Couldn't find any CBD posts in the Crohn's board so thought I'd ask, is anyone giving it a shot? I recently started it for anal crohns. I apply drops to gauze and wear it all night hoping it will...
Diagnosed 16 years ago when I was 14. My insides got better and my PCD got worse. Started to get fistula and perianal abscesses that were ignored by my dr (need a new dr). Kind of a mess down there,...
Im an engineer for a medical device company (power wheelchairs in my department). Perianal CD is making life difficult right now but I still manage to make it to work. A perk with my company is that...
Soft drinks are probably really bad for Crohn's, but hes going to have to stop it on his own. I've had Crohn's for at least 11 years now and I'm just now getting to the point of actually trying to...
I intend to keep SCD going at least 6 months to a year before I try to leave Humira behind. I need to know how the diet makes me feel and if I will be able to stick with it. It will suck to mention...
I'm intending to begin the SCD after I get back from a mini vacation in July and I had a question before I get things going. I'm on Humira and I've been on it for 3 years now with good success. I was...
I have been on Humira for more than 2 years now with pretty good success. However, lately I have been getting these weird sensations in my face and it feels numb. When it happens, I give the area a...
Thanks for the advice! My family isn't really supportive of my ambitions to move to such a large area, but I feel like I'm trapping myself by staying in such a small area. I guess I will just have to...
Hey everyone, I've lived in NW Ohio my whole life... so it's been about 25 years, and I think it's time for a change! I went to the Chicago area for Spring break and I absolutely loved it over there....
I try to ignore CD every day... and you are right when you say it will never try to ignore me. It's always there waiting for the next opportunity. I fear the day when I run out of drugs that are...
We had dogs my whole life, then cats, fish, hamsters, hermit crabs, birds, and rabbits. Now just a dog and two chinchillas. My brother and I did our share of playing in the dirt too lol those were...
I want to start taking some vitamins to make sure I'm getting sufficient follic acid etc. What is a good brand to get? Is the Wal-Mart Spring Valley just as good as any other? I don't want to bother...
If I were you, I would go for MTX first. My doctor wanted me to go on Tysabri as well, but I refused and insisted that I go on Humira. If the MTX doesn't work... I would give Tysabri a go before the...
I don't know if my Diet Coke addiction did anything with the disease, but I was finally able to give it up after years of drinking way too much. Worst headaches of my life, but I feel like I'm better...
Thanks! I've only been on it for a week now, and I have had minor problems sticking to it. I have a small bite of things I shouldn't here and there, not that much though. It was really hard to give...
I've been trying the SCD diet for a week now, and I seem to be doing ok. I was wondering if there is anything to drink besides water? I have been drinking some fruit juices that say no sugar added....
Hey, I started Humira about 3 months ago. I have no side effects so far, hoping to keep it that way. It seemed to work extremely fast for me, my flare was all settled down before my second loading...
I am a full time engineering student, and a nearly full time fast food worker....
In my experience, I go through periods of acceptance, regret, and anger. I think it depends on how much I dwell on it. Which when I'm sick I dwell on it more, and of course you are going to feel...
If something works for you, be sure to post it! I am curious to know!...
How critical is the storage temperature to Humira? My fridge is about 30 yrs old and it seems like the temp fluctuates sometimes. I put a thermometer in the fridge and it read 40 degrees so I put the...
I think my problem is similar. It never used to happen in bed so much though, but when it did happen I had full body itching along with a light red tone to go with it. Mine happens usually when I'm...
Thanks for the reply, I was thinking that the reaction would take minutes or something. The fistula I have has been with me for years, and it is kind of strange. It likes to drain and heal up again....
So, I finally got approval for Humira, but now I'm a little concerned. I live 11 miles away from a hospital, what can I do if I go into anaphylactic shock at home? I was also curious about some other...
According to the producers of Tysabri, the risk of PML is measured at 0.1%. That is one person out of every 1000, and I've heard that they exaggerated it just to be sure. I think there have been a...
Usually two, maybe three squares folded for me....
First, I hope your arm gets better! I have heard that CD is statistically higher in Jewish families, but that doesn't mean anything. That probably just means that in this point in time, it just so...
I do not plan on getting it. I really don't see it as much of a threat as the media makes it out to be....
Personally, I would have went with the usual. Especially being in that much pain, and having that much inflammation. Prednisone probably would have had you feeling great in about two days, and to me...
I think the closest I came to 30 was about 24. If they hadn't come out with the 500 mg Pentasa I would be now, because of the different supplements I take now....
Don't expect it. In my experience, you can't expect much of anything. Not to say things won't improve, but CD does what it wants when it wants. I have had diarrhea for the better part of that last 10...
I think prednisone usually seems to be the first course of treatment, but not necessarily. I have heard of docs going right for biologics like Remicade first....
I've spent a lot of time thinking about whether or not I will ever be cured over the last 8 years. Right now, I feel the best I can hope for are drugs that control the symptoms better than they do...
Prednisone always works in about 2 days for me. I bet 5 days is more than enough for anyone....
I haven't heard anything since Osiris announced that there may have been a design flaw in Phase 3. That was back on March 27. You can read about it on Osiris' site at:...
Thinking about trying it myself. Where can you buy this stuff anyway?...
As of right now I eat out and eat anything I want, but I probably shouldn't be. I really want to start the Maker's Diet soon, I just can't seem to find the time to make that kind of change in my...
Hey everyone. I had been waiting for approval for Humira for about 2 months, but now my symptoms are starting to become more frequent. I was wondering if anyone has ever self medicated with...
I only had experience with a couple. Fleet rocks, couple glasses of nasty stuff and you are good to go! I cramp a little on Fleet but it was worth it... I'm sad I can't get it anymore. Moviprep was a...
After you started the Aveda, did the hair you lost grow back? The right side of my head seems thinner than the rest and I'm trying to figure out if it is Crohn's, medication, or pattern baldness. The...
I was probably sick by the time I was 12, and then I was diagnosed when I was 14. Heh, I was in Jr. High at the time, and I will never forget the time when Mr. Powers called me down to his office to...
After itching for a little bit, the worst thing I ever got was tiny red dots where I itched the crap out of skin. I'm pretty sure I've been on Pentasa for about 6 years, but I don't remember if I had...
For years now I have been dealing with itchiness all over my body, in certain environments. It seems to happen when it wants too and then I itch from head to toe. The sensation feels like 1000's of...
So, evidently my insurance company isn't going to pay for Humira, and so my GI doctor's office gave me a form to enroll in the assistance program. I was wondering if anyone on here has ever went...
Does anyone know how long after open label a drug is approved for the general market? Also, does anyone know approximately when we might expect Prochymal to be FDA approved?...
I'm sorry that the TNF blockers don't seem to work for you. There is Tysabri, which works as an α4-integrin blocker. However, there is a risk of getting a brain infection called PML. The...
I'm choosing Humira over Tysabri, and I will be starting it in the next couple of weeks. Hopefully things will go well for both of us....
You are definitely not being selfish, I would be infuriated if put in that kind of a position. I hope that one day he will understand....
Maybe it is just not possible to cure a genetic disease? It's not like medicine can change our genetic code, am I right? If CD is definitely genetic, I won't be too shocked if modern medicine fails...
I hope that they are not doing that! We may not have a cure on its way just yet but Prochymal shows a lot of promise for putting people into remission almost side effect free. So I'm optimistic at...