Dear Grimble, if this is any consolation I am in the exactly same boat as you. I mean EXACTLY. So hives started appearing about 6 months ago and everyone was like oh yeah that is mold or food...
Folks, I have been suffering exactly the same problem. Severe hives and the itching burning is absolutely the worst, want to sometime just rip my skin off. So last week I went to the allergist, they...
I have been asked to up it to about 3000 IU a day. but have hard time taking those giant tabs. Any recommendations for softgels. Thanks...
Elbarck, I am exactly in your situation. I have been on and off prednisone for over 5 years now for CD/Colitis. I was on Fosamax, but I was missing doses, so now after some back and forth with...
Thanks Judy for your reply. I am in the U.S and my rheumatologist offered it me last month and I still haven't made up mind. I have full-blown osteoporosis, I was on fosamax (generic), but did not do...
Hello All, I am a relative newcomer to this forum. I suffer from Crohn's disease. As a result I currently I have steroid (prednisone) induced osteoporosis. The Doc is recommending Foreto...
I can only imagine how my spouse is feeling. CD is tough, I am going through a flare right now, I am also pre-dependent, and on Remicade, plus pentasa, plus entocort, plus some temp cipro, plus...
Ok, now I understand better, now you are doing things post surgery, so when did you have your surgery. Because the whole idea of having surgery is to give you that long-term remission. That is why my...
Not sure about the effect, but my take is that the prednisone is lot more effective and more immediately effective because pred is a like a nuclear bomb it suppresses the entire immune system,...
I have not been able to establish a direct correlation between diet and improvement in the inflammatory process of CD (which apparently is an autoimmune trigger). I have pushed GI's to explain this...
Here is a story that all of us could relate to. I am all of the things suggested in this article, with the exception of MTX, I have tried everything. Would this really help us? Not sure. I am not...
Hello, I am sorry to hear your troubles, I am borderline diabetic or pre-diabetic, which was induced beings on steroids, increase in cortisol levels increase the chances of blood sugar and blood...
Thank you everyone for your response. Now the remi is working in the sense that my flares are not as bad it used to be. Earlier if I get a flare it was emergency all the way, nothing, nothing could...
Thanks Nanners, I remember that, but failed to clarify....
stef17: thanks for your response, much appreciate. I see we joined around the same time, my active disease timeline is pretty much from middle of 2002, although I had a two-year remission in between...
I have been on Remi now for about 1 year, dosage moved from 8 weeks to 6 weeks. But, I am flaring and I cannot get off Prednisone at all. Every time I drop the dosage to about 5 mg, I start to flare....
FunGuy, I have completed stopped alcohol of all sorts, so that when I go to the doctors there is no question at all. I love checking, no drinking, no smoking, no eating crap, but the CD keeps coming,...
Nope, sorry No, happily lived after (resection). Once you get it never goes away, it is a life time thing....
Yup, very very strong link between Imuran and pancreatitis (it apparently occurs in about 10% of the cases). I go it about one week or so on Imuran, was in the hospital for more than week. First they...
Fellow obstruction suffers, I am in a similar situation. I am presently on Remicade and every time I drop my prednisone down to about 2.5 mg or less than 5 mg. The pain hits and hits bad, bad, bad,...
Wow! That is something CrohnieToo....
The challenge with Tysabri as I understand is that it works by blocking the white blood cells from entering the gut (which is the source of inflammation), GI doctors are not sure if that is the right...
I am not sure my post will help anyway, for me remicade only works for two weeks. Besides that I am on prednisone, and simply cannot function without it. I manage to taper down then flare badly. So,...
Doctors in the developing world, esp in Asia strongly believe mostly or almost all GI ailments have a bacteriological or virological roots. So they do zone in on GI TB quite a bit, but doctors around...
Yup, patsybell, keep us posted and updated. Good luck with the procedure, it might require overnight hospital stay...
I am also considering a switch, because Remi is not working for me for more than 2 weeks (to be exact and I start to flare), I am not sure if I am ready though because Remi is a frontline drug for CD...
I am not sure if you do this or not and whether you have permission from your GI or not, in my case, I always need to bump up pred dosage, every time I taper down to 5 mg or below I flare, it is a...
Several years ago I had the rubberband seton (cuttin setton) placed, it helped me a lot. At first it is very difficult and I was not able to sit at all and you constantly feel the pressure of the...
Hello all, I have been on remicade since last october, but the effects of remi have started to wear-off for me, I was one it once every 8 weeks, now I am on it every 6 weeks, my next dose is in June....
Yes, I have been also getting these sort of boils and other infections and it is probably due to being on remicade for me. Normally, most of my boils are in the armpit area and I had one in the neck,...
Yup, the advantage is better picts and there is no exposure to radiation that you get in your regular scan. The procedure is same as many have explained it below, but the only thing is that stuff you...
This is an interesting discussion and I am learning a lot from it. Now, I am in familiar situation, I am on remi now, but it is not working more than 4 weeks at a stretch and my next dose is not up...
debilitated: how do you know that you need strictureplasty for CD? What diagnosis did they run on you to make this determination (just curious). From what I understand strictureplasty still involves...
tsitodawg: just to be clear that you are saying CD/Colitis (not UC) will not be cured through total colectomy or proctocolectomy or even ileostomy for that matter. My understanding was that these...
I have had 5 infusions so far, week 1, two weeks later, 4 weeks, and 8 weeks, 8 weeks, but from Jan to March I have three flares that I had to bring down with prednisone, at the end of this week I...
Dear PV, Thanks for your message of wishes, much appreciate that. At times like this, we really need that support. Hope your hubby is feeling better or least has some good days. Now on the question...
PV: Your husband's situation seems very similar to mine. I get sudden and acute flare, exactly as you described...boom, it hits and hits very very hard, severe pain, 11 on 1-10 scale, nausea, violent...
I did not know that I had CD for about 12 years, I would have gut pain, i.e, pain in the ileocecal valve area (that is the epicenter of my CD), but the CD went undiagnosed. Suddenly it flared with...
Hello all, I have been on and off prednisone for 3 plus years, only thing that works for me, I got on remicade last october; only 4 months and I am not getting much out of it, because it I am...
I have heard of this type of internal fistula occurring in people post surgery. With fistula running across two sections of the bowels, you can try remicade if you haven't yet, and also there might...
Folks, I have been away for sometime traveling and dealing with the birth of new baby (in NICU now), more about that later. I started remi last october, I had two initial loading doses and then...
If you haven't tried Humira yet, it might be the best way to go...give it a short before surgery. Surgery is not a cure and it has a high relapse rate, but I know of one person from my college days...
Dear PV, your husbands symptoms seem very similar to mine and we fall more or less in the same age group, but I have been on pred for over three years, now I am on very low dosage about 5 mg. I got...
Dear CD forumites, I been away dealing with CD as always, what is new. Anyway, I have new complications now. Because of my long-term prednisone usage, now I have full-blown osteoporosis, particularly...
Many people don't know what CD is, they are ignorant, as we are about several disease ourselves. I was completely unaware of CD until it hit me, now I generally try to understand other diseases as...
I have been on and off prednisone for the last several years, now I am on a low dosage of 7.5 mg, I am not sure if it does anything for me, but I am hoping that it will keep me away from the...
ozziek, just like I am allergic to Imuram (or 6mp), hence, I am on 7.5 mg of pred, 8 pills of pentasa and I have had 2 doses of remi so far, I am really hoping that remi would work for me and keep me...
Folks, I have had two loading doses of Remi, one starting, one after two weeks, now I am scheduled for 4 weeks and then 8 weeks after that. I am not sure if the Remi has started to kick in for me, I...
They give me Bendrayl (25 mg capsules) and plus tylenol before the infusion. It is not done through IV at least for me....
I haven't had a chat with my GI recently, but since I have been on pred a while, I am not sure they want to jump-off Pred that quickly. After a dose this week, I will give a buzz and see how I should...