I started to developer numbness/tingling in my hands a few months back. The doctor first said it might be a never problem in my neck and so he sent me off to a chiropractor. The symptoms subsided a...
I tried it and it didn't help....
That is very likely that it developed while I was on it and then when I stopped I didn't get the symptoms till a few days after (with the fever and all). My second blood test Wed. showed great...
I stopped 6 mp about a week ago and now am neutropenic with extremely low white blood cells. Anyone else have this experience when they discontinued 6mp? J...
Thanks for all your help. I ended up seeing the ostomy nurse and she put me in a two piece with convexity by Hollister with Eakin seal. No problems now....
I have been using a one piece convatec system since having my temp. ileostomy installed on August 25, 2009. Suddenly, within the last week or so I have been having trouble with leakage. See photos...
You can buy coconut water online at amazon.com or here locally in So. Calif. I buy it at Whole Foods, Sprouts, or Mother's Market. Zico is the best tasting but I like all the brands. This is by far...
I set my ipod alarm to go off every hour to remind me to drink a cup of coconut water....
Try Coconut Water....
Since Thurs. I have felt slight nauseous and lightheaded off and on. I immediately thought I might be dehydrated so I have increased fluids. Drinking mostly coconut water, ensure shakes, and some...
I just had a temporary loop ileostomy installed :) about a month ago. I've notice that after the past two pouch changes it begins to swell and protrude a bit and remains this way (normally is flat to...
I think I may abscess. Can you tell me what your symptoms were? I just have some burning pain on the left side of my stomach after open surgery. At first it was really painful and then the next day...
How long did it take your bowels to start working again following surgery?...
I had surgery and they gave me a temporary ileostomy. My gut was really messed up. Fistula and my ileum was leeking. Thank God they got to it in time ya know. Anyway, now I am waiting for my bowels...
thank you all...
i am going for surgery tomorrow. think i will finally be well again....
well i am still waiting for my bowels to move. some stuff has come up thru the ng tube and released some pressure. i want to hold out as long as possible to see improvement before agreeing to surgery...
Well I almost had a bowel movement this morning. Just too much pain to really push it out. Stomach still so fat. Did have some burping though that relieved some pressure. They plan to do a ultrasound...
pimfram how quickly did your symptoms resolved with bowel rest?...
For those of you whos obstruction resolved itself via steroids and anitbiotics, how long did it take? I have been on them for two days now and only showing some minor improvement. Still no bowel...
So I was admitted Thursday with a bowel obstruction and they are treating it with IV steroids and antibiotics. They are talking surgery as a possibility. I'm scared to death. Has anyone got to the...
Is it safe to have a colonoscopy during a severe flare? Thoughts?...
I'd like to know the dosages. I'm doing well. Bout 3 months or so into the protocol....
Curious if someone can post the regimen prescribed by Dr. Chamberlin?...
Get on the SCD diet period....
I believe this diets works. Did it for four months and all of my Crohn's symptoms went away. I agree that those who have failed lack patience, resolve, and more than likely made common mistakes. Such...
Has anyone has this done? It's where they scope you and I guess open up strictured areas with a balloon. Jason...
I would say it is a combination of both. Cause when I cheat, I am not getting sick at all. Before it would do me in....
Well I am now into month 2 and slowly increasing the meds each month. If anyone wants the detailed protocol from Dr. Boroday (not found online), let me know. I feel pretty good. Sticking to the SCD...
Sorta, I hate the diet but it works every time to resolve my symptoms....
I did. The small bowel follow through showed that my small bowel looked great. Problem is it didn't show the ilieum real well so he wants to do a cat scan. I'm back on the SCD diet and the bloating...
No nausea. Which is odd. When I have had a blockage before I was very sick throwing up and all. Thanks for your support....
I have had no luck getting the third drug. So I will just stick with two. Some of the successful studies were done with only these two drugs. So I am hopeful....
So, for the past few weeks I have been very bloated. I'm usually rail think so it has been very noticeable. It gets worse after meals and has caused a lot of back pain at night. Went in for a small...
I am having a hard time getting FDA approval to use this drug for anti-MAP therapy. J...
Ya, but it seems so hard to get rid of. I'm using Miralax and drinking tons of water and I still feel full of poop....
Fig newtons are yummy....
indeed, I will call him if things don't get better. as of today the bloating is down and I feel good...
Can you use Miralax long term?...
It worked right away for me. But, I have heard that it takes the gut 4 months to properly heal. To speed the process I'd limit honey, fruit, and juice and stay away from almond flour until 3-4 months...
The best diet is the SCD, Jordan Rubin just wants your money....
Well, I also haven't been drinking enough water. Maybe 3 cups a day. Going to increase consumption and hope that helps. I have had Crohn's for 8 years now....
I have noticed as my loose stools have stopped and I am back to formed poop I have a ton of constipation. My stomach is rock hard, I feel full, bloated, and uncomfortable. Right now I am on the...
If anyone is in California, I can give them my Dr.'s number if they're interested in trying this therapy....
The drug that is hard to get is Lamprene otherwise known as clofazimine...
? I have small bowel movements everyday. But not nice formed movements. And I feel so bloated and like my stomach is stretching to hold in all the poop that can't escape. Is that what constipation...
I'm still waiting for approval from the FDA to start the 3rd antibiotic. Cross your fingers and pray they approve it....
E-mail my friend David who has been on anti-MAP therapy for a number of years . He is a great resource. [email protected]...
No. But from the research done, about 90% of Crohn's patients have MAP...
Let me know how it goes with your GP....