my entire calf , from knee to ankle. I have had it since 2007. I have also been told there is a good chance it may never heal. I have had...
I was once so happy to have found a site to connect with others and commeserate on the things only other fellow Crohns patients had to deal with. I was even more thrilled to find others that had PG...
Penny, my email is in my profile Kimike...I have bc/bs federal and they wont cover the hyperbaric chamber, and the wound clinic I see feels that until someone has almost closed their wound, its not...
Havent been on in a few days but I am thrilled to see we are on to a part 4 !!! Im just sad we keep having new people joining....well not the people just the fact there are more suffering with the...
Sounds like lunch was a wonderful experience!! Hope you guys can make it a habit!!! Kimike, glad to see you back. I understand what you are saying about the healing the outer not the underlying...
Tender hugs to all Aww Penny, I cant believe they keep wanting to scrape that wound...to mess with the good healing makes no sense. I will mention it to my derma/wound clinic dr when i get in there...
Penny, Im thinking the scraping may not have helped you in healing, but when my wound increases in size , the reasoning behind it is that between the anemia, vit d deficiency, zinc being low, and the...
i have been prescribed 2 different creams...one from the surgeon called Accuzyme Ointment ( Urea, papain) and the other is called curasol gel wound dressing. Both carried at walmart with a...
Good to hear from you Penny. YAY on the good news and prayers on the rest. Concerning the wounds, mine never get scraped, they have said that damages any good growth to me at the wound clinic and the...
Hey Penny, I have been having those long sleepless nights also. One of my wound nurses said that humidity makes wounds throb more, not sure if that is it, because i seemt ohave the pain all the time....
WB....sorry you have been so fatigued...I have that constantly also. I have pics of my wound ...not sure if we should post without a warning of being graphic...maybe a seperate thread? mods? I always...
All mine that have healed over are sensitive still. My gastro told me when in a flare to avoid shaving, he said the slightest cut in the skin could trigger another outbreak of the stinking PG. The...
Glad to see your post Norma and sad that again we have a member of the group no one wants to join, PG. Stay in Touch!...
Good luck to you and with the treatment process. I would love to see you get some results. KEep us posted when you can with how ans what they are doing. I feel for Amber, as my kids went thru it with...
I was using the Restore Silver dressings, but it was not encouraging the healthy cells to grow as well. (I think it has more to do with where it was placed- it had to go across the shin bone and sort...
My sister had one done, to rule out MS, she was told to lie flat after getting home, but they also had her lie still for an hour after the procedure. She had daily headaches before they did this, due...
Mark, any dr/np should be able to order the ANA...its just on a blood test, it can be done along with wbc, rbc etc. I started thinking more and I think there is also blood work that can specify...
usually I think its the ANA...and thats a positive or negative for autoimmunes, if Im not mistaken....
My gastro only has one other patient with it....it happened at the ostomy site...after the surgery and has been causing her all kinds of issues. My take on the different coverings, is they all seem...
I was on the wound vac for the first 2 weeks, after that went to the Restore Silver( which is like a brown mesh material), then went to silverlon, then to Hydrofera Blue, and now I am using PolyMem....
What type of treatment are you doing? is it a moist covering? packing it? or are u being advised to keep it open? I have done a lot of different treatments and am always curious to know what others...