Hi Nanners: Gson is doing much better. Specialist put him back on 40 mg Prednisone and upped his Imuran. He has a mild case of the flu but it is settling down already. Yes, they probably should have...
Hi all: It's been a while. My gson had his H1N1 shot and his regular FLU shot at the same time. That was a week ago yesterday (Wed). By Saturday night he had a mouth full of huge ulcer, and Sunday...
Hi Doc2007, spookyhurst: My g'son has been on Humira since Apr/09 - one shot every 2nd week - he is also on 80mgs of Imuran. He is anemic, fatigued, achy & sore all over but no nausea or...
ExJohnson: I'm no help at all but I'm glad you are asking these questions... I was wondering the same thing. My g'son has what his GI called a fistula (an open bleeding crack) at his anus. He also...
A short update on my g'son's progress.... He was scheduled to have his Humira shots today but had to meet with his GI 1st.. he still has a flemy cough so now has to wait till Mon to take his Humira....
ivy6: I haven't attended church in 20 years but a couple years ago I had to make an 8 hour trip to a big city, in severe pain, to have surgery in a hospital that had a "trauma center". I didn't know...
Thanks for all the links re Curcumin & Tumeric. I'll have a look at them tomorrow. Ozone: I also ordered Reishi M. Extract from Mitobi Mushroom company. I'll try them 1st before giving them to my...
Update: Suprise! My grandson was released from the hospital tonight. GI want to see him Fri. before he gives himself the Humira injections... he's never done an injection before but I guess he'll...
Hi PV & Shawn: Good news as far as the hgl count goes - yesterday was at 104, today 117! He is estatic! In regards to the "decrease of steroids by 10mgs per day".... Yesterday he was on 50mgs,...
Thanks atctackett & PV: My g'son's GI is tapering his prednisone by 10mg per day. Isn't that a little fast? I've told my g'son to ask her to slow it down. Also, his hgl count is dropping again.......
Rider Fan: I've had time to read a few more posts & happened to finish reading yours. I'm so sorry to hear you've had more than your share of problems with Crohn's. 10 yrs & you are still having...
Guess I jumped the gun a bit... just talked to my g'son on the phone & he is sick again! He has a cough & flem in his lungs, not feeling well at all. Still retaining fluids. GI doc was in & took took...
Jenn: how are you doing today? Your suffering seems to stick with my mind.... sending more prayers your way! Back in the 1960's my mom had a couple feet of her bowels remove & back then the...
My g'son's GI actually suggested that we might try this supplement on my g'son.... It was her suggestion.... I was suprised to hear a med specialist suggest a herb! After reading up on Curcumin, I...
CURCUMIN 95% I forgot to mention that my g'son's GI said that if we were considering putting my g'son on any supplements, she would be okay with "Curcumin 95%". I had never hear of it, googled it to...
Thank you all, for the continuing support! I truly believe his GI has made 3 major mistakes in her treatment of my g'son this hospital stay. Taking him off the steroids cold turkey, removing him from...
Hi everyone: I was in to visit my g'son again this aft. He is doing better, hgl count is 108, pain & diahrrea still the same but the "yuky feeling" & flu-like symptoms have gone..... Probably because...
Lots of Hugs, flutterbies! I can imagine how freaky this new diagnosis of Crohn's is to you. My 19 yr old g'son was a healthy, happy, extremely "busy with life" teen last Dec, just before Xmas. Over...
Oh, Jenn, I am hurting for you! I know what you feel when you say you are "afraid you might never wake up" if they put you under. I've had 22 leg surgies & each one has made me more afraid of "going...
I just spoke with my g'son on the phone. He says his CD symptoms are still the same (frequent watery, bloody diahrrea, pain, etc) but he "feels a little better" overall.... not as fatigued, says that...
I honestly have no idea what a colostomy reversal is, Shawn, but I do know that this current "blip" in my g'son's life is just one tiny bump in his long "bumpy" road of CD. Here you've been facing...
Just back from the hospital now, my grandson has had 2 units of blood, his BP & hgl count have already strarted to come up. I had a consultation with the "assigned GP" & 2 of his nurses this aft,...
Hi CatMan: No... quite the opposite. Since she reinstated the 50 mg Hydrocortisone two days ago, my g'son has been feeling really sick... flu like symptoms, aching joints/muscles, nauseated, increase...
Rider Fan: Thank you. For a while there I thot I had lost it!!! Our BC hospitals use hgl count as 85 not 8.5! I am a bit worn down from all this but I think my mind is still working! He is going...
Thanks MMMNavy: This is the information I have on "blood transfusions" (see below). Unfortunately, I have needed many in my life time. My g'son's hemoglobin level was at 86 last night. His GI said...
Hugs, Jenn...
I am touched by the tremendous support this forum offers! You are all such beautiful people.... To say thank you, hardly seem enough.... you bring tears to my eyes. I can't think of a better place to...
fimk: Thank you for your kind words. By my age you know you have to take care of yourself before you can be of any help to others. That's life. It's just so frustrating, being a bystander, watching a...
My g'son is in the hospital with a flare right now. My heart goes out to you, sr5599. Hugs & hope you "get well soon".......
randynoguts, Valerie3, gachrons.. Thanks you for caring! I'm back from the hospital... here's the latest update. Jenn, you & randynoguts were right.... it is a central line with 3 little tubes...
Thanks PV. I'm off to the hospital now. Talk to you all later....
Thanks Nanners! These are the questions I've come up with to ask his doctor. Any suggestions? QUESTIONS: What is the purpose of the tube going through his vein to the heart? Was this anaphalactic...
Thankyou so much for all the hugs & prayers - orngie, PSI.Delhi, EMom, Crohnielass! Onthecan Jenn, I'll find out later today exactly what that tube to his heart is doing. I feel badly that you have...
Well, my g'son is now in ICU (Intensive Care Unit) with a tube in his vein going to his heart. His BP bottomed out but is slowly on the rise again. He is blacking out, losing his vision at times,...
I am so sorry you are hurting jamiii. You & all the other people on this forum are my heros! And, I (one of the people) say the stupidest things when I see you hurting. Most people (including parents...
If you were my granddaughter Jenn, I would take you to the hospital ER. Perhaps it would speed up getting other issues dealt with. You deserve some TLC. You've been through enough!...
SherryAnn: I'll have to look back on all the posts to find the mention of Reishi Mushrooms as you mention in your post. However, I would paste the following into into "google" to get some interesting...
Wow, Jenn. You've certainly got a juggling act for the next little while - how on earth do you set your priorities! Everything needs to be attended to, like yesterday..... I hope you have a bunch of...
My g'son is hanging in there, Jenn. Beef upsets him too. He couldn't take the soy milk so has gone back to 2% milk. How are you doing?...
Hi Amy: Am glad to hear you are in remission! May I ask what dosage of Slippery Elm Bark you take and do you take it daily? Is it liquid or power form? Is it organic?...
Thanks EMom. I will pass your best wishes on to my g'son. I am so glad you son doesn't have to be on all these horrible drugs - the drugs are as big a worry as the disease itself! I think being a Mom...
Hi Jenn: We reassure g'son 2 that he is fine! Today we picked up "Organic sunflower seeds" for a snack for him. Let's face it, eating healthy counts. I was wondering if you have ever looked at the...
Hi Jenn: I popped into the chat room yesterday a couple of times (BC time) but no names there that I recognized. Not much news on my g'son... continuing to do fine with the Humira but its only the...
Thank you all so much for your kind words. My grandson had his 4 injections at noon today and has not had any reaction at all. Yahoo! So far, so good. It is a releif to have him finally get underway...
LMills: Thank you. That helps. May I ask, are you giving yourself your injections now? Do you use the "pen"?...
My g'son starts Humira in the morning - 4 injections. I plan to be there. What can he expect to happen? Any advice?...
There is a Canadian Crohn's Disease forum at "crohnscanada.myfastforum.org". They are asking anyone who is on the anti-MAP program, anywhere in the world, to please post their progress there. For...
Has anyone tried any of their digestive, intestinal supplements?...
Thank you for all your suggestion. Much appreciated. It really helps to know people care! Bless you all....
By all mean, please do call me Nana. That's about all I answer to these days. My grandson is 19 and Dx'd in Dec 2008 so he's new to this "way of life". Sorry I didn't make it to the chat room this...