I'm sorry you have been given the diagnosis, but at least now, you can proceed along the path of finding the right treatment and getting back to feeling better. I have lived with the Crohn's...
Had repeat blood work today. AST is back to normal. ALT is back down to 400ish, so down 1000. My GI ran ASM but the results aren't in yet. Also my Ferritin level is fine. At this point he is stumped....
My insurance will not cover it either. I pay out of pocket for it. I don't know your financial situation, so I can't speak to it. I will tell you that I get it from a local compounding pharmacy (I am...
I haven't taken any new medications or in any new amounts, so I don't think its from a toxicity from something I took. I have wondered about AIH too. I will be having my new blood work this morning,...
Hi All, I usually post on the Crohn's board. I went to the ER on Monday with a bowel obstruction. Of course they ran blood work before they did anything and to every one's surprise my Liver panels...
I am sorry, but any GI who tells you they can see into your small intestine with a colonoscopy is NOT to be trusted with any information, because that is straight out lying. At the most, they can get...
I have had some gastroparesis issues and have a motility problem since my last resection 3/11. I tried the Erythromicin but it didn't work for me. My doctor put me on Domperidone. It is not approved...
My GI's group employs a PA who has Crohn's. He doesn't work directly with my GI, but covers for him in the hospital. We have had some really good conversations and he knows all the doctors at the...
Well that totally sucks. I hope the pred works and fast. Hope you are feeling better soon....
Oh Randy, I am so sorry. I hope the stretching works. I will be keeping everything I can crossed for you and keeping you in my thoughts and prayers. Best wishes. ((((HUGS))))...
I am so sorry for what you are going through. You need your family's support, please tell them. They may flip out, but not at you. They only want what is best for you and I am sure they love you and...
Dave, while I don't doubt that SCD and all the other diets out there help. And that keeping to as natural a diet as possible is good for us, it isn't always possible and to think it is is just naive....
Eve, I have sent Sniper an email, not sure if he is getting email, but let him know it is waiting for him and that he and his bride are in my thoughts....
Thank you Gail for making what was obviously a very difficult post. You know you are loved. And to Jon, Wow, just Wow. And still Peter is silent....
This has bothered me to the point that I am not sleeping. I have been in touch with both Ivy and Gail several times over the weekend. To their credit, the details of "their" side have only been told...
Tom, There are many Mods who have been here longer than I have been and been Mods longer than Gail. As Judy2 says, they were not told there was a tenure, they were just dismissed. If we were rotating...
Me too. I just feel like my family has been torn apart with no warning and with out a reason....
It is used off label for Crohn's. I have been on it for over 4 years. It cut the number of bathroom runs from 20+ to 5 - 8 a day. Basically it gave me back quality of life. I have no side effects...
Please keep all your positive thoughts and comments coming. Both Ivy and Gail are feeling very low right now and can use all the positive energy they can get. I know Ivy has been posting, but Gail is...
I would like to know who our new mods are? Are they going to introduce themselves in the next few days or are you looking for volunteers?...
Oh and I plan lots of trips on my laptop that I will probably never take. But its fun to dream and now I have lots of facts about all kinds of places. Another great thing on the computer is...
I would like to not judge. I would like to have a response and hear from the other side, but it is not forth coming, that to me is telling. I will hold judgement until later, but if there is no...
I have my kitties. They keep me endlessly entertained and need hardly any tending. They like to purr and sit near me. They play and I watch. Sometimes they snuggle and snore with me. Hubby does all...
I was on BC pills for years and on 6MP at the same time. I can not tell you about a decrease in effectiveness because I had had my tubes tied and was on the pill because of heavy bleeding. Last year...
Since the majority here seem to be as shocked and upset as I am, I would like to suggest that you email the Admin personally. I do not know if Peter reads these posts. I think he should know that his...
I am as shocked as you are Dunny. I have felt nothing but LOVE and SUPPORT from these wonderful Moderators. They have given freely of their time and to be "let go" with out so much as a word of...
I was on the BC pills for years AFTER I had my tubes tied because my periods were so heavy and caused so much grief. I took them continuously for 3 months and then only had to deal with a period 4...
I stopped worrying about my scars when I had to have my gallbladder out at 24 and got a huge tracing of my rib cage. The scar must be 15" long. It puts my resection scars to shame, but then again, I...
There is a cookbook which is out of print but used copies can be found on Amazon for about $4. "Cooking Well for the Unwell" by Eileen Behan. She is a Registered Dietitian. The book has many...
When I first started to have problems that sent me to the doctor at age 13, I was coming home from school and having a glass of milk and a nice big apple every afternoon. So for me I don't think that...
Here in the NE USA it has been 20+ degrees above normal all of November. I am sure we will end up paying for it on the back side of the Winter season sometime in April, but for now I am not...
Good luck with your test. I hope you can get the results you need to get started on the road to 100%, or 95%.......
I just saw a button with an elastic attached to it in the Solutions catalog last night. They come in sets of 3. Each one gives you a bit more room. I think they were 1 1/4", 1 1/2", and 2". The...
Hi there and welcome back. Glad to hear you are doing OK. It makes a huge difference when we have doctors who we trust and who work together. 2011 has not been a good year for me. But it has been...
Habs, I do that all the time, I started doing it when I was first pregnant and just started showing but didn't have maternity clothes yet (daughter is 24 now!), but I always have a pony tail holder...
Oh No, I have 2 daughters that keep me pretty well updated on the trends and I am no longer working so I don't need to go out if I am having a really bad day, I just stay in my jammies. I just think...
Roni's post has brought up something that I had been thinking about off and on about for a while. Does anyone ever watch TLC's What Not To Wear? They basically take some one who doesn't dress well...
I never noticed any difference. I have been on massive amounts for more than 10 years. Started at 50,000iu 1X week, after a few years my D level was still dropping, so I increase to 10,000iu 1x a day...
Cipro and Flagyl are 2 antibiotics that are part of the arsenal used to treat active crohn's disease. Sometimes they are used together, sometimes one with another medication, and sometimes, just one...
Lululemon, Athleta, and Title Nine, all have some really high quality yoga type pants with stretch to the them. I tend to get low rise or mid rise jeans and then they sit below most of my belly...
I can usually wear jeans, but there are days when only a loose dress or sweats/leggings will do. I was actually in a store the other day trying on jeans and the sales lady was trying to help me find...
I never used to burb, but gradually I have started to, and of course, I have now had 4 resections and have GERD, so I do think it is part and parcel of CD and surgery. I take double the OTC Prevacid...
I barely ate. Just a bit of mashed potato and one little bit of turkey, but that is all I have eaten since Thursday. I am in a world of pain. It wasn't even good mashed potato or turkey, so it was...
Well Happy Birthday To YOU!!!! Glad you are celebrating someplace other than a hospital, Woo Hoo indeed!!!! Enjoy a nice big piece of cake....
I ate a very little bit at my SIL (can you believe they didn't have stuffing, how can you not have stuffing at Thanksgiving?), but I am paying for even eating just a few bites. :mad: I'm making my...
Hello and welcome, though I am sorry that you have to be here. Like Kazbern, I too was diagnosed after the birth of my first child, she is 24 now. I also have a 21 year old, so you most certainly can...
I agree that the prednisone can really mess with us. I have been on some dose, low to high, for most of the last 23 years and have pretty much become steroid dependent. I know what games it can play,...
I just had my "intake" consult for my second opinion over the phone with my doctor advocate. This process should take a few weeks and then I will have to make a decision. This doctor is suppose to be...
As many of you know I have been having a rough time of things this year. I am in the process of getting an expert second opinion from my insurance company. The process will take a couple of weeks. If...
And tomorrow (Thanksgiving) I will have to act NOT sick. This has been my dilemma all week. I really feel crappy and don't want to go to my SIL, 2 hours away just to watch everyone else eat. But if I...