Worm sits baths - as many as possible per day. If fistula is infected and there is murky drainage - Cipro and /Flagyl antibiotics are needed....
New promising treatment for fistulas. Stem sell implant in to fistula cavity. ( not fetal). No cutting and no pain. Win win if it works. Mayo and Cleveland clinics are looking for participants....
Yes, I am using it. Love it. No knot. Male to female connection. A company in Massachusetts is the distributor. Its called a Comfort drain. http://www.amisurgical.com/comfort-drain...
I have a scar tissue and narrowing in my ileum. If I don't chew well or swallow fast I do experience extremely intensive abdominal pain. One time a peace of apple caused obstruction and I had to be...
I had ileostomy for almost a 2 years to try and heal my many draining and abscessing fistulas. I had a reversal when my fistulas closed. I did not have a temperature at any time after reversal. I did...
I had to end my career and go on disability because of Crohn's in my mid 50's. First short term from my job, then long term and finally on SSD. SSD was awarded the first time I applied - I was unable...
I am also allergic to Remicade - no matter whether I pre medicate or not, face swelling and within few hrs I develop hives all over my body. Humera worked magic for me for almost 4 years - no...
I have been on this med for 1 year. Its an oral pill once a day, first I was on a blind placebo trial - no change, started on 200 mg dose p/d last year with 50% improvements - less urgency, dria,...
I too have a fistula now for 5 years and my inflammation markers are fine. I do also tell people that I’m in early retirement. I am on SSDI - because of Crohn's, and actually got it pretty fast the...
A lot depends on your disease severity. If you are in active flare - bloody stool, urgency, mucous, high inflammation markers, low iron,etc. - Nothing but steroids will work. I did a lot of...
How did it go for you? Did it work? Did not work for me - fistula reopened after 2 weeks....
Cannabis Oil did not work for me - Got a MJ card and prescription for medical marijuana from a doctor. Worked with a local legal distributor for 3 months trying to find what works for me. Made me...
Check this out: https://www.mayo.edu/research/clinical-trials/cls-20341682 Stem Cell Coated Fistula Plug in Patients With Crohn's RVF...
I am participating in Filgotinib stage 2 clinical trials. My hope was to close complicated rectal fistula - draining seton in for 4 +years. Seton removed the day of trial start. After 3 month's, I...
Lately, when I take opioid for my pain, I am having ejaculation issues - not able to finish. Has anyone had this issue? I am only taking a 5mg a day of oxy without Tylenol....
Scientists aim to harness power of body’s electrical impulses to treat patients. Until now the pharmaceutical industry has been based on chemistry and biology. Patients are treated with drugs that...
I had fistula plug. Did not work. Got infected - swelling and a lot of pain and had to be taken out in one week....
Yes, I had many abscesses and fistulas over the years, Some healed with Cypro and Flagyl, some had to have seton install after abscess drain. Most of the time don't even feel the seton in.It help me...
I had a plug for fistula few years back - did did not work - got infected, developed abscess, plug removed and drain seton installed. While on IV for infection developed c diff. 5 days in hospital...
So glad for this web site - keeps me informed more then any doctor! I will talk to my GI when I see him later this month about taking Xeljanz. I have fistulas now for a 6 years and nothing I took...
I got c.diff after IV antibiotics in the hospital - 2 course's of Vanco and on probiotics all the time now for 3 years - my c.diff did not come back....
Best of LUCK! Entyvio did nothing for me - got another fistula while on it... No noticeable side affects. Been on it for 6 months. But, everyone is different!...
I understand how you feel – I had many fistulas and abscesses over the years. Fistula oozing means you have active inflammation. Antibiotics are needed to prevent infection from spreading all over...
While a change in diet may very well ease symptoms for a period of time, no change in diet will stop chemical processes within the body such as the over-production of Tumor Necrosis Factor Alpha...
I agree - I have disability because of Crohn's....
I had a had a fistulotomy before - mine did not go well, took a long time to heal and did not heal correct. If you have an active inflammation - and sounds like you do with fistula, I would not go...
Seton is not painful, just a soft band to keep abscess draining and hopefully healing. Are you on any meds? Have you been diagnosed with a fistula? – obviously there is active inflammation that’s...
Humira worked great for 3 years for me until I developed anti body to it....
Sounds like you have an active inflammation going on - draining plug. your body maybe healing the outside while inside is still active. the whole idea of the plug is to close external opening of the...
Call your doc ASAP - hard plug may mean that's in getting infected - I had a plug that failed and it did get hard right way....
I had many fistulas and yes, fistula pain is what you may have. MRI will deff. show whats going on down there - very surprised your GI did not sent you earlier to get MRI - few months? OGGGG! Hang in...
Yes, I developed antibodies to Humira after 3 great years on it. Stopped working and I developed fistula....
I had to stop working all together and go on disability because of Crohn's. First short term, then long term, then SSDI. People just don't understand what we have to do every day dealing with this...
Yes, I had a skin reaction while on Humira - itchy hives, especially during summer months. Humira worked great for 3 years until I developed anti body. Hives went away after i stopped Humira....
Very useful! Thanks! I am currently doing first week of QU trial phase 1....
I had this happen - my fistula kept re opening - it was infected and I was put on antibiotics to help with infection and Humira to close it. Call your doc, you may need to be examined....
I have a hip pain - it's one of the external manifestations of Crohn's. Abscess pain is different - I have had many abscess over the years, usually it's a swelling at the site of pain. 3 times...
I had positive experience with the antibiotics healing absces once. Flagyl. Humira kept fistulas away for 3 years, after 3d year I started developing anti body to Humira and fistula came back. 6...
Looks very interesting!...
I also have seepage. Biologics did help me with most of Crohn's symptoms like dria, cramps, blood, etc. When I asked in Cleveland clinic about leaking, was told it's another Crohn's manifestation and...
I dealt with Prometheus lab twice. I also went to my local hospital lab and they sent my blood work to Prometheus. First time to determine if I have UC or Crohn’s. Results came back positive for...
You are in pain and you doc can't help you? Find a dif. doctor that will listen to you and work with you. It took me a long time to find GI that I like, go to a teaching hospital in your area - I...
Go to GI doctor and have an exam - tell him how you feel and what is going on with you. They appear because of rectal/anal inflammation - what meds for Crohn's are you on? I had many fissures that...
I am on disability because of Crohn’s complications. It is not an easy process, but if your doctors support you and you can document your disability for at least a year, it’s possible. It took me 1 ½...
I went to Cleveland Clinic in April of 08 to see a colorectal surgeon. I have a complication that no one in my area - Philly had experience with. Prior to CC I went to U of Penn, Temple U Hospital...
Yes, fistula healing time can take a while - I had few surgeries and some would heal within 4 weeks, some took up to 6 months. All depends on type of fistula, location, incision dept, rectal health –...
I am on my second month of Cimzia and do see an improvement. About a month before I started taking it, I had appendix out via 3 small incisions. No complications, all healed up well, but, today I...
I know how you feel - I had to stop working all together and go on SS disability - took me 1 1/2 years to get it but I am so glad that I did! There is NO way I can go back and deal with stress and...
I think second opinion is in order - does not sound to me that your doc a good communicator - it took me years to find a doc that really listens and wants to work with me. Going to a practice in or...
Humira really helped me with my hip pain and kept me pretty much in remission for almost 3 years until I developed anti body to Humira. Hot bath's help, also if I am in A LOT of pain I will take half...