Hi fellow PG'ers, The reason for the no tape is to not irritate the skin around the ulcer in any way. We are trying to keep it covered from secondary infection without the pulling or harshness from...
Hi everyone, I'm sorry to have been away for a while. A lot has changed with my PG and I've missed some good communication with you guys. I got rid of my infectious disease dr after 10 weeks and have...
Hey eveyone, I finally after 10 weeks of IV therapy for pyoderma gangrenosum ulcer on calf have told the infectious disease dr bye-bye. I've been on steroids ranging from 500 mg a day to 60 mg that...
bump so originalareu hopefully will see. I can't see that this IVIG is helping at all. It is so expensive and I really was hoping for some dramatic results, but I'm back on IV antibiotics . I'm also...
I went to see the inf. disease dr. today and she thinks my PG is trying to develope a secondary infection, so back to the IV antibiotics. I just don't know when I'm going to get the upper hand on...
Hi everyone, It's been a while, but I've still been dealing with Pyoderma Gangrenosum ulcer that won't give up and go away. I've been in a sure enough fight with my body now for over 9 weeks, and you...
I have been going through a really rough time with pyoderma gangrenosum as well as Crohn's and have been on massive doses of steroids for 8 weeks now. (as much as 375mg a day) I have a PICC line in...
Hi everyone, It's been a while since I posted, been going through the ringer. I'm still on IV antibiotics everyday and on oral prednisone for the fifth time. I'm at 80 mg once a day and am holding my...
PG is called Pyoderma Gangrenosum. It is an immune response in the skin and only about 2 % of Crohn's patients develope it. It causes deep ulcers, usually on the legs that get necrotic and are very...
Hi everyone, The culture results came back and I now have a secondary staph infection in the PG ulcer. I will come off the Vancomycin and on Ancef (which luckily is a 30 min infusion) for the...
Hi everyone, I haven't been on the site any lately, I just have been in this limbo with the PG that is taking over my life it seems!! I'm still having to go to the IV clinic everyday, and am back at...
I got pancreatitis on 6mp after 2 years of taking it, and my dr. said I could not take Imuran either. He switched me to Methotrexate often used in Rheumatoid Arthritis as an immunosuppressant. I...
Hi everyone, Thanks for your words, ideas, and support. Yesterday was my last day at school for 9 days (spring break-yeah)!! I can now take time to rest and hopefully heal easier. I'm still going to...
I made it through another day at IV center and work. Thankful for that. I still am not getting any better, if anything the celulitis is getting worse and more pain. The burning pain is coming back as...
Thanks everyone for the words of encouragement, I sure needed them! I ended up having to go to dr today after the night I had last night. The swelling and cellulitis have started back and she has put...
Hi fellow PGers, Things were going pretty good with the ulcer on my calf and I thought I was lucky to be healing better than expected. I am not on any IV antibiotics, but still have the PICC in my...
I made it through the first day on oral steroids and everything seems to be going good. Work is getting easier, especially not having to go to IV therapy before everyday. I see the dr on Fri. and we...
Hey everyone, I thought I'd give you the skinny on what's going on with the PG treatment. I went in for my morning IV therapy and saw the dr today. I am finished with the IV antibiotics and am making...
Hey PGers, Just thought I'd give an update. I've been back to work for 3 days now and all is going pretty well. I love being back in the classroom and around the kids and my co-workers. It's hard to...
I've been on Cimzia since July (except for brief lapse right now fromPG treatment). I am due to have it Thursday, and I think I've finally found a combination that works for me. My GI and I have...
Hey everyone, I thought I'd let ya'll know how first day back at work went. I was SO tired and had to go at 7:30 to IV clinic and then straight to work by 8:30. I made it and was so happy to see the...
The PG thing started with a bump on my calf that gradually started getting a red ring around it. My leg began to swell and the bump started developing black on it. I went to the ER where they cut and...
I've been dealing with the recent addition to the Crohn's complications the BIG, BAD, PYODERMA GANGRENOSUM. It snuck up on me and has been one of the most challenging problems of Crohn's. I seriously...
I went today for my daily infusions and have to see the head dr. everyday. She keeps upping the steroids and I get less and less sleep. I guess eventually I will just fall over and have to sleep. She...
Thanks for the support everyone. I went to the infusion center this morning and ended up in so much pain I was sobbing in front of all the people there. Add it to my embarrasing moments list. I did...
I am having the worst night in a while. The PG looks better, and I'm still going to the iv center every day. The problem is where the necrotic skin has come off I have excrutiating pain. It feels...
I called my GI dr. today and made an appt. to see him and try to sort the immunosuppressants out. He thinks like I do that I should be on them. I think the infectious disease dr. is great at dealing...
I went to the infectious disease dr. today and she said we are concluding it is PG. The steroids are doing good and the Lasix has the swelling down. The thing I'm worried about is she wants me to...
/community/emoticons/confused.gif I am in the rule out stage for PG. I went to the emergency room Sunday with what they told me was MRSA and started me on oral Bactrim. I had a horrible looking...
We live in The panhandle of Florida. We have Sacred Heart Children's Hospital here and also a Nemours Clinic. They were both invaluable in treating my son in June. I'm not sure about a LLMD doctor, I...
I am a regular on the Crohn's site and saw this Lyme site here. Today, my 13 year old son had a tick in his back that had to be there since he was building a fort in the woods yesterday. We removed...
I have been having low grade night fevers for about a year and the dr. doesn't have a clue why. I figured I'd come here and see if anyone else is experiencing this. The fevers start at about 5-7 p.m....
Hi Gail I've been on the Cimzia since late July. I was the first one from my dr. to go on it. I keep trying to have faith that this drug will work better. I am running out of options, because of the...
Hi gail, I made it through and my kids had a good Christmas, that's alll that matters to me. I was able to be out of the hospital for them, which I was extremely greatful for. I'm hoping to get some...
Hey everyone, I've been off the site for a while, trying to get through the holidays. I've really been struggling and have been in the hospital 2 times since Nov. They keep telling me the Cimzia is...
Hi gail my re-section was a cut from belly button to pubic bone. They removed 18 inches at the ileum, 6 inches at the sigmoid, removed my appendix, and an ovary. That was 4 years ago and I really...
I went for my SBFT today the GI dr was looking for fistula from small bowel to colon. The radiologist said no to that, but said preliminarily he saw lots of twisted small bowel at the ileum where I...
I spend so much time going to the bathroom with d I never would think I would end up with motility issues. My dr had me do two days of preps with Miralax to clear out my FULL colon. What in the...
I got severe pancreatitis from 6 MP. My dr said I can never take it or Imuran, as it will come back. The tests done to help diagnose panc. were simple blood test of amylase and lipase levels. If...
I had my appointment today and like I had planned I took my journal to him on Wed. When I went in today he thanked me for the insight and truly spent 45 minutes listening and planning our attack on...
Hey all, I just wanted to let those of you know that posted on my thread last week while I was in a major funk that things are going better and my mood is on the rise. I started journaling about...
When I started on Cimzia I received a notebook from UCB Pharma. In this notebook it has calenders with stickers to note everytime you go to the bathroom, dr's appt, sad faces for bad days, and a...
Thanks all for the good ideas. I am feeling a little better on the funk-o-meter as I call it. I have an appointment on the 7th with my GI, and I plan on getting my moneys worth. I have my list,...
I think I'm going to check out the depression forum, and see if they have some ideas on what I can do. I find myself full of such doubt about eveything. I posted 3 hours ago and thought I would have...
I've been in such a funk and I just can't seem to shake it! I find I can't even post because I feel I have nothing to offer. I joined the forum not to long ago and really enjoyed posting and reading...
Be glad you can fart. I can't unless I'm on the pot, a little something else might come out!! Thanks for a needed laugh!...
I just recently went through trhush after hospitilation and all the meds they had me on. I wrote on the threads and got some great tips. The one that worked within 2 days was tea tree oil. I got it...
I've had many pancreas issues with my crohn's, but none of mine had anything to do with sugar issues. Mine ALL had extreme pain, with high pancreatic enzyme numbers. The doctors here in NW Florida...
I'm so glad that Sierra is home. We've all been following her progress and mention her often. She's kinda become our forum child. I had all boys, and can't imagine even going through this disease...
The prep always gets me!! I usually am already well on my way to flaredom, and the prep seals the deal. THe last time (last week) I was in the hospital, the dr new what it would do to me and I spent...