Wanted to give an update. No blood at all today or yesterday. My cold is gone (mostly). Let's see how long this will last. Yeah, Tough. I used to come to the same conclusion as you for a few years....
This morning, the blood amount increased. I'm currently sick (caught a virus). I wonder if being sick is causing the disease to wake up? Monkey10- you never became symptom-free on entyvio? It seems...
Gary, I was on pred initially with entyvio, then entyvio and imuran. Currently entyvio and imuran. This combo gave me no symptoms for a long while. I'm hoping whatever is going on now is just a...
Hey Tough. So, it's hard for me to say when Entyvio started to help because right when I started entyvio, I also went on prednisone (sypmtoms were getting too much and didn't want to wait for entyvio...
So, I have been on Entyvio for a year. All symptoms disappeared. Recently started to notice a few minor symptoms that include blood. I'm wondering if this is just a hiccup and not a sign the drug is...
Hey {{CROHN'S}}, your username taught me where some key is located on the keyboard. Yes, I hope one day a company will release a 'regular' drug. That would be awesome. Your link shows a handful of...
{{CROHN'S}}, I followed your link but I suck at understanding things. What does it all mean? Should we worry that entyvio will stop working one day? My doctor prescribed daily imuran (azathioprine)...
Sorry to bring this thread back up... I wanted to give an update on my Entyvio experience. My 6th infusion is coming soon. I'm no longer experiencing urgency, blood, d, or painful cramps. So happy! I...
I don't know if this is worth posting... Something I never understood when I was on the Humira pen. My site was my thigh. Every now and then, the pen didn't cause any pain... sometimes I even second...
songstress- thank you for stopping by and sharing! No doubt you are the longest person on entyvio that I've read. May I ask if you take/took other crohn's related drugs while on entyvio? At what...
We all have to vent sometimes, some more than others. It looks like you have reasons to complain. I'm sorry :(...
mikef - Walgreens does home infusions. Give them a call and tell them about your living arrangement. Hopefully they are okay with your situation....
I got my 4th infusion a few weeks back. It has taken a lot of convincing myself (not sure why), but I believe entyvio is helping me. There are still some symptoms like loose stool, but for the most...
I second Gi Monitor. Been using it to track my health for close to 2 years. Wonderful little app....
I did the Humira pen for about half a year. I never did get use to it. The anticipation, the anxiety were not fun. Sometimes I felt pain, sometimes I didn't. I never did understand why one shot hurt...
Entyvio is a new drug. I assume the people here (myself included) have only recently started the treatment. So with that in mind, it really isn't fair to say people here are not finding success with...
redrox, I say don't stress about the infusion cost. If you signed up to entyvio connect, it shouldn't be more than $50 per infusion. Remember, this drug is new so these places are probably still...
Thanks all for the helpful words. I talked to Entyvio Connect and my out-of-pocket cost will only be $50 per infusion (whew!). Now I want to know if Entyvio will help me... which I'll just have to...
SE Asian here, diagnosed with UC some years ago (now with Crohn's)... but have lived in America for close to 20 years. I hear every time about relatives and family friends back home who complain...
Hey all... some questions to those in the US who are on Entyvio with insurance through their employer. Did you sign up for Entyvio Connect (financial assistance)? I received my bill from the hospital...
Nope, can't say I experienced side effects from entyvio. Just got my 2nd dose....
bania- thanks for answering my question. I'm staying hopeful. If nothing changes by the end of the year, then I'm going into despair mode....
I got one shot down, 2nd one this week. Eh, I don't feel much improvement, but I'll keep on hoping. Dumb question- the positive effect of the entyvio should be strongest right after an infusion,...
Great update. Always good to hear someone is in remission. It gives hope to the rest of us. Thanks....
I started Humira early this year. If I remember correctly, I started with 4 intro shots by a nurse at the clinic. Now I self inject Humira every other week on my thigh (you have a choice of your...
I'm also starting humira soon (insurance wouldn't cover remicade). I'll keep an eye on this thread because I want to know more about humira, too. Supposedly, you have a choice of self-injecting via a...
I have this impression that once you are put on remicade, you no longer go on mesalamine. I thought that was procedure. Am I misunderstanding something? LaurieD, how long were you on the enema before...
Thank you everyone for the replies. Small update, still have the headache. There seems to be more urgency, not noticing diarrhea as much, stool seems more formed, blood seems less. I would say...
Hey, I'm a Seattleite, too! I'm sorry to hear about your situation. Got a j-pouch, and then learned you actually had crohns all along :( I always thought if worst comes to worst, I could do the...
Petah, I don't remember reading about the gas from the kraut. Good to know, I guess. Like I need even more sources for gas, sigh. I think my sauerkraut is ready to be eaten. Good thing I decided not...
Levi, are you planning to continue using shing dee? What the TCM practitioner told you makes me nervous now, but it's good to hear two grams per day is well below the limit. I think I should make a...
Hey garylouisville, thanks for replying. I really don't know if lialda or imuran are helping me. I mean, my symptoms don't seem to worsen since I started them so maybe they are helping, just not...
Potato juice? This has to be the first time I heard of such a thing, but it means I'm learning something new today. Please update on this. It's ridiculous how much we experiment with our body to...
Hi, lurker here. I know some people here are or were taking qing dai or ccherbal. I decided to take the plunge and ordered qing dai. Any updates from those taking it? My qing dai arrived this week....